Care4Complex
@care4complex.bsky.social
Account no longer in use, but not sure about deleting so parked for now - might use for advocacy later.
Pinned
Care4Complex
@care4complex.bsky.social
· Nov 16
Apparently people are doing intros here for new followers. It’s hard to intro myself succinctly but I’ll try - I’m still not sure if I will resume the level of #Care4Complex advocacy here I was doing on X. It’s exhausting, and frankly has only resulted in my feeling further alienated. So, pre-2021…
Unfortunately Mayo clinic is actually very hard to get into, and I've heard really mixed experiences there for anything related to post viral and autonomic conditions. Private practice usually goes better than big medical centres with stuff like this.
October 31, 2025 at 8:34 PM
Unfortunately Mayo clinic is actually very hard to get into, and I've heard really mixed experiences there for anything related to post viral and autonomic conditions. Private practice usually goes better than big medical centres with stuff like this.
Bonus if they do virtual consults and are on the west coast, but I am desperate enough to try and travel anywhere in North America. I cannot go on like this.
October 31, 2025 at 7:05 PM
Bonus if they do virtual consults and are on the west coast, but I am desperate enough to try and travel anywhere in North America. I cannot go on like this.
My bowel/GI attacks, pain, diarrhea have dramatically worsened in the last six weeks or so. I am having unbearable pain, multiple attacks a week, even in the middle of the night. I still have no prospect of accessing GI care in Vancouver, nor have I been able to see infectious disease.
October 31, 2025 at 7:05 PM
My bowel/GI attacks, pain, diarrhea have dramatically worsened in the last six weeks or so. I am having unbearable pain, multiple attacks a week, even in the middle of the night. I still have no prospect of accessing GI care in Vancouver, nor have I been able to see infectious disease.
Does anyone know a doctor anywhere in North America who could assess someone with severe GI damage from multiple infections, worsened by Rituximab/prolonged oral prednisone, malnutrition (including severe Thiamine deficiency), and autoimmune neuropathy?
October 31, 2025 at 7:05 PM
Does anyone know a doctor anywhere in North America who could assess someone with severe GI damage from multiple infections, worsened by Rituximab/prolonged oral prednisone, malnutrition (including severe Thiamine deficiency), and autoimmune neuropathy?
I was sent this story and have to share it - the fact that not only decades of adults and children have been neglected with post viral and complex diseases in Canada, but that this is STILL how we are being treated should be criminal. THIS NEEDS TO STOP. #Care4ComplexCanada #LongCovid
🧵Kid got covid Feb 2024. It was very mild, fever of 38.5C. Sore throat for a day.
But then, he kept getting recurring sore throats every other week for 3 months. And then he raced other kids one day & everything went to hell.
Absence seizures, bed bound kind of fatigue, tremors,
1/x
But then, he kept getting recurring sore throats every other week for 3 months. And then he raced other kids one day & everything went to hell.
Absence seizures, bed bound kind of fatigue, tremors,
1/x
Imagine the parents of chronically ill children who realized that they were lied to when they were told that Covid was mild in children, and even that it was good for their immune systems. They are gonna be enraged. 5/
September 8, 2025 at 11:02 PM
I was sent this story and have to share it - the fact that not only decades of adults and children have been neglected with post viral and complex diseases in Canada, but that this is STILL how we are being treated should be criminal. THIS NEEDS TO STOP. #Care4ComplexCanada #LongCovid
I am so exhausted and going to have a breakdown from not being able to sleep and the repair men do nothing but gaslight us, on top of being incredibly sick and having this botched root canal to deal with. I JUST WANT TO BE ABLE TO SLEEP. HELPPPPPPP. #Vancouver #HVAC
July 21, 2025 at 11:51 PM
I am so exhausted and going to have a breakdown from not being able to sleep and the repair men do nothing but gaslight us, on top of being incredibly sick and having this botched root canal to deal with. I JUST WANT TO BE ABLE TO SLEEP. HELPPPPPPP. #Vancouver #HVAC
We have two other units and we have never had an issue with them, we KNOW how it’s supposed to sound and function and there is 100% something wrong (just like before when they gaslit us for an entire summer when there was actually a coolant leak and no coolant left in the machine).
