CvEDS, MS, RA, AS, DDD, but my family keeps telling me I "don't look sick", and my niece keeps giving me books on "positive thinking" and "thinking yourself well".
November 7, 2025 at 5:42 PM
CvEDS, MS, RA, AS, DDD, but my family keeps telling me I "don't look sick", and my niece keeps giving me books on "positive thinking" and "thinking yourself well".
I was born with CvEDS. The 4 autoimmune conditions appeared between ages 5 & 12. I'll be 81 in a couple of months, & still haven't "adapted". I live alone, so family don't notice when I spend days/weeks in bed. But they keep telling me I "don't look sick", so must not be sick.
November 5, 2025 at 9:44 PM
I was born with CvEDS. The 4 autoimmune conditions appeared between ages 5 & 12. I'll be 81 in a couple of months, & still haven't "adapted". I live alone, so family don't notice when I spend days/weeks in bed. But they keep telling me I "don't look sick", so must not be sick.
I Love 💝😘🙏🏼💯😎 your support YOU and all of your stream consciousness one love 💗! Go far do great things please save the planet and animals human rights, this cvEDS 🦓 punk rock PT CWS is all advocate by genes and environment. Check out my son Gabriel Glenn from the Soundflowers and Trashdögs.
October 17, 2025 at 2:33 AM
I Love 💝😘🙏🏼💯😎 your support YOU and all of your stream consciousness one love 💗! Go far do great things please save the planet and animals human rights, this cvEDS 🦓 punk rock PT CWS is all advocate by genes and environment. Check out my son Gabriel Glenn from the Soundflowers and Trashdögs.
Those are the words of a future president 😁. I need your protection Governor Pritzker. I'm 58 disabled with cvEDS AUHD c-PTSD TBIS and asexual gender nonconformist 🏳️⚧️ is part of my cvEDS autosomal recessive trait. 89% of EDS people have gender dysmorphia and dysphoria.
#We're born this way_itsscience
#We're born this way_itsscience
September 12, 2025 at 2:39 AM
Those are the words of a future president 😁. I need your protection Governor Pritzker. I'm 58 disabled with cvEDS AUHD c-PTSD TBIS and asexual gender nonconformist 🏳️⚧️ is part of my cvEDS autosomal recessive trait. 89% of EDS people have gender dysmorphia and dysphoria.
#We're born this way_itsscience
#We're born this way_itsscience
I’m a lifelong survivor of DV SV and GV of MAGA pedophiles. I was human trafficked by the Catholic Church to them at 4 weeks old. I was hospitalized with a bladder infection at 18 mo.s old. The state of MN did nothing to protect me. I have #cvEDS and #AUHD #disabilityrights #Iwasbornthisway
September 2, 2025 at 11:24 PM
I’m a lifelong survivor of DV SV and GV of MAGA pedophiles. I was human trafficked by the Catholic Church to them at 4 weeks old. I was hospitalized with a bladder infection at 18 mo.s old. The state of MN did nothing to protect me. I have #cvEDS and #AUHD #disabilityrights #Iwasbornthisway
Who is this MAGA monster 💀💩 head? Where did he get his science education from? We need to be studied? 0.3-0.6% of 8 billion people in the world. Hmm 🤔 we're such a BIG threat to the masses 😞. I have #cvEDS🦓 89% of us are born with gender dysmorphia and dysphoria. See, it's just math and science✅👏🏼😁
August 28, 2025 at 7:37 PM
Who is this MAGA monster 💀💩 head? Where did he get his science education from? We need to be studied? 0.3-0.6% of 8 billion people in the world. Hmm 🤔 we're such a BIG threat to the masses 😞. I have #cvEDS🦓 89% of us are born with gender dysmorphia and dysphoria. See, it's just math and science✅👏🏼😁
