#ankylosingspondylitis
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martwbel.bsky.social
Starting the new year off with my first injection of 2026 😁😱
#AnkylosingSpondylitis
January 1, 2026 at 1:12 PM
allscientifical.bsky.social
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
... Continue to: youtube.com/shorts/9bgYK...
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
youtube.com
December 18, 2025 at 8:06 AM
allscientifical.bsky.social
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
... Continue to: youtube.com/shorts/9bgYK...
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
What can be done for ankylosing spondylitis? #backpain #spondylitis #ankylosingspondylitis #spine
youtube.com
December 18, 2025 at 6:06 AM
1015h.bsky.social
#Chronicillness Almost forgot to take my #Humira today (I take it weekly for #ankylosingspondylitis ). It’s ironic, since the worst day of my week was when I got a letter from my ins. co. saying they won’t cover it after 1/1! This is a problem since 1 box (2 doses) is more than my monthly income.
December 15, 2025 at 1:28 AM
carriekellenberger.bsky.social
Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗 www.channelnewsasia.com/cna-insider/...
They’re young, they look healthy, but they need a seat on the train. This is why
These young adults suffer from autoimmune diseases whose symptoms are not often visible, leading to misconceptions and judgement. How do they navigate work, relationships and life in general while end...
www.channelnewsasia.com
December 4, 2025 at 5:40 AM
allscientifical.bsky.social
Signs of ankylosing spondylitis (Strumpell-Bekhterev-Marie disease) #backpain #ankylosingspondylitis
... Continue to: youtube.com/shorts/wQ5A8...
Signs of ankylosing spondylitis (Strumpell-Bekhterev-Marie disease) #backpain #ankylosingspondylitis
Signs of ankylosing spondylitis (Strumpell-Bekhterev-Marie disease) #backpain #ankylosingspondylitis
youtube.com
December 2, 2025 at 6:06 PM
carriekellenberger.bsky.social
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
buff.ly
November 24, 2025 at 4:55 PM
kiminflorida.bsky.social
Has anyone tried to go on a #TNFblocker (enbrel, #Remicade) for a second time? I tried #enbrel and was maybe on it for a month? Is it possible to retry it? #rheum #rheumatoidarthritis #autoimmune #crohns #creakyjoints #RA #chronicillness #spondyloarthritis #ankylosingspondylitis
November 16, 2025 at 2:18 AM
carriekellenberger.bsky.social
My #AxSpA Story for the Spondylitis Association of America

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis
I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...
spondylitis.org
November 15, 2025 at 7:43 AM
epi-nymph.bsky.social
Hey! I just got diagnosed. My sacroiliitis does respond to Meloxicam, so I can’t suggest anything beyond “try a biologic”. But, have you checked r/ankylosingspondylitis? Yes TECHNICALLY a different diagnosis but they welcome all there.
November 10, 2025 at 6:19 AM
senashenta.bsky.social
Having to clean my room in tiny stages because of my back condition and it's taking me all day. Bah. #ankylosingspondylitis
November 9, 2025 at 8:54 PM
martwbel.bsky.social
It’s that day again. Adalimumab 💉 Thursday. 😮‍💨 #ankylosingspondylitis
November 6, 2025 at 9:04 AM
carriekellenberger.bsky.social
Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗 www.channelnewsasia.com/cna-insider/...
They’re young, they look healthy, but they need a seat on the train. This is why
These young adults suffer from autoimmune diseases whose symptoms are not often visible, leading to misconceptions and judgement. How do they navigate work, relationships and life in general while end...
www.channelnewsasia.com
November 3, 2025 at 4:45 AM
lolaridge.bsky.social
I have worsening #AnkylosingSpondylitis in my thoracic spine and was awaiting experimental surgery in another country when the CT showed further damage, which I knew bc of more widespread pain.

Does anyone with AS have nodules in their lungs & liver? These showed up in the last 2 years.
October 25, 2025 at 3:57 AM
carriekellenberger.bsky.social
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
buff.ly
October 24, 2025 at 6:13 AM
amorinacarlton.bsky.social
If you'd like to know what it looks like when #writerslife and #ChronicIllness life collide, I have a literal picture.

