#huntingtonsdiseaseawareness
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hdreachgameoverhd.bsky.social
Seth breaks down #uniQure #AMT-130 while playing #callofdutywarzone. We are in an exciting time for #Huntingtonsdisease #research, and must also acknowledge that we still have a long way to go!

#hdreachgameoverhd #streamer #stream #fyp #twitch #videogames #huntingtonsdiseaseawareness💙💜 #advocacy
October 6, 2025 at 8:20 PM
hdreachgameoverhd.bsky.social
Impacted by Huntingtons disease and love gaming? Join our Gaming Group!
18+

www.hdreach.org/community/ev...

#hdreachgameoverhd #florida #hdyo #help4hd #huntingtonsdisease #huntingtonsdiseaseawareness #support #neurodegenerativediseases #videogames ​⁠ ​⁠ ​⁠
September 12, 2025 at 9:17 PM
hdreachgameoverhd.bsky.social
@hdreachgameoverhd.bsky.social went to Florida to help out with HDYO #HDCONNECT H talks about it!

#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #hdyo #help4hd #hdreach #videogames #supportgroup #fhd
September 9, 2025 at 8:24 PM
hdreachgameoverhd.bsky.social
Huntington's disease has not always been easy for H to talk about. Can you relate?

#hdreachgameoverhd #fyp #stream #streamer #huntingtonsdisease #Peak #huntingtonsdiseaseawareness💙💜 #advocacy #twitch #ostrich #feelings
August 29, 2025 at 9:40 PM
hdbuzzfeed.bsky.social
Two studies reveal how a tiny change in FAN1—a DNA repair protein—weakens its hold on DNA, fueling repeat expansions and speeding up Huntington’s disease symptoms.

en.hdbuzz.net/when-dna-rep...

#HDAwareness #huntingtonsdiseaseawareness #huntingtonsdisease #HDResearch
When DNA Repair Goes Off Script: How a Small Change in FAN1 Can Accelerate Huntington’s Disease – HDBuzz
en.hdbuzz.net
August 26, 2025 at 3:38 PM
nonhdparentstudy.bsky.social
Hi everyone 🙂 My study is now open to participants outside of the UK.

Please get in touch if you would like more information. My email is l.furr@lancaster.ac.uk

#huntingtonsdisease #huntingtonsresearch #huntingtonsdiseaseawareness #LetsTalkAboutHD
August 19, 2025 at 12:38 PM
hdreachgameoverhd.bsky.social
WE ARE LIVE! Catch Ricco playing Jusant NOW on Twitch.tv/hdreachgameoverhd and YouTube.com/@hdreachgameoverhd

#livestream #hdreachgameoverhd #jusant #twitch #youtube #live #huntingtonsdisease #huntingtonsdiseaseawareness
August 15, 2025 at 11:08 PM
hdreachgameoverhd.bsky.social
“Because the more people talk about it, the more likely that we will get the attention that we need to hopefully one day find a cure” BOOM 💥

#huntingtonsdisease #huntingtonsdiseaseawareness💙💜 #hdreachgameoverhd #advocacy #peak #twitch #fyp
July 15, 2025 at 3:14 PM
hdreachgameoverhd.bsky.social
H and Hailey reflect on a time where they were eating out in public with their father and the police were called. This is why #education and #awareness is so important!

#hdreachgameoverhd #huntingtonsdisease #curehd #curejhd #twitch #fyp #gamer #advocacy #huntingtonsdiseaseawareness💙💜 #fortnite
May 20, 2025 at 11:02 PM
viscountofipac.bsky.social
Very thankful to our local Municipality of South Dundas Council for allowing me to speak about Huntingtons Disease, and approving a motion to recognize May as Huntingtons Disease Awareness Month in South Dundas! #HuntingtonsDisease #huntingtonsdiseaseawareness #cureHD youtu.be/1HcNQsy3vm8?...
Huntingtons Disease Speech to South Dundas Council
YouTube video by Christian Mueller
youtu.be
May 14, 2025 at 11:33 PM
hdreachgameoverhd.bsky.social
Hailey talks about the big milestones she won't get to experience with her father after losing him to #huntingtonsdisease . Check out our socials for full video.

