Briana Arnett
@brisummer.bsky.social
☃️❄️🏂🌨️⛷️Red Sox,Celtics,Bruins. Love everything Boston! Chronic pancreatitis warrior. Rare Disease Zebra. Immunocompromised. Sepsis survivor. Neurodivergent. 🌊 Blue Wave. Democrat. Resist. Wear a mask. No Facism! No Racism! The Resistance! - ✊🏿 BLM ✊🏽
Pinned
Reposted by Briana Arnett
This is concerning, that a rep feels they must post this. A lot in our coalition has felt the same way and worried about it, but didn’t think we’d be here publicly.
February 14, 2026 at 1:27 AM
This is concerning, that a rep feels they must post this. A lot in our coalition has felt the same way and worried about it, but didn’t think we’d be here publicly.
Reposted by Briana Arnett
How are you feeling?
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
February 7, 2026 at 9:31 PM
How are you feeling?
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
🫠🥺😵💫😄🫣😎😖☺️
Need help finding mental health resources: We will help you find what you need 🩵
linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome
Reposted by Briana Arnett
To celebrate #RareDiseaseDay, we've invited Matthew Osmond, #CHEO Genetic Counsellor & #Care4Rare Project Manager, to join a #SpeakerSeries panel on #Matchmaking for #RareDisease Diagnosis.
Join Matthew and other #PatientMatchmaking pioneers live: us06web.zoom.us/webinar/regi...
Join Matthew and other #PatientMatchmaking pioneers live: us06web.zoom.us/webinar/regi...
February 9, 2026 at 10:33 PM
To celebrate #RareDiseaseDay, we've invited Matthew Osmond, #CHEO Genetic Counsellor & #Care4Rare Project Manager, to join a #SpeakerSeries panel on #Matchmaking for #RareDisease Diagnosis.
Join Matthew and other #PatientMatchmaking pioneers live: us06web.zoom.us/webinar/regi...
Join Matthew and other #PatientMatchmaking pioneers live: us06web.zoom.us/webinar/regi...
Reposted by Briana Arnett
🌟 This Month’s Rare Advocacy Spotlight: Reagan Udall Foundation for the FDA 🌟
They connect patients, clinicians, researchers & industry to advance collaboration, innovation & patient-centered solutions.
📩 Read & subscribe: https://bit.ly/46EroM7
#RareAdvocacySpotlight #RareDisease
They connect patients, clinicians, researchers & industry to advance collaboration, innovation & patient-centered solutions.
📩 Read & subscribe: https://bit.ly/46EroM7
#RareAdvocacySpotlight #RareDisease
Rare Advocacy Spotlight: Reagan-Udall Foundation for the FDA
Highlighting the Reagan-Udall Foundation for the FDA and its impact on rare disease research and clinical trials.
bit.ly
February 12, 2026 at 3:45 PM
🌟 This Month’s Rare Advocacy Spotlight: Reagan Udall Foundation for the FDA 🌟
They connect patients, clinicians, researchers & industry to advance collaboration, innovation & patient-centered solutions.
📩 Read & subscribe: https://bit.ly/46EroM7
#RareAdvocacySpotlight #RareDisease
They connect patients, clinicians, researchers & industry to advance collaboration, innovation & patient-centered solutions.
📩 Read & subscribe: https://bit.ly/46EroM7
#RareAdvocacySpotlight #RareDisease
Reposted by Briana Arnett
Rare disease is more than statistics. It is lived every day by families searching for answers.
For Rare Disease Month, we share global, People-First stories showing how earlier genomics and long-read WGS can shorten diagnostic journeys.
Details: bit.ly/3ZyEczS
#WeCareForRare #PacBio #RareDisease
For Rare Disease Month, we share global, People-First stories showing how earlier genomics and long-read WGS can shorten diagnostic journeys.
Details: bit.ly/3ZyEczS
#WeCareForRare #PacBio #RareDisease
Rare Disease Month: Taking a People-First approach in the global fight against rare disease - PacBio
For Rare Disease Month, we’re sharing stories across the globe that connect the data to the lives of the families at the center of it.
bit.ly
February 12, 2026 at 10:38 PM
Rare disease is more than statistics. It is lived every day by families searching for answers.
For Rare Disease Month, we share global, People-First stories showing how earlier genomics and long-read WGS can shorten diagnostic journeys.
Details: bit.ly/3ZyEczS
#WeCareForRare #PacBio #RareDisease
For Rare Disease Month, we share global, People-First stories showing how earlier genomics and long-read WGS can shorten diagnostic journeys.
Details: bit.ly/3ZyEczS
#WeCareForRare #PacBio #RareDisease
Reposted by Briana Arnett
🦓This month, we stand with our neighbors, caregivers, researchers, and healthcare professionals working to improve awareness, access to care, and support across our state for #raredisease.
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
February 10, 2026 at 4:48 PM
🦓This month, we stand with our neighbors, caregivers, researchers, and healthcare professionals working to improve awareness, access to care, and support across our state for #raredisease.
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
Reposted by Briana Arnett
February is Rare Disease Month. The Rare Diseases, Real Stories podcast series spotlights families affected by rare diseases. Listen here: direc.to/oUKe
#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧
#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧
Rare Diseases, Real Stories
Rare Diseases, Real Stories
direc.to
February 13, 2026 at 4:48 PM
February is Rare Disease Month. The Rare Diseases, Real Stories podcast series spotlights families affected by rare diseases. Listen here: direc.to/oUKe
#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧
#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧
Reposted by Briana Arnett
“Some lives are measured not in years, but in the love they leave behind.” -Unknown
May sweet Liam rest in peace.
