tamsin yeld into the void
@68thmonkey.bsky.social
Previously an alien, but really a monkey. MECFS since 2017. ♿️🌈 Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love 😍✌️ (definitely not fear). Lucky to live in Bundjalung Country 🇦🇺 (Advocate for Bleats not Skeets)
Reposted by tamsin yeld into the void
In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.
👉 ow.ly/fUYM50XtwW1.
👉 ow.ly/fUYM50XtwW1.
November 18, 2025 at 3:54 PM
In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.
👉 ow.ly/fUYM50XtwW1.
👉 ow.ly/fUYM50XtwW1.
Reposted by tamsin yeld into the void
As part of our Triple Giving November campaign, we’re pleased to share a video interview with Dr. Ron Davis and Dr. David Systrom.
Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS.
🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....
Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS.
🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....
November 11, 2025 at 3:27 PM
As part of our Triple Giving November campaign, we’re pleased to share a video interview with Dr. Ron Davis and Dr. David Systrom.
Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS.
🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....
Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS.
🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....
When the Chief Medical Officer urges the narrative to move from "stigma to science" . Thank God for organisations like @emergeaustralia.bsky.social, and for the brave souls who risked weeks/months of PEM to be a voice for us all. #MECFS #PEM
Thank you to everyone who joined, what an incredible day at APH!
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID.
Recordings 🔗 zurl.co/lFiTY
October 30, 2025 at 10:27 AM
When the Chief Medical Officer urges the narrative to move from "stigma to science" . Thank God for organisations like @emergeaustralia.bsky.social, and for the brave souls who risked weeks/months of PEM to be a voice for us all. #MECFS #PEM
here i am.
here is my shell.
my spirit comes in waves.
today i am drowning,
high tide,
ripped along the undertow,
abraded by shingle,
tossed every which way,
i know not which is up,
down nor ahead.....
here is my shell.
my spirit comes in waves.
today i am drowning,
high tide,
ripped along the undertow,
abraded by shingle,
tossed every which way,
i know not which is up,
down nor ahead.....
September 17, 2025 at 1:14 AM
here i am.
here is my shell.
my spirit comes in waves.
today i am drowning,
high tide,
ripped along the undertow,
abraded by shingle,
tossed every which way,
i know not which is up,
down nor ahead.....
here is my shell.
my spirit comes in waves.
today i am drowning,
high tide,
ripped along the undertow,
abraded by shingle,
tossed every which way,
i know not which is up,
down nor ahead.....
Great study. Confirms my choice to get on oestrogen, instead of just progesterone. Also 5HTP has been a winner for me in terms of 💤. Now just to get in a bit of inulin and F. prausnitzii for my poor ole guts. #MECFS #pwme #MHT
September 2, 2025 at 10:57 PM
so this clonidine thing is not really working for me. 1st few weeks 👍🏼 Garmin body battery showed daytime recharge (usu. unheard of), hot flushes less frequent, lasting far less, HR down. But now, sleepless nights with nightmares and a hot flush that lasts all fucking night long. #MCAS #MECFS
August 25, 2025 at 10:59 PM
I don't know if anyone with #MECFS has experienced this, using the #Visible app, but this morning my finger (on the torch) was about to explode with the amount of needle sensations I was feeling. I've already alternated fingers due to the tingling I get from it, but this was insane.
August 13, 2025 at 12:05 AM
This is Haha. He had to socialize multiple times today. Gonna need a couple days to recover. 14/10 (IG: thegoldenhaha)
August 12, 2025 at 11:57 PM
seeing my fab doc again today. do I have enough time to go thru this list of tx? haha www.pnas.org/doi/10.1073/... Great study by Martha Eckey (Long Covid Pharmd on Substack) 🙏
#MECFS #LongCovid
#MECFS #LongCovid
Patient-reported treatment outcomes in ME/CFS and long COVID | PNAS
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are persistent
multisystem illnesses affecting many patients. With no kn...
www.pnas.org
August 3, 2025 at 11:49 PM
seeing my fab doc again today. do I have enough time to go thru this list of tx? haha www.pnas.org/doi/10.1073/... Great study by Martha Eckey (Long Covid Pharmd on Substack) 🙏
#MECFS #LongCovid
#MECFS #LongCovid
when I first got sick (nearly 8 incredibly long years ago) my MMP9 readings were off the chart. Sadly, no GP really understands what they do and how to bring the reading down. Hopefully this will enlighten us all. #MECFS
A new Journal of Immunology study co-authored by @virusesimmunity.bsky.social (@yaleschoolofmed.bsky.social) distinguishes groups of people with #MECFS based on blood-plasma & cerebrospinal fluid proteins and has implications for causes, symptoms, & treatments. Read our summary:
ow.ly/rtO850Wwsyx
ow.ly/rtO850Wwsyx
July 30, 2025 at 1:59 AM
when I first got sick (nearly 8 incredibly long years ago) my MMP9 readings were off the chart. Sadly, no GP really understands what they do and how to bring the reading down. Hopefully this will enlighten us all. #MECFS
My barbershop wheelie stool is one of my greatest assets whilst in the throes of #MECFS. When you account for the fact that a pair of legs weighs a whopping 1/3 of your total body weight, it makes sense to stop hauling them around, and sit your arse down as much, and as often, as you can.
