Be Kho
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bekhonl.bsky.social
Be Kho
@bekhonl.bsky.social
500 followers 1.1K following 160 posts
Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
Posts Replies Media Videos
Reposted by Be Kho
nieuws.nos.nl
Tienduizenden mensen op de been voor Rode Lijn-protest Den Haag
Tienduizenden mensen op de been voor Rode Lijn-protest Den Haag
Ook zijn nog veel mensen onderweg naar Den Haag. De NS meldt dat de treinen naar de stad erg vol zijn en dat niet iedereen mee kan.
nos.nl
June 15, 2025 at 11:40 AM
Reposted by Be Kho
oxfam.be
"Maar de dag dat de hoop er niet meer is, stopt alles."

📅 Kom daarom 15 juni om 14u, in het rood, naar de Rode Lijn actie in Brussel!

📅 17 juni in KVS om 19u organiseren we ook een solidaire #SpeakUpForPalestine avond met o.a. Tom Lannoye.

oxfambelgie.be/activiteiten... @11.be
June 5, 2025 at 2:10 PM
Reposted by Be Kho
groenlinks-pvda.bsky.social
Trek opnieuw de rode lijn!

Het is nu belangrijker dan ooit om onze stem te laten horen en druk uit te oefenen op de Nederlandse regering om haar verantwoordelijkheid te nemen.

Trek iets roods aan, sluit je aan bij de demonstratie voor Gaza, en trek samen met ons op 15 juni de Rode Lijn.
June 12, 2025 at 8:11 AM
Reposted by Be Kho
christinec.bsky.social
Wat een geweldige opkomst in Den Haag, 100.000 mensen! Plus de mensen die hetzelfde vinden maar er niet zelf bij kunnen zijn, zoals ik. Mijn Joodse voorouders zouden trots zijn, want kritiek op Israels genocidale gedrag is geen antisemitisme maar menselijkheid. #RodeLijn #Gaza
May 18, 2025 at 4:00 PM
bekhonl.bsky.social
Ik kon er helaas niet in den lijve bij zijn door #PAIS
Maar paste op de honden vd buurvrouw zodat zij er wel heen kon.

100.000 mensen in DenHaag!

#RodeLijn #StopTheKilling #WaarIsOnzeMenselijkheid?
A black page on which is written “ Rode Lijn” : an invitation to demonstrate
May 18, 2025 at 4:02 PM
Reposted by Be Kho
thelifeofesther.bsky.social
100.000 mensen in Den Haag. Ik moet er een traantje bij laten. Eindelijk! Eindelijk komt iedereen bij elkaar om een DIKKE VETTE STREEP te trekken onder het laffe beleid van onze ‘leiders’.
Ik ben zo trots op iedereen die er is. Zo fucking trots❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
FREE PALESTINE🇵🇸🇵🇸🇵🇸
May 18, 2025 at 1:34 PM
Reposted by Be Kho
neurologistmom.bsky.social
I’ve received 20 reports so far, and what I’ve read is unbelievable! These serious reactions should’ve been in the drug info long ago. Yet there’s not a single case report about this dangerous sleep deprivation. Here we are, creating our own data, open to scientists.
April 21, 2025 at 6:06 PM
Reposted by Be Kho
elhopkins.bsky.social
Everyone is at risk from #Longcovid.
@ashleydaltonmp.bsky.social We should be treating this infection like TB.
March 31, 2025 at 9:28 AM
Reposted by Be Kho
patientled.bsky.social
More information from @lccampaign.bsky.social on call action: bsky.app/profile/lcca...
lccampaign.bsky.social Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social · Mar 27
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
March 27, 2025 at 10:52 PM
bekhonl.bsky.social
Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for long COVID?
Rethinking of a systematic review,

March 2025

www.researchgate.net/publication/...

