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Being Patient 🧠🧬✍️
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🔗 beingpatient.com | A trusted science journalism & community hub for brain health, cognitive science, Alzheimer's & dementia research, science-backed treatment & care.

🌏🌍🌎 Millions of readers across 140+ countries.

#aging #alzheimers #dementia #apoe4
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Hey, everybody. Good to see you here.👋

If we haven't met: beingpatient.com is a hub where people—scientists, doctors, patients, caregivers, anyone interested in brain health—come to:
• ✍️💻get trusted #Alzheimers/ #dementia/ #brainhealth news
• 🧠🧬 learn the latest science
• 🤝connect with each other.
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Covering the latest Alzheimer’s disease and dementia news through journalism, patient perspectives, and exclusive interviews with leading experts.
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Reposted by Being Patient 🧠🧬✍️
This is not cutting "waste, fraud, and abuse." Pure and simple, this is undermining the science necessary to deliver better means of preventing, diagnosing, treating, and eventually curing diseases like #Alzheimers, #cancer, #diabetes, #stroke, #glaucoma, etc.

#dementia #mentalhealth #NIH #science
NIH Research Funding Drops $1B Under Trump Administration
TUESDAY, Feb. 18, 2025 (HealthDay News) -- Federal funding for medical research has dropped by roughly $1 billion this year, raising alarm among universities, m
www.healthday.com
February 18, 2025 at 8:17 PM
If you've left the #NIH, @spichaksimon.bsky.social wants to hear from you for our reporting on the impacts of gutting U.S. #Alzheimer's / #dementia / #brainhealth infrastructure.

Reach him securely on Signal at simonspichak.64
February 20, 2025 at 2:29 PM
Scientists autopsied the brains of 28 people in New Mexico and saw surging rates of plastic are making their way into brain tissue.

Especially as the U.S. govt downsizes the EPA and decreases environmental regulation, what does this mean for cognitive health?

www.beingpatient.com/rising-micro...
Rising Microplastic Levels in the Brain: A Growing Concern
A new study published in Nature revealed a dramatic surge in micro and nanoplastics in the brain, fueling growing questions about their effects on cognitive health.
www.beingpatient.com
February 20, 2025 at 2:26 PM
Scientists autopsied the brains of 28 people in New Mexico and saw surging rates of plastic are making their way into brain tissue.

Especially as the U.S. govt downsizes the EPA and decreases environmental regulation, what does this mean for cognitive health?

www.beingpatient.com/rising-micro...
Rising Microplastic Levels in the Brain: A Growing Concern
A new study published in Nature revealed a dramatic surge in micro and nanoplastics in the brain, fueling growing questions about their effects on cognitive health.
www.beingpatient.com
February 20, 2025 at 2:25 PM
Reposted by Being Patient 🧠🧬✍️
The head of the Autism, ADHD, and Externalizing Disorders Interventions Research Program at the National Institute of Mental Health was fired over the weekend, 21 days shy of the end of her one year probationary period. She posted about it on fb.
February 19, 2025 at 6:24 PM
Reposted by Being Patient 🧠🧬✍️
Scoop --> Trump-Musk cuts just resulted in the firing of numerous top researchers at NIH's center for combating Alzheimer's, sources tell me. They predict big setbacks to fighting dementias.

This cause was once championed by *Republicans.*

Details here:
newrepublic.com/article/1917...
Oops: Trump-Musk Cuts Just Wrecked an NIH Org Championed by GOPers
Republicans once lavished praise on an NIH center that deals with Alzheimer’s. Donald Trump and Elon Musk are hobbling it. What will they say now?
newrepublic.com
February 19, 2025 at 5:58 PM
REPORT: An internal #NIH memo today directed agency staff to resume issuing frozen grants.

www.beingpatient.com/trump-nih-fu...
REPORT: NIH Memo Reportedly Reveals Agency Will Resume Grants
An internal memo reportedly issued by the NIH says frozen scientific research grants will resume.
www.beingpatient.com
February 12, 2025 at 9:47 PM
Reposted by Being Patient 🧠🧬✍️
Studying a diverse population ensures that scientists get the complete picture of how a disease works and that diagnostic tools and treatments will work for everyone — not just a selective subset of the population that doesn’t accurately represent the larger group.