July 21, 2025 at 11:51 PM
We have two other units and we have never had an issue with them, we KNOW how it’s supposed to sound and function and there is 100% something wrong (just like before when they gaslit us for an entire summer when there was actually a coolant leak and no coolant left in the machine).
We still don’t have proper functioning AC in the bedroom where I spend 75% of my time trapped in. All they do is gaslight us over this clearly malfunctioning unit. Bruno tried calling the manufacturer and same gaslighting BS.
July 21, 2025 at 11:51 PM
We still don’t have proper functioning AC in the bedroom where I spend 75% of my time trapped in. All they do is gaslight us over this clearly malfunctioning unit. Bruno tried calling the manufacturer and same gaslighting BS.
I can’t believe I am asking this for a THIRD year in a row, but does anyone know an ethical HVAC contractor (preferably independent) in Vancouver? The two big companies (Milani and Ashton) have screwed us over and over, and after spending many thousands of dollars...
July 21, 2025 at 11:51 PM
I can’t believe I am asking this for a THIRD year in a row, but does anyone know an ethical HVAC contractor (preferably independent) in Vancouver? The two big companies (Milani and Ashton) have screwed us over and over, and after spending many thousands of dollars...
😳 well that’s some freaky shit, but what can’t Covid do? Tiny silver lining getting a hayfever reprieve.
June 18, 2025 at 4:10 AM
😳 well that’s some freaky shit, but what can’t Covid do? Tiny silver lining getting a hayfever reprieve.
Paging @catherinewinters.com or other Vancouverites, is your hayfever horrifying rn? I want to rip my itchy throat out of my own mouth. It’s the worst I’ve ever had it and almost nothing is helping! (Yes I logged onto Bsky specifically for this since you didn’t seem to be on X anymore!) 😬
June 18, 2025 at 2:43 AM
Paging @catherinewinters.com or other Vancouverites, is your hayfever horrifying rn? I want to rip my itchy throat out of my own mouth. It’s the worst I’ve ever had it and almost nothing is helping! (Yes I logged onto Bsky specifically for this since you didn’t seem to be on X anymore!) 😬
Oddly it seems to have settled down some since the US election. I get trolled more here and on Threads whenever I try to engage! I will try and pop in a bit more though, the community really got splintered.
June 1, 2025 at 8:34 PM
Oddly it seems to have settled down some since the US election. I get trolled more here and on Threads whenever I try to engage! I will try and pop in a bit more though, the community really got splintered.
Hi! Miss you over on X. I almost never pop my head in here anymore because I was getting such low engagement from people I actually know and like, and lots of weird abusive comments. 🙃
June 1, 2025 at 7:42 PM
Hi! Miss you over on X. I almost never pop my head in here anymore because I was getting such low engagement from people I actually know and like, and lots of weird abusive comments. 🙃
Do you ever wonder if the government is intentionally keeping us distracted with bickering about masking, so that they can continue to avoid having to do what we needed this whole time and invest in air filtration systems in all public buildings? 👀 #CovidIsAirborne
June 1, 2025 at 5:03 PM
Do you ever wonder if the government is intentionally keeping us distracted with bickering about masking, so that they can continue to avoid having to do what we needed this whole time and invest in air filtration systems in all public buildings? 👀 #CovidIsAirborne
Reposted by Care4Complex
If HCWs feel “attacked” when we call them out for not masking, perhaps that’s projection because deep down they know they should be wearing a mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
May 4, 2025 at 5:21 AM
If HCWs feel “attacked” when we call them out for not masking, perhaps that’s projection because deep down they know they should be wearing a mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
We’re fighting for our literal lives. Fighting to avoid further disability and loss of baseline.
Your first duty is to your patient. Wear the mask.
Reposted by Care4Complex
at some point these public health ghouls who let covid rip are either going to have to reckon with the consequences of mass immune damage, or escape/disappear somehow
Where is Public Health?
Last week, I was writing about #measles spreading in Ontario and Alberta and the invisibility of public health officials there. www.theglobeandmail.com/canada/artic...
CBC News has more on the topic today, including this observation. www.cbc.ca/news/health/...
Last week, I was writing about #measles spreading in Ontario and Alberta and the invisibility of public health officials there. www.theglobeandmail.com/canada/artic...