I'm having massive #fatigue this morning and fell asleep typing. Thanks #AS #ankylosingspondylitis

#Authors&Writing #AuthorLife
#amwriting #amediting 💙📚 #Disability
October 22, 2025 at 4:53 PM
carriekellenberger.bsky.social
Imagine living with several diseases known as the most painful diseases in the world and they are measured as being equal to or higher than pain experienced during birth. This graphic gives others a reference point for my #ChronicPain as I suffer from several things on this list. #MySeveralWorlds
How are #AnkylosingSpondylitis aka #AxialSpondyloarthritis and #Fibromyalgia rated on the McGill Pain Index? They are consistently rated among 10 of the most painful diseases in the world. The #ChronicPain associated with these diseases comes very close to the pain experienced with childbirth. The main thing to remember is that childbirth doesn’t last forever, but you can look forward to a lifetime of unending pain with AS, fibromyalgia and ME."
October 18, 2025 at 6:41 AM
carriekellenberger.bsky.social
My #AxSpA Story for @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

#WorldArthritisDay
Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis
I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...
spondylitis.org
October 13, 2025 at 4:41 AM
carriekellenberger.bsky.social
For #WorldArthritisDay here's an #AxialSpondyloarthritis aka #AnylosingSpondylitis symptom checker. #AxSpA is a complex disease. Its severity & progression varies greatly among individuals. If you have these symptoms, mention them to your medical provider. #FiercelyFightingArthritis
AxSpA Symptom Checker It's up to patients to be informed. If you have back pain consider the following points and bring it up with your PCP. It's possible your PCP might not be thinking of #AxialSpondyloarthritis (Ankylosing Spondylitis) which is why you should know the signs and symptoms of AxSpA. #AxSpA is a complex disease. Its severity and progression can vary greatly among individuals. ✔️ Back pain that starts before the age of 45 ✔️ Back pain that lasts more than 3 months ✔️ Pain that gets worse with rest ✔️ Pain in your hips and buttocks ✔️ Pain that wakes you up at night ✔️ Stiffness that lasts for more than 30 minutes in the morning If you're noticing these signs and symptoms, bring them up with your primary care doctor and ASk about axSpA! This list is not exhaustive. Always discuss your symptoms with your medical provider. #FiercelyFightingArthritis #MySeveralWorlds #AnkylosingSpondylitis
October 12, 2025 at 9:47 AM
carriekellenberger.bsky.social
For #WorldArthritisDay
#AnkylosingSpondylitis

*Occipital Neuralgia
*Migraine
*TMJ
*Uveitis
*POTS
*Costochondritis
*Severe spine pain & axial stiffness
*Debilitating Fatigue
*IBS & IBD
*Joint pain
*Heat Intolerance
*Enthesitis
& More
Credit: likeabirdinflight
#AxSpA #MySeveralWorlds
For #WorldArthritisDay ANKYLOSING SPONDYLITIS *Occipital Neuralgia *Debilitating Migraines *Jaw pain/TMJ Syndrome *Cervical Radiculopathy *Uveitis & vision issues *Trigeminal Neuralgia *Cervicogenic headaches *POTS *Costochondritis (chest & rib pain) *Lung & breathing issues *Levator Scapulae Syndrome *Severe spine pain *Fever & cold sweats *Severe axial stiffness, limited mobility & dexterity *Debilitating Fatigue *IBS & IBD *Food intolerances *Wrist & finger joint pain *Peripheral joint pain *Vertigo & Nausea *Sexual Dysfunction *Pelvic floor dysfunction *Cystitis, Urinary Retention & Incontinence *Periformis Syndrome *Elbow & Shoulder pain *Muscle Weakness *SI joint pain *hip pain *Bursitis *Sciatica *Pelvic pain *Heat Intolerance *Knee & ankle pain *Muscle Spasms & tightness *Nerve bites & itching *Enthesitis (tendon inflammation) *Erythromelalgia *Calf & foot cramps *Foot & toe joint pain *Peripheral Neuropathy *Balance issues *Plantar fascitis *burning and cold feet Credit: likea birdinflight #AxSpA #MySeveralWorlds #Spondylitis
October 12, 2025 at 3:32 AM
carriekellenberger.bsky.social
Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗
www.channelnewsasia.com/cna-insider/...
They’re young, they look healthy, but they need a seat on the train. This is why
These young adults suffer from autoimmune diseases whose symptoms are not often visible, leading to misconceptions and judgement. How do they navigate work, relationships and life in general while end...
www.channelnewsasia.com
October 3, 2025 at 10:42 AM
melruthwrites.bsky.social
Having one of those days with my #chronicillness #ankylosingspondylitis where I can't stand still without swaying like a young tree in a gentle breeze.
October 1, 2025 at 1:21 PM
carriekellenberger.bsky.social
My #AxSpA Story for SAA @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how test-driving a robotic exoskeleton helps patients like me. #disability
🔗
spondylitis.org/patient-stor...
Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis
I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...
spondylitis.org
September 23, 2025 at 10:07 AM
carriekellenberger.bsky.social
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA
@ASIntFed told @GoHealio
buff.ly
September 23, 2025 at 6:05 AM
ringoffaya.bsky.social
This is one of the most painful disorders in the world! Can actually be worse than child birth which is wild to me #AS #ankylosingspondylitis #disability #pain #stickers
September 18, 2025 at 9:30 PM