#healthequity #science #NIH
‘Unsettling:’ Federal DEI Ban a ‘Step Backward’ for Alzheimer’s Trials
A Trump executive order has banned DEI initiatives across the federal government. Experts say the ban could cripple trial diversity and derail the quest for Alzheimer’s treatments.
www.beingpatient.com
January 30, 2025 at 10:52 PM
Reposted by Being Patient 🧠🧬✍️
What a rollercoaster
January 30, 2025 at 1:04 AM
How — in the midst of the Trump Administration's freeze on comms and other work across Health and Human Services departments — did news of an FDA Alzheimer's drug approval break through?

@spichaksimon.bsky.social with the story about #Leqembi's dosage update: www.beingpatient.com/fda-alzheime...
January 29, 2025 at 6:11 PM
“If anything about dementia is treatable, it’s these behavioral and
psychological symptoms.”

A Tufts psychiatrist explains the science behind dementia's behavioral symptoms.

www.beingpatient.com/dementias-be...
Dementia’s Behavioral Changes: A Psychiatrist Explains
Why does dementia have behavioral and psychiatric symptoms — and what’s the best treatment? Tufts University’s Dr. Brent P. Forester explains science and care.
www.beingpatient.com
January 29, 2025 at 5:43 PM
Trump ordered stoppages on comms, grant applications, & more at the U.S. agencies that oversee medical research & drug regulation.

@spichaksimon.bsky.social asked scientists — Is this normal?? And what could it mean for #Alzheimers research?

#dei #nih #fda
www.beingpatient.com/nih-grinds-t...
NIH Activities Grind to Halt Under Trump Comms Freeze
The Trump administration locks down the U.S. NIH, interrupting medical research and drug development. Scientists sound the alarms.
www.beingpatient.com
January 26, 2025 at 7:05 AM
Reposted by Being Patient 🧠🧬✍️
My coverage of advance requests for MAiD.

Health Canada kicked off a public consultation in response to Quebec allowing for these requests in contravention of current federal law.
January 16, 2025 at 3:55 PM
Reposted by Being Patient 🧠🧬✍️
Axsome is planning to file for approval of its Alzheimer's agitation drug. But experts say the drug doesn't actually work.

My latest for Being Patient with comment from @ewidera.bsky.social and @profrobhoward.bsky.social

www.beingpatient.com/axsome-agita...
Axsome Asks FDA to Approve Questionable Alzheimer’s Agitation Drug
Axsome will file for FDA approval their Alzheimer's agitation drug later this year. Outside experts question the drug's efficacy.
www.beingpatient.com
January 20, 2025 at 3:50 PM
In recent #Alzheimers #antiamyloid drug trials, drugmakers were accused of knowing which volunteers had a higher risk of ARIA (brain bleeds).

Here's why the companies didn't disclose that risk—and whether they did the right thing.

By @spichaksimon.bsky.social
www.beingpatient.com/alzheimers-t...
Some Trial Volunteers Had Higher Risk of Brain Bleeds. Here's Why Drugmakers Didn't Tell Them
Drugmakers knew which clinical trial volunteers had a higher risk of brain bleeds. Here's why they didn't warn them.
www.beingpatient.com
January 26, 2025 at 6:51 AM
Hey, everybody. Good to see you here.👋

If we haven't met: beingpatient.com is a hub where people—scientists, doctors, patients, caregivers, anyone interested in brain health—come to:
• ✍️💻get trusted #Alzheimers/ #dementia/ #brainhealth news
• 🧠🧬 learn the latest science
• 🤝connect with each other.
Home
Covering the latest Alzheimer’s disease and dementia news through journalism, patient perspectives, and exclusive interviews with leading experts.
beingpatient.com
January 26, 2025 at 6:47 AM