Whitney Dafoe
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whitneydafoe.bsky.social
Whitney Dafoe
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Many of us ME/CFS patients only see the world through bars.  Even if they are not seen, they are there; Bars of pacing, restraint, radical rest, isolation, or phyical constructs like my window, sheltering us from the world of buzzing, energy guzzling muggles outside.  
2/2

#mecfs #pwME #LongCovid
November 4, 2025 at 3:48 PM
🙏💙💙💙
November 3, 2025 at 4:37 AM
🙏💙💙💙
November 3, 2025 at 4:36 AM
2/2

…and then you check more stuff on your phone because you're so desparate for connection to the world (not equal to healthy people's phone additions), and then it's over, here come the chocolate cravings and the day has begun. But sometimes you have to pee! