#wAIHA
The liveliest poster session ever! #ASH25 #Orlando #wAIHA #Rilzabrurinib #Medsky #Hemesky
December 8, 2025 at 3:09 PM
there was a husband of a woman who died due to wAIHA at our patient conference this year, and he spoke from the stage

one thing he said that I’ll never forget: “I have a lot of respect for this disease because it can kill you way faster than cancer can”
November 14, 2025 at 5:11 PM
5 random letters (WAIHA)
September 21, 2025 at 8:47 AM
in that time, she survived cancer while I survived wAIHA, and I’m just very thankful we both made it through so we could find our friendship again!
September 12, 2025 at 12:41 AM
Florida’s natural beauty is stunning, but the state government continues to create danger for medically vulnerable children and adults. Overturning vaccine mandates makes no sense. #vaccineswork #autoimmunedisease #autoimmunity #waiha #coldagglutinindisease #lupus #autoimmunehemolyticanemia
September 5, 2025 at 7:00 PM
It also is a proven medical fact that the possession and distribution of dozens of Taco Bell hot sauce packets is an effective way of halting wAIHA in its tracks along your mortal coil.
August 2, 2025 at 3:49 PM
I’ve been thinking about my mortality a lot ever since I saw a man speak who had lost his wife to warm autoimmune hemolytic anemia (wAIHA, the rare blood disease I have)

he said “I have a lot of respect for wAIHA because it can kill you faster than cancer can”
August 2, 2025 at 3:14 PM
Warm Autoimmune Hemolytic Anemia (wAIHA) Clinical and Non-Clinical Studies, Key Companies, Therapeutic Assessment, Emerging Therapies, Treatment Algorithm, and Pipeline Analysis
Warm Autoimmune Hemolytic Anemia (wAIHA) Clinical And Non-Clinical Studies, Key Companies, Therapeutic Assessment, Emerging Therapies, Treatment Algorithm, And Pipeline Analysis | PressReleaseCC
Warm Autoimmune Hemolytic Anemia (wAIHA) Pipeline constitutes 5+ key companies continuously working towards developing 5+ Warm Autoimmune Hemolytic Anemia
www.pressreleasecc.com
June 29, 2025 at 12:12 PM
maybe my wAIHA was never going to kill me, maybe my shitty little easily-depressed brain was what was going to kill me all along
June 9, 2025 at 10:14 AM
and what an honor it is that I might be able to help educate physicians and ensure that this treatment makes it to the patients who need it

what an honor it is to be alive and to be able to share my story, especially when so many wAIHA patients never got to share their own
April 12, 2025 at 2:22 PM
for me, I found those people through social media. since then, I’ve found the advocacy group for wAIHA, and I’ve started getting involved with them. we have our awareness day and virtual conference next week, and it’s exciting to know I’ll meet others like me!
March 17, 2025 at 10:45 PM
I’m so sorry to hear this, Molly. I think something that can really help is finding others who have been through the same thing or something similar. my first year post-diagnosis, I didn’t know anyone with wAIHA, but I was able to meet other rare disease patients, and it helped to not feel alone
March 17, 2025 at 10:44 PM
if I could work on bringing a treatment for wAIHA to patients like me, I would be the happiest worker on the planet
March 1, 2025 at 5:41 PM
like with my wAIHA, I have fatigue and shortness of breathe and it can become life threatening when triggered by stress and none of that aligns to the expectations of modern capitalist society, especially when it comes to work, AND I don’t have any good treatments to get myself back on track
February 14, 2025 at 11:31 AM
also I got to educate a bunch of people on WAIHA and about what it’s like to live with a rare disease, and that was cool as shit! that fed my soul for real
January 29, 2025 at 12:28 AM
my boss told me I should write a book about being a patient with WAIHA and how it has impacted how I see the world and you know what? I might really do that
January 24, 2025 at 7:35 PM
most people with WAIHA with a first episode as severe as mine don’t make it out of the hospital

they don’t live to tell their stories

they don’t get to have their experiences documented in research reports

it’s sobering to think about
January 22, 2025 at 8:57 PM
my first episode of WAIHA landed me in the hospital, where I had a cardiac arrest and then spent nearly 2 months in a hospital bed dying

from there I had a year of high dose prednisone treatment (and many infections due to my destroyed immune system) and blood transfusions to keep me alive
January 22, 2025 at 8:57 PM
there have been a lot of research reports lately about the experiences of patients with WAIHA, and while I’m incredibly happy to see that, it’s also striking (and sad) to realize how so many of those experiences cannot be told because of the patients who didn’t survive their first episodes
January 22, 2025 at 8:57 PM
yes! like once I was bleeding it was life/death very quickly! if I had made it full term without knowing I had WAIHA, actual childbirth would have been even more dangerous!
January 15, 2025 at 2:48 PM