Wilhelmina Jenkins
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Congratulations!
November 20, 2025 at 1:08 AM
Congratulations!
This paper is quoted widely, without the explanations and limitations of its methodology clearly stated in the paper. I believed, when this paper was published, that its purpose was to encourage CDC to do a far more rigorous study. Unfortunately that never happened.
November 19, 2025 at 3:39 PM
This paper is quoted widely, without the explanations and limitations of its methodology clearly stated in the paper. I believed, when this paper was published, that its purpose was to encourage CDC to do a far more rigorous study. Unfortunately that never happened.
I love it when Dr Bateman, Dr Komaroff, and others who have worked to understand and treat ME/CFS for 35 years and more give some perspective about this long, hard struggle to move the needle forward in ME/CFS research.
November 17, 2025 at 9:54 PM
I love it when Dr Bateman, Dr Komaroff, and others who have worked to understand and treat ME/CFS for 35 years and more give some perspective about this long, hard struggle to move the needle forward in ME/CFS research.
A very painful loss.
November 16, 2025 at 12:13 AM
A very painful loss.
I know Art. He has been a central figure in correcting the erroneous demographic numbers for ME/CFS. His daughter has ME. You might let him know about your skill set. And he may know more younger people because of his daughter.
November 14, 2025 at 7:02 PM
I know Art. He has been a central figure in correcting the erroneous demographic numbers for ME/CFS. His daughter has ME. You might let him know about your skill set. And he may know more younger people because of his daughter.
I hope so. Do you know who the head of the chapter is?
November 14, 2025 at 6:54 PM
I hope so. Do you know who the head of the chapter is?