#hdreachgameoverhd #hdreachgameoverhdstreamteam #huntingtonsdiseaseawareness #curejhd #curehd #hdreach #fyp #grief #loss #fortnite
May 11, 2025 at 2:26 PM
elizabethabrams.bsky.social
Mom, steel wrapped in soft cotton, lived through challenges a child that prepared her to fight Huntington's Disease with grace and grit!
#Mother'sDay #HuntingtonsDiseaseAwareness #loss #dignity #fostercare #rigidity #grace #deathanddying

swinginatree.blogspot.com/2025/05/but-...
"But Strong in Will"
swinginatree.blogspot.com
May 10, 2025 at 5:24 PM
elizabethabrams.bsky.social
Plans become impossible once you become a caregiver.
#HuntingtonsDiseaseAwareness #caregiving #family #respite #plans #future #death #dying
elizabethabrams.bsky.social Elizabeth Abrams Chapman @elizabethabrams.bsky.social · May 8
May is Huntington's Disease Awareness Month! As anay caregiver/family knows, making plans becomes new territory with HD.
elizabethabrams.bsky.social Elizabeth Abrams Chapman @elizabethabrams.bsky.social · May 8
Huntington's Disease Awareness: Short trips became increasingly difficult for our caregiving family and Mom., as did making any plans.
#HuntingtonsDisease #raredisease #awareness #budgets #Mother'sDay #plans #caregiving #survival

swinginatree.blogspot.com/2025/05/the-...
May 8, 2025 at 11:36 PM
elizabethabrams.bsky.social
No one likes to admit that caregivers have "no good, very bad days", but I certainly did!
#HuntingtonsDiseaseAwareness #caregivers #terminal #depression #frustration #survival
elizabethabrams.bsky.social Elizabeth Abrams Chapman @elizabethabrams.bsky.social · May 7
As a caregiver, I lost my temper--at our isolation, at Huntington's Disease and its cruel nature, and even at Mom. It's important to share the frustrations families in caregiving situations experience.
#HuntingtonsDiseaseAwareness #caregivers #depression
swinginatree.blogspot.com/2025/05/liz-...
"Liz and the Terrible, Horrible, No Good Day"
swinginatree.blogspot.com
May 7, 2025 at 3:46 PM
elizabethabrams.bsky.social
As a caregiver, I lost my temper--at our isolation, at Huntington's Disease and its cruel nature, and even at Mom. It's important to share the frustrations families in caregiving situations experience.
#HuntingtonsDiseaseAwareness #caregivers #depression
swinginatree.blogspot.com/2025/05/liz-...
"Liz and the Terrible, Horrible, No Good Day"
swinginatree.blogspot.com
May 7, 2025 at 1:19 PM
elizabethabrams.bsky.social
We spent years asa caregivers for Mom as Huntington's Disease ate away her brain. Making certain we got a break was impossible.
#caregiving #family #care #HuntingtonsDiseaseAwareness #death #hospice #coping #fatigue
elizabethabrams.bsky.social Elizabeth Abrams Chapman @elizabethabrams.bsky.social · May 5
May is Huntington's Disease Awareness Month. I thought I'd post this piece as all caregivers know how hard it is to conseve your own energy.
#caregivers #energy #family #support #HuntingtonsDisease #death #hospice #coping #fatigue
elizabethabrams.bsky.social Elizabeth Abrams Chapman @elizabethabrams.bsky.social · May 5
Anyone in the caregiver role knows how easy it is to "run on empty". Although Mom died from HD in 2012, her caregiving needs impacts our lives even today.
#caregiving #HuntingtonsDisease #hospice #endoflife #fatigue #JacksonBrowne #hobbies #family #support

swinginatree.blogspot.com/2025/05/runn...
May 5, 2025 at 11:37 PM