Hell NO! I was sex trafficked by Catholic Charities in Minneapolis MN 1967 taken from my 16 yo mom against her choice. Her mom taken 12 years before. I'm disabled with cvEDS 🦓🧬 AUHD c-PTSD. MAGA Pedophiles bought me! I have been groomed and abused my entire life. WI and MN denied my ADA LTC Rights.😭
August 28, 2025 at 7:24 PM
Hell NO! I was sex trafficked by Catholic Charities in Minneapolis MN 1967 taken from my 16 yo mom against her choice. Her mom taken 12 years before. I'm disabled with cvEDS 🦓🧬 AUHD c-PTSD. MAGA Pedophiles bought me! I have been groomed and abused my entire life. WI and MN denied my ADA LTC Rights.😭
I'm a sex trafficking survivor of Catholic Charities given to MAGA Pedophiles born asexual gender nonconformist from an inherited connective tissue disorder #cvEDS. Until I am offered restorative justice for myself being groomed sexually assaulted my entire lifetime by clergy and members of the 🇻🇦❌👿
August 25, 2025 at 2:52 AM
I'm a sex trafficking survivor of Catholic Charities given to MAGA Pedophiles born asexual gender nonconformist from an inherited connective tissue disorder #cvEDS. Until I am offered restorative justice for myself being groomed sexually assaulted my entire lifetime by clergy and members of the 🇻🇦❌👿
I have been denied my Medicaid benefits and LTC services in WI for the last 4 years. I got COVID suffered a heart attack. I NEVER received ANY DV services for protection and was denied them discriminated against because I am asexual gender nonconformist with cvEDS 🦓 Now CA❌MediCal denied me
August 5, 2025 at 11:56 PM
I have been denied my Medicaid benefits and LTC services in WI for the last 4 years. I got COVID suffered a heart attack. I NEVER received ANY DV services for protection and was denied them discriminated against because I am asexual gender nonconformist with cvEDS 🦓 Now CA❌MediCal denied me
July 29, 2025 at 12:50 AM
WE NEED YOU 🙏🏼 I was sex trafficked by the Catholic Church at 4 wks old. The couple are pedo/hedophile MAGA predators. They groomed and trafficked me! I have cvEDS 🦓 with AUHD and QUEER from genetics 🧬. My children and I have been trafficked by them. I have a CA Victims Comp App from 9/2019❌📂❌💲cover🆙
July 26, 2025 at 2:48 AM
WE NEED YOU 🙏🏼 I was sex trafficked by the Catholic Church at 4 wks old. The couple are pedo/hedophile MAGA predators. They groomed and trafficked me! I have cvEDS 🦓 with AUHD and QUEER from genetics 🧬. My children and I have been trafficked by them. I have a CA Victims Comp App from 9/2019❌📂❌💲cover🆙
Classical Ehlers–Danlos syndrome (cEDS)
Classical-like Ehlers–Danlos syndrome (clEDS)
Cardiac-valvular Ehlers–Danlos syndrome (cvEDS)
Vascular Ehlers–Danlos syndrome (vEDS)
Hypermobile Ehlers–Danlos syndrome (hEDS)
Arthrochalasia Ehlers–Danlos syndrome (aEDS)
Classical-like Ehlers–Danlos syndrome (clEDS)
Cardiac-valvular Ehlers–Danlos syndrome (cvEDS)
Vascular Ehlers–Danlos syndrome (vEDS)
Hypermobile Ehlers–Danlos syndrome (hEDS)
Arthrochalasia Ehlers–Danlos syndrome (aEDS)
June 17, 2025 at 11:28 AM
Classical Ehlers–Danlos syndrome (cEDS)
Classical-like Ehlers–Danlos syndrome (clEDS)
Cardiac-valvular Ehlers–Danlos syndrome (cvEDS)
Vascular Ehlers–Danlos syndrome (vEDS)
Hypermobile Ehlers–Danlos syndrome (hEDS)
Arthrochalasia Ehlers–Danlos syndrome (aEDS)
Classical-like Ehlers–Danlos syndrome (clEDS)