July 30, 2025 at 1:53 AM
My barbershop wheelie stool is one of my greatest assets whilst in the throes of #MECFS. When you account for the fact that a pair of legs weighs a whopping 1/3 of your total body weight, it makes sense to stop hauling them around, and sit your arse down as much, and as often, as you can.
We can stop AUKUS! getup.to/4XjQ7tyC1B4uE
$368B! that's a lot of research into #MECFS, investment in public housing, disability services etc. Plus, who the hell in their right mind would get into bed with the US right now?
$368B! that's a lot of research into #MECFS, investment in public housing, disability services etc. Plus, who the hell in their right mind would get into bed with the US right now?
✍️ Review and Walk Away From AUKUS! ✍️
Donald Trump wants AUKUS to serve his “America First” agenda. We know what that means: Australia Last. I just joined thousands demanding we walk away from this $368 billion nuclear deal. Raise your ha...
getup.to
July 17, 2025 at 8:55 AM
We can stop AUKUS! getup.to/4XjQ7tyC1B4uE
$368B! that's a lot of research into #MECFS, investment in public housing, disability services etc. Plus, who the hell in their right mind would get into bed with the US right now?
$368B! that's a lot of research into #MECFS, investment in public housing, disability services etc. Plus, who the hell in their right mind would get into bed with the US right now?
Been thinking about peptides for my worsening gut issues, had heard of BPC-157 and came across this. Seems like it helps SO much more than gut issues. Anyone with #MECFS or #LeakyGut can corroborate?
1/3 Sure thing. Personal experience, 3 direct ancedotes, studies. Use Sci-hub \ Anna's Library if paywalled. Going to drop a few showing CNS interactions. Studies First then personal thoughts
journals.lww.com/nrronline/fu...
www.sciencedirect.com/science/arti...
www.researchgate.net/profile/Petr...
journals.lww.com/nrronline/fu...
www.sciencedirect.com/science/arti...
www.researchgate.net/profile/Petr...
Pentadecapeptide BPC 157 and the central nervous system : Neural Regeneration Research
e reperfusion, BPC 157 counteracted bilateral clamping of the common carotid arteries-induced stroke, sustained brain neuronal damages were resolved in rats as well as disturbed memory, locomotion, an...
journals.lww.com
July 14, 2025 at 11:45 PM
Reposted by tamsin yeld into the void
TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID
www.healthrising.org/blog/2025/07...
www.healthrising.org/blog/2025/07...
TREATME: the Open Medicine Foundation's Mammoth ME/CFS and Long COVID Treatment Survey Results - Health Rising
The massive TreatME survey assessed the effectiveness of 150 treatments in ME/CFS and long COVID.
www.healthrising.org
July 13, 2025 at 7:31 PM
TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID
www.healthrising.org/blog/2025/07...
www.healthrising.org/blog/2025/07...
Reposted by tamsin yeld into the void
OMF StudyME is a free global recruitment tool that connects individuals interested in participating in research studies with the researchers conducting them.
Sign up to help accelerate research into #MECFS and #LongCOVID 👉 www.omf.ngo/studyme.
Sign up to help accelerate research into #MECFS and #LongCOVID 👉 www.omf.ngo/studyme.
July 10, 2025 at 3:18 PM
OMF StudyME is a free global recruitment tool that connects individuals interested in participating in research studies with the researchers conducting them.
Sign up to help accelerate research into #MECFS and #LongCOVID 👉 www.omf.ngo/studyme.
Sign up to help accelerate research into #MECFS and #LongCOVID 👉 www.omf.ngo/studyme.
Reposted by tamsin yeld into the void
Piperacillin Kills Lyme Bacteria in Mice, Leaves Gut Microbiome Alone.
Already FDA-approved for pneumonia, the antibiotic shows promising results for Lyme disease. www.lymedisease.org/members/lyme...
Already FDA-approved for pneumonia, the antibiotic shows promising results for Lyme disease. www.lymedisease.org/members/lyme...
