Me and my body are rarely (if ever) on good terms. I feel this. I get so irritated at it 😒 like we are not one and the same. Chronic pain sucks!

🫂 🫂🩵 I feel this.

I get it, just doing the small things set off my flares too when I first started working with this PT. Which then led down a whole rabbit hole of “what’s causing me to flare so easily/quickly” - currently being evaluated for MCAS and got diagnosed with HaT as well. It’s a lot, I get it. 🥺

I’m like a hotdog with pillows as the bun 😂 and sometimes none of this does jack shit. I have had many painsomnia nights where I get little to no sleep or what I do get is mega interrupted. It sucks. My pain meds & muscle relaxers do very little.

Pillows. I support my entire body with pillows (I have hEDS so a lot of my pain is due to joint instability). Audiobooks or reading on my Kindle. Meditation podcasts (Mindful in Minutes). Sometimes hot shower before bed, sometime wait til AM if pain is bad. Hydration. Deep breathing.