Cardiac-valvular Ehlers–Danlos syndrome (cvEDS)
Vascular Ehlers–Danlos syndrome (vEDS)
Hypermobile Ehlers–Danlos syndrome (hEDS)
Arthrochalasia Ehlers–Danlos syndrome (aEDS)
My youngest Bex 🥰 my #sweetface lil genius won 🏆 a competition on YouTube for Scribblenauts for a pun they made about a turtle 🐢! I am beyond proud 🥹 of my #blessed 🏳️⚧️ #nonbinary #trans child! Bex did this unbeknownst to Any of us!? The contestants were ALL ages! Bex was 4 yo. Bex has #cvEDS #AUHDG&T
June 3, 2025 at 2:12 PM
My youngest Bex 🥰 my #sweetface lil genius won 🏆 a competition on YouTube for Scribblenauts for a pun they made about a turtle 🐢! I am beyond proud 🥹 of my #blessed 🏳️⚧️ #nonbinary #trans child! Bex did this unbeknownst to Any of us!? The contestants were ALL ages! Bex was 4 yo. Bex has #cvEDS #AUHDG&T
WI SNAP Trumplandia template for corruption and misleading constituents with $143/month withheld my payment last month! And they lied about why I have not received my benefits. I’m on SSI, 58 had 2 heart attacks toxic mold need a PM have cvEDS & TBIs with epilepsy a 🐕🦺 & #civilrights🙅🏻♀️❌ #humantraffick
June 1, 2025 at 10:31 PM
WI SNAP Trumplandia template for corruption and misleading constituents with $143/month withheld my payment last month! And they lied about why I have not received my benefits. I’m on SSI, 58 had 2 heart attacks toxic mold need a PM have cvEDS & TBIs with epilepsy a 🐕🦺 & #civilrights🙅🏻♀️❌ #humantraffick
May is Ehlers Danlos Syndrome (EDS) & Hypermobility Spectrum Disorder (HSD) awareness month!
To help spread awareness I've created some graphics about the basics of EDS and HSD. Feel free to share them, repost them, anything you'd like.
#EDSAwarenessMonth #HSDAwarenessMonth
To help spread awareness I've created some graphics about the basics of EDS and HSD. Feel free to share them, repost them, anything you'd like.
#EDSAwarenessMonth #HSDAwarenessMonth
May 1, 2025 at 9:17 PM
May is Ehlers Danlos Syndrome (EDS) & Hypermobility Spectrum Disorder (HSD) awareness month!
To help spread awareness I've created some graphics about the basics of EDS and HSD. Feel free to share them, repost them, anything you'd like.
#EDSAwarenessMonth #HSDAwarenessMonth
To help spread awareness I've created some graphics about the basics of EDS and HSD. Feel free to share them, repost them, anything you'd like.
#EDSAwarenessMonth #HSDAwarenessMonth
Zebra here, too, with Classic-type EDS and CvEDS (Cardiovalvular EDS). Both types include hEDS symptoms, so I can relate. It took me 57 years to get a correct diagnosis, 23 years ago, in another country. Now I live where no doctors have even heard of EDS.
Glad you got your official diagnosis! 🦓🤗
Glad you got your official diagnosis! 🦓🤗
March 6, 2025 at 5:24 AM
Zebra here, too, with Classic-type EDS and CvEDS (Cardiovalvular EDS). Both types include hEDS symptoms, so I can relate. It took me 57 years to get a correct diagnosis, 23 years ago, in another country. Now I live where no doctors have even heard of EDS.
Glad you got your official diagnosis! 🦓🤗
Glad you got your official diagnosis! 🦓🤗
I was born with Ehlers-Danlos Syndrome 80 years ago, so have lived with it all of my life. I have both Classical Type EDS and CvEDS - Cardiovalvular EDS.
January 30, 2025 at 10:44 PM
I was born with Ehlers-Danlos Syndrome 80 years ago, so have lived with it all of my life. I have both Classical Type EDS and CvEDS - Cardiovalvular EDS.