Piperacillin Kills Lyme Bacteria in Mice, Leaves Gut Microbiome Alone - LymeDisease.org Member Community
Already FDA-approved for pneumonia, the antibiotic shows promising results for Lyme disease
www.lymedisease.org
July 12, 2025 at 6:03 PM
Piperacillin Kills Lyme Bacteria in Mice, Leaves Gut Microbiome Alone.
Already FDA-approved for pneumonia, the antibiotic shows promising results for Lyme disease. www.lymedisease.org/members/lyme...
Already FDA-approved for pneumonia, the antibiotic shows promising results for Lyme disease. www.lymedisease.org/members/lyme...
Reposted by tamsin yeld into the void
Donate blood to AusME Biobank and accelerate ME/CFS and long COVID research! If in NSW/VIC and have these conditions or are a willing volunteer, join at vist.ly/3n8xtm9.
July 9, 2025 at 10:00 PM
Donate blood to AusME Biobank and accelerate ME/CFS and long COVID research! If in NSW/VIC and have these conditions or are a willing volunteer, join at vist.ly/3n8xtm9.
Reposted by tamsin yeld into the void
This project will include metabolomics, proteomics, cytokine panels, lipidomics, and more on plasma samples from #pwME, disease controls, and healthy controls. Read more about Bioquest and its potential to identify a biochemical signature to diagnose ME/CFS: www.omf.ngo/me-cfs-new-b...
Announcement!!! A New Large-Scale ME/CFS Biomarker Study (BioQuest)! - Open Medicine Foundation
Learn about BioQuest, OMF's new ME/CFS biomarker study to identify a biomarker for ME/CFS that can be evaluated through a blood test.
www.omf.ngo
July 2, 2025 at 8:55 PM
This project will include metabolomics, proteomics, cytokine panels, lipidomics, and more on plasma samples from #pwME, disease controls, and healthy controls. Read more about Bioquest and its potential to identify a biochemical signature to diagnose ME/CFS: www.omf.ngo/me-cfs-new-b...
Reposted by tamsin yeld into the void
Join Emerge Australia's free live sessions on NDIS and DSP for ME/CFS and long COVID. Learn about the application process, eligibility, and presentation of evidence. Note: unrecorded sessions, may not apply if you don't have the ailments. Register here: vist.ly/3n8aqm7
July 1, 2025 at 10:00 PM
Join Emerge Australia's free live sessions on NDIS and DSP for ME/CFS and long COVID. Learn about the application process, eligibility, and presentation of evidence. Note: unrecorded sessions, may not apply if you don't have the ailments. Register here: vist.ly/3n8aqm7
www.earth.com/news/scienti...
This is fascinating. Are they researching #MECFS within identical twins?
This is fascinating. Are they researching #MECFS within identical twins?
Scientists think they found two key bacteria that cause multiple sclerosis
A study of twins reveals two gut bacteria linked to multiple sclerosis, offering new targets for future treatments.
www.earth.com
July 2, 2025 at 7:47 AM
www.earth.com/news/scienti...
This is fascinating. Are they researching #MECFS within identical twins?
This is fascinating. Are they researching #MECFS within identical twins?
Reposted by tamsin yeld into the void
In this video, Dr. David Putrino discusses the nuanced relationship between movement, heart rate variability ( #HRV), and post-exertional malaise ( #PEM) in people living with complex chronic illnesses like #ME/CFS, Long Covid, Fibromyalgia, and Chronic Lyme Disease.
youtu.be/pfoxIWgmWrM?...
youtu.be/pfoxIWgmWrM?...
June 28, 2025 at 10:58 PM
In this video, Dr. David Putrino discusses the nuanced relationship between movement, heart rate variability ( #HRV), and post-exertional malaise ( #PEM) in people living with complex chronic illnesses like #ME/CFS, Long Covid, Fibromyalgia, and Chronic Lyme Disease.
youtu.be/pfoxIWgmWrM?...
youtu.be/pfoxIWgmWrM?...
Reposted by tamsin yeld into the void
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID #MECFS #longcovid www.healthrising.org/blog/2025/05...
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising
Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.
www.healthrising.org
May 17, 2025 at 5:45 PM
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID #MECFS #longcovid www.healthrising.org/blog/2025/05...
wait, why have you blocked me @exceedhergrasp1.bsky.social ? what did I do?
May 16, 2025 at 1:41 AM
wait, why have you blocked me @exceedhergrasp1.bsky.social ? what did I do?
Reposted by tamsin yeld into the void
Health Rising: “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID”
www.healthrising.org/blog/2025/05...
www.healthrising.org/blog/2025/05...
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising
Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.
www.healthrising.org
May 15, 2025 at 11:33 PM
Health Rising: “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID”
www.healthrising.org/blog/2025/05...
www.healthrising.org/blog/2025/05...