Another great piece from Mark Vink &
Friso Vink-Niese
(PDF) Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for long COVID? Rethinking of a systematic review
PDF | In this article, we analyzed the systematic review by Zeraatkar et al. which concluded that cognitive behavioral therapy (CBT) and a group... | Find, read and cite all the research you need on R...
www.researchgate.net
March 27, 2025 at 8:25 PM
Reposted by Be Kho
keuningin.bsky.social
Sign saying: Make Fascism wrong again
March 22, 2025 at 2:18 PM
Reposted by Be Kho
neurologistmom.bsky.social
“Long COVID is not psychogenic, not psychiatric, not somatization, not FND, not caused by fear, not from your tears, not because you’re weak and yes you really are that sick”
Svetlana Blitshteyn has a message for us. Well said, my dear friend! 👏🏻👏🏻👏🏻
#longcovidawarenessday2025

youtu.be/SxEkqT31TFs?...
A message from Svetlana Blitshteyn on Long COVID Awareness Day 2025
YouTube video by NeurologistMom
youtu.be
March 15, 2025 at 7:29 PM
bekhonl.bsky.social
Beautiful Words of hope
on this #LongCovidAwarenessDay2025

Thank you @SveltanaBiltshteyn

youtu.be/SxEkqT31TFs?...
A message from Svetlana Blitshteyn on Long COVID Awareness Day 2025
YouTube video by NeurologistMom
youtu.be
March 15, 2025 at 8:43 PM
Reposted by Be Kho
vmatthiesboon.bsky.social
The stupid thing is that on a #LongCovidAwarenessDay words simply fail me. I cannot describe the loss of life we experienced as a family, the loss of my child's childhood, her lack of friends, her loneliness and suffering. Nor can I express my struggle: working whilst
March 15, 2025 at 8:07 PM
Reposted by Be Kho
guusontheinternet.bsky.social
Heel sterk draadje! 💙🔥 #5JaarLongCovid #NietHersteld #LongCovidAwarenessDay2025 #5YearsOfLongCovid
bart-lefermier.bsky.social Bart Le Fermier @bart-lefermier.bsky.social · Mar 15
Ik ben al 5 jaar ziek. Ik ga eerder achteruit dan vooruit. Huisgebonden, vaak bedgebonden. Verdwenen uit de maatschappij en uit de levens van dierbaren. Met mij honderdduizenden anderen
 
#NietHersteld #5JaarLongCovid #LongCovidAwarenessDay2025

@niethersteld.bsky.social @jetroz.bsky.social
March 15, 2025 at 4:09 PM
Reposted by Be Kho
longcovidadvoc.com
💌 Will you be a voice of reason for #LongCovidAwareness?
@ashleydaltonmp.bsky.social
@england.nhs.uk
@nihr.bsky.social

We urgently need funding for:
⭐ biomarkers
⭐ pathophysiology
⭐ treatments

#LongCovidAwarenessDay
Digital graphic. Centered text in magenta headline "What would House say?" with a navy background. The page includes hashtags and motivational text with website link to advocate for LongCovid. A portrait of actor Hugh Laurie in a suit is on the lower right within a gradient purple circle. The overall visual is designed to draw attention to the cause and encourage participation.
March 15, 2025 at 4:52 PM
Reposted by Be Kho
guusontheinternet.bsky.social
#5YearsOfLongCovid

Today on #LongCovidAwarenessDay2025 many people will be speaking out about their lives and experiences with Long Covid.

For many, from one day to another their lives were never the same. #LongCovid #HalfADecadeOfNeglect🧵
Guus is a woman with long brown hair and glasses. She is lying in a hospital bed with a purple sheet and a pink-orange blanket in a living room. A small black dog is resting beside her on the bed. She has a serious expression and holds a protest sign in front of her face that reads: “Long Covid is a mass disabling event. We need help now”. The room has multiple posters and signs on the walls, written in Dutch, advocating for awareness and stronger policies for Long COVID patients. One of the posters says, “Ik ben al 1521 dagen ziek. Hoe lang nog?” (I have been sick for 1521 days. How much longer?). Another sign on the bedside table reads, “5 jaar Long COVID. Nog steeds geen beleid” (5 years of Long COVID. Still no policy). There is a wooden cabinet in the background.
March 15, 2025 at 4:07 PM
Reposted by Be Kho
niethersteld.bsky.social
Heel sterk draadje! 💙🔥 #5JaarLongCovid #NietHersteld #LongCovidAwarenessDay2025 #5YearsOfLongCovid
bart-lefermier.bsky.social Bart Le Fermier @bart-lefermier.bsky.social · Mar 15
Ik ben al 5 jaar ziek. Ik ga eerder achteruit dan vooruit. Huisgebonden, vaak bedgebonden. Verdwenen uit de maatschappij en uit de levens van dierbaren. Met mij honderdduizenden anderen
 
