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nmraredisease.bsky.social
Zia Zebra
@nmraredisease.bsky.social
19 followers 36 following 89 posts
πŸ¦“ Digital source for New Mexico Rare Disease Community.
🌐 www.nmraredisease.org
#NMRareDisease
#NMRare
#Showyourstripes
#ziazebras
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nmraredisease.bsky.social
πŸ¦“ Together, we can make rare diseases less rare by showing empathy, spreading knowledge, and fostering communities of support...

#NewMexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 22, 2025 at 3:12 PM
nmraredisease.bsky.social
πŸ¦“ Rare Disease Day 2026 is coming...

Ready to join the herd?

#NewMexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 19, 2025 at 2:25 PM
nmraredisease.bsky.social
πŸ¦“"When you hear hoof beats behind you don't expect to see a zebra" was the original quote urging physicians to ignore #RareDisease and focus on general diagnoses hindering #patients.
Let's chage that for #NewMexico!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 16, 2025 at 7:27 PM
nmraredisease.bsky.social
πŸ¦“ While each rare disease may affect a few people, the impact is felt deeply by patients, families, and communities in #NM and globally.

#NewMexico needs a #RDAC.
Help us improve it for everyone.

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 13, 2025 at 4:21 PM
nmraredisease.bsky.social
πŸ¦“ Together, we can create a state and maybe even a world where those with #raredisease receive the care, understanding, and support they deserve locally without having to travel for #healthcare.

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 10, 2025 at 3:48 PM
nmraredisease.bsky.social
πŸ¦“ Together, we can create a State and maybe even a world where those with #raredisease receive the care, understanding, and support they deserve locally without having to travel for #healthcare.

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 10, 2025 at 3:47 PM
nmraredisease.bsky.social
πŸ¦“ Every diagnosis is a journey of uncertainty, hope, and courage.

As we raise awareness, let's remember:

No one should feel alone yet, many do.

Let's make #NewMexico #healthcare better for all.

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
November 7, 2025 at 2:11 PM
nmraredisease.bsky.social
πŸ¦“ Breathe in the cool, crisp mornings & enjoy the wonderful time of year before the holiday season begins.
Next year, more positive changes to #NewMexico #healthcare will be made for those with #raredisease.

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
November 4, 2025 at 5:31 PM
nmraredisease.bsky.social
πŸ¦“ #Happy Halloween! πŸŽƒ
πŸ‘» With the spooky state #NewMexico #healthcare is in we need people willing to step up, break the bad hocus pocus cycle & make positive changes for the future of #RareDisease!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras #BreakingBad
October 31, 2025 at 4:57 PM
nmraredisease.bsky.social
πŸ¦“ Every season is a #RareDisease season and deserves the appropriate attention from #healthcare providers to improve #qualityoflife in #NewMexico.

πŸ“£Share your voice and let's create a #RDAC for NM!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 29, 2025 at 4:34 PM
nmraredisease.bsky.social
πŸ¦“ We're working to increase awareness among doctors and providers about #raredisease so mis & delayed diagnosis is less common for those living in #NewMexico with them!
πŸŽƒLet's make #healthcare less scary!!!
#RDAC #nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
October 27, 2025 at 3:15 PM
nmraredisease.bsky.social
πŸ¦“ Many people affected by #raredisease also suffer from #invisibledisabilities in #NewMexico.

This week, it's important not only to #seetheinvisible but also to hear it!

#RDAC #patientadvocacy
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 24, 2025 at 4:06 PM
nmraredisease.bsky.social
πŸ¦“ #RareDisease sounds scary, but it doesn't have to be!πŸ‘»

πŸ¦“ Join our community and make a difference in #NewMexico today!

πŸ“£ New Mexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 22, 2025 at 2:45 PM
nmraredisease.bsky.social
πŸ¦“Access to specialists in #NewMexico is challenging along with quality care.

#NM has many rural and underserved areas; specialists may be far away with long wait times to be seen.

#NM needs healthcare revolution!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 20, 2025 at 2:58 PM
nmraredisease.bsky.social
πŸ¦“ Hope everyone enjoyed the #NewMexico #balloonfiesta.

πŸ“£ Now that it's over, let’s use this moment to share our voices, connect, and support one another.

πŸ’› We need everyone's help improving healthcare!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 17, 2025 at 3:32 PM
nmraredisease.bsky.social
πŸ¦“ Together, we can make #raredisease *seen* and *heard* β€” not just in here, but everywhere!

πŸ“„ Help us create a #RDAC by joining us and sharing your voice to improve #healthcare in #NewMexico!

#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebra
October 14, 2025 at 9:08 PM
nmraredisease.bsky.social
πŸ¦“ Let’s Lift Each Other Up!🎈

Just like every #Balloon in the sky is unique, so is every person impacted by a rare disease.

Join us in #advocating for change in #NewMexico #Healthcare!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 12, 2025 at 2:14 PM
nmraredisease.bsky.social
πŸ¦“ NMRD is raising awareness in #NewMexico one balloon at a time!🎈

Join us today to continue improving #healthcare for all New Mexicans!

#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 8, 2025 at 1:51 PM
nmraredisease.bsky.social
πŸ¦“ Enjoy the cooler temperatures and celebrate #raredisease along with the #NewMexico #balloonfiesta! 🎈

#RDAC #UNM
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 5, 2025 at 3:09 PM
nmraredisease.bsky.social
πŸ¦“The #NewMexico Balloon Fiesta starts soon drawing nearly a million visitors from around the world, making it another platform to shine a light on #rarediseases and amplify local our voices...
🎈
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
October 2, 2025 at 8:03 PM
nmraredisease.bsky.social
πŸ¦“ Today is #rarecancerday!
More than 1 in 4 cancers diagnosed are rare; all childhood cancers are.

Finding treatment in #NewMexico is a challenge for many.

Join us and let's improve healthcare!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
September 30, 2025 at 3:49 PM
nmraredisease.bsky.social
πŸ¦“ #raredisease day 2026 is coming!

🫡We need every #newmexican not only to come celebrate #rarediseaseday with us but also to help advocate for healthcare changes in the state desperately needs!

#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
September 27, 2025 at 2:37 PM
nmraredisease.bsky.social
πŸ¦“ Having a #raredisease and being involved in social groups may help with getting numerous challenges addressed; it's also good for networking and connecting with others.
#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
September 24, 2025 at 3:46 PM
nmraredisease.bsky.social
πŸ¦“ To anyone living with a rare condition: it’s okay to move at your own pace.

πŸƒ Even the leaves don’t all fall at once...
#NewMexico #RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
September 20, 2025 at 4:21 PM
nmraredisease.bsky.social
πŸ¦“ Living with a rare disease is not easy and it's important to take time to celebrate the small wins every day.
#NewMexico
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
September 16, 2025 at 3:22 PM