#curegm1 #raredisease #childloss #grief #restinpeace
May sweet Liam rest in peace.
#curegm1 #raredisease #childloss #grief #restinpeace
February 13, 2026 at 3:49 PM
“Some lives are measured not in years, but in the love they leave behind.” -Unknown
May sweet Liam rest in peace.
#curegm1 #raredisease #childloss #grief #restinpeace
May sweet Liam rest in peace.
#curegm1 #raredisease #childloss #grief #restinpeace
Reposted by Briana Arnett
Read This: "Obama Breaks Silence on Trump’s Racist Ape Video" www.thedailybeast.com//obama-break...
Obama Breaks Silence on Trump’s Racist Ape Video
The former President highlighted protesters in Minneapolis who are fighting back.
www.thedailybeast.com
February 14, 2026 at 9:40 PM
Read This: "Obama Breaks Silence on Trump’s Racist Ape Video" www.thedailybeast.com//obama-break...
Reposted by Briana Arnett
Reposted by Briana Arnett
Epstein survivors released this powerful PSA calling for ALL files to be released. These are real women, real survivors, demanding accountability. Listen to them. HEAR them. And FFS, let's all agree to believe them! Enough is enough!
#ReleaseTheEpsteinFiles #StopTrump #StopTheMadness #Resist 👊🏼
#ReleaseTheEpsteinFiles #StopTrump #StopTheMadness #Resist 👊🏼
February 8, 2026 at 3:21 PM
Epstein survivors released this powerful PSA calling for ALL files to be released. These are real women, real survivors, demanding accountability. Listen to them. HEAR them. And FFS, let's all agree to believe them! Enough is enough!
#ReleaseTheEpsteinFiles #StopTrump #StopTheMadness #Resist 👊🏼
#ReleaseTheEpsteinFiles #StopTrump #StopTheMadness #Resist 👊🏼
Reposted by Briana Arnett
Reposted by Briana Arnett
🚨 Epstein survivors release this powerful PSA in advance of the Super Bowl demanding answers from the Justice Department. This is the Super Bowl ad every American should see. Spread it everywhere.
February 8, 2026 at 5:32 PM
🚨 Epstein survivors release this powerful PSA in advance of the Super Bowl demanding answers from the Justice Department. This is the Super Bowl ad every American should see. Spread it everywhere.
Reposted by Briana Arnett
The President of America
said this.
I find it hard to root
for a 34X convicted felon
as president. A real loser.
said this.
I find it hard to root
for a 34X convicted felon
as president. A real loser.
February 8, 2026 at 4:33 PM
The President of America
said this.
I find it hard to root
for a 34X convicted felon
as president. A real loser.
said this.
I find it hard to root
for a 34X convicted felon
as president. A real loser.
Reposted by Briana Arnett
Reposted by Briana Arnett
Reposted by Briana Arnett
If Doritos could get away with it, they would sell you one chip at a time for 10 bucks a pop. Someday, they dream.
February 7, 2026 at 9:11 PM
If Doritos could get away with it, they would sell you one chip at a time for 10 bucks a pop. Someday, they dream.
Reposted by Briana Arnett
February 8, 2026 at 5:13 PM
Reposted by Briana Arnett
CC KKKARMA
GHISLAINE IS A RAPIST AND A PIMP
TRUMP IS JOHN DOE 174
NAZI VEEP KKKING TRUMP IS A RABID SERIAL RAPIST PEDOPHILE PIMP FELON
TRUMP IS SCUM
RIP WARRIOR QUEEN VIRGINIA GUIFFRE
GHISLAINE IS A RAPIST AND A PIMP
TRUMP IS JOHN DOE 174
NAZI VEEP KKKING TRUMP IS A RABID SERIAL RAPIST PEDOPHILE PIMP FELON
TRUMP IS SCUM
RIP WARRIOR QUEEN VIRGINIA GUIFFRE
Trump has CATASTROPHIC SUNDAY as GHISLAINE INVOKES FIFTH
YouTube video by MeidasTouch
youtu.be
February 8, 2026 at 6:49 PM
CC KKKARMA
GHISLAINE IS A RAPIST AND A PIMP
TRUMP IS JOHN DOE 174
NAZI VEEP KKKING TRUMP IS A RABID SERIAL RAPIST PEDOPHILE PIMP FELON
TRUMP IS SCUM
RIP WARRIOR QUEEN VIRGINIA GUIFFRE
GHISLAINE IS A RAPIST AND A PIMP
TRUMP IS JOHN DOE 174
NAZI VEEP KKKING TRUMP IS A RABID SERIAL RAPIST PEDOPHILE PIMP FELON
TRUMP IS SCUM
RIP WARRIOR QUEEN VIRGINIA GUIFFRE
Reposted by Briana Arnett
It only took them 12 months to build massive concentration camps all over the USA. You’d think there would be more uproar, but no. No one cares unless it’s in their backyard.
February 8, 2026 at 9:42 AM
It only took them 12 months to build massive concentration camps all over the USA. You’d think there would be more uproar, but no. No one cares unless it’s in their backyard.