#NietHersteld #5JaarLongCovid #LongCovidAwarenessDay2025

@niethersteld.bsky.social @jetroz.bsky.social
March 15, 2025 at 4:10 PM
Reposted by Be Kho
rose-mary-x.bsky.social
#5YearsLongCovid #HalfADecadeOfNeglect
#LongCovidAwarenessDay2025
emilyesfraser.bsky.social emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · Mar 15
5 years. The only thing more traumatic than losing your life to a pandemic is being judged, mocked, & abandoned for it. If I look a little dead behind the eyes, that’s because I am 😵‍💫

#LongCovidAwarenessDay
#5YearsLongCovid #HalfADecadeOfNeglect
#LongCovidAwarenessDay2025
Photo of me sitting in my wheelchair on a brick walkway & holding a sign that says: 5 years of Long Covid Half a decade of neglect Where’s the action? 1 in 22 COVID infections leads to Myalgic Encephalomyelitis Lifelong Life-destroying
March 15, 2025 at 2:00 PM
Reposted by Be Kho
rose-mary-x.bsky.social
#5YearsLongCovid #HalfADecadeOfNeglect
#LongCovidAwarenessDay2025
katimime.bsky.social Kati Lehtola 🇺🇦 @katimime.bsky.social · Mar 15
Still sick - 2 years and 3 months. Still widely neglected and ignored. Still forced to fight for treatment, acknowledgement and support.
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025 #LongCovidAwarenessDay
Kati is holding a sign that says in English and in Finnish: Long Covid Awareness Day 2025. Still sick, still ignored, still fighting. Berlin Buyers Club.
March 15, 2025 at 2:01 PM
Reposted by Be Kho
rose-mary-x.bsky.social
#5YearsLongCovid #HalfADecadeOfNeglect
#LongCovidAwarenessDay2025
nikosuvisto.com Niko Suvisto @nikosuvisto.com · Mar 15
Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9

#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME
A black and white photograph of a white man, Niko, with short hair and a beard, sitting on a hospital bed. He wears a sweatshirt and holds a tablet displaying a message about Long COVID. The text on the tablet reads: “5 YEARS OF LONG COVID. HALF A DECADE OF NEGLECT! WHERE’S THE ACTION?! - BERLIN BUYERS CLUB.” Niko has a serious expression, and the background includes a framed picture on the wall, a lamp, and part of a headboard.
March 15, 2025 at 2:01 PM
Reposted by Be Kho
science.org
A #SciencePerspective by @zalaly.bsky.social and @erictopol.bsky.social identifies key issues that need to be prioritized in the study of #LongCovid.

Learn more on #LongCovidAwarenessDay: scim.ag/3XKbds3
Many forms of Long Covid: Long Covid is a multisystemic disease with sequelae that affect almost all organ systems. Various putative mechanisms that underlie these sequelae are not mutually exclusive and may explain the myriad health effects seen in Long Covid. Therapeutics that target these pathways, such as antivirals, anti-inflammatory agents, microbiome restoration, and anticoagulant drugs, may ameliorate symptoms.
March 15, 2025 at 2:07 PM
Reposted by Be Kho
ilikebigb00ks.bsky.social
I'm 3 years in to living with Long Covid. Cognitive impairment, post extertional symptom exacerbation, headaches, immune system dysfunction, cardiac issues, a TIA/ministroke, extreme fatigue. I miss my life. Im sad that my kids are having to grow up with my limitations. #longcovidawarenessday
c19lap.bsky.social COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Mar 15
TODAY IS LONG COVID AWARENESS DAY!

On #LongCOVIDAwarenessDay, help raise #awareness by sharing facts about #LongCOVID! #FactsMatter

15 Facts | 15 Hours | #FiveYearsLater

See the thread below for individual facts to post! Share them all, tag a friend. #longcovidawareness2025
March 15, 2025 at 2:07 PM
Reposted by Be Kho
idabrom.bsky.social
Gisteren teveel gedaan, vandaag voor Pampus, morgen weer een dag.
#LongCovidAwarenessDay
#NietHersteld
#NIETHERSTELD Investeer in onderzoek & behandeling. Nu. #5JAARLONGCOViD + BERLIN BUYERS CLUB +
March 15, 2025 at 2:13 PM
Reposted by Be Kho
kinlovesmusic.bsky.social
Bound to my bed and sofa on #LongCovidAwarenessDay

Stuck at home while people go out to work and play
March 15, 2025 at 2:14 PM