CBC News has more on the topic today, including this observation. www.cbc.ca/news/health/...
May 3, 2025 at 2:29 PM
at some point these public health ghouls who let covid rip are either going to have to reckon with the consequences of mass immune damage, or escape/disappear somehow
Reposted by Care4Complex
🎯
One of Mark Carney's first priorities should be depolarizing our politics and protecting us from foreign-funded disinformation and other deliberate attempts at division.
The best way to do that? Electoral reform. #cdnpoli www.nationalobserver.com/2025/04/30/o...
The best way to do that? Electoral reform. #cdnpoli www.nationalobserver.com/2025/04/30/o...
Mark Carney needs to depolarize our politics
Under a more proportional system, both parties would be incentivized to compete more aggressively in all parts of the country — and rewarded for efforts aimed at building bridges rather than burning t...
www.nationalobserver.com
April 30, 2025 at 3:36 PM
🎯
Reposted by Care4Complex
What happens when you ask the government for data you have a legitimate right to obtain but that would provide evidence that it was wasting significant taxpayer dollars instead of providing needed health care?
This happens.
This happens.
April 30, 2025 at 3:52 PM
What happens when you ask the government for data you have a legitimate right to obtain but that would provide evidence that it was wasting significant taxpayer dollars instead of providing needed health care?
This happens.
This happens.
The terrible exchange rate is making paying for US medical consults + testing even less feasible. The least the BC government could do, if they're not going to give me healthcare, is give us back our taxes so I can get it in the states. #BCHealthcareCrisis #Care4ComplexCanada
April 22, 2025 at 7:17 PM
The terrible exchange rate is making paying for US medical consults + testing even less feasible. The least the BC government could do, if they're not going to give me healthcare, is give us back our taxes so I can get it in the states. #BCHealthcareCrisis #Care4ComplexCanada
The lengths that I've gone to, trying to get medical care... No average person has the financial, social, educational, cognitive capital to do anything like this while this sick. I am the epitome of privilege aside from not being male. If I can't get care, who can? #Care4Complex
April 21, 2025 at 6:28 PM
The lengths that I've gone to, trying to get medical care... No average person has the financial, social, educational, cognitive capital to do anything like this while this sick. I am the epitome of privilege aside from not being male. If I can't get care, who can? #Care4Complex
💕 So out of control. They’re supposed to be helping people not abusing them and killing them. I will never understand. I wish I’d had the wherewithal to video tape some of their behaviour, people would not believe it.
April 21, 2025 at 5:29 PM
💕 So out of control. They’re supposed to be helping people not abusing them and killing them. I will never understand. I wish I’d had the wherewithal to video tape some of their behaviour, people would not believe it.
Like, ALL we want is decent medical care. That’s it. Why does that get us treated like the scum of the earth??? This is discrimination pure + simple. The medical system and people in it HATE complex illness patients + refuse us care. Tell me how that’s not blatant discrimination?
April 21, 2025 at 5:06 PM
Like, ALL we want is decent medical care. That’s it. Why does that get us treated like the scum of the earth??? This is discrimination pure + simple. The medical system and people in it HATE complex illness patients + refuse us care. Tell me how that’s not blatant discrimination?
How do I get people, especially people in power, to care about me + the thousands of others like me, WITHOUT subjecting myself to more retaliation by vindictive doctors, blacklisting me from care + tarnishing my reputation as a patient? I’m so sick + exhausted. I want to give up.
April 21, 2025 at 5:06 PM
How do I get people, especially people in power, to care about me + the thousands of others like me, WITHOUT subjecting myself to more retaliation by vindictive doctors, blacklisting me from care + tarnishing my reputation as a patient? I’m so sick + exhausted. I want to give up.
It’s so scary because it’s just one step away from punishing those who get sick, and I can see that’s next in their evil plan.
April 21, 2025 at 5:05 PM
It’s so scary because it’s just one step away from punishing those who get sick, and I can see that’s next in their evil plan.
Not to mention you can absolutely do all that stuff right, and still end up sick as fuck like me. I did it all. That’s not how bodies and life work.
April 21, 2025 at 4:52 PM
Not to mention you can absolutely do all that stuff right, and still end up sick as fuck like me. I did it all. That’s not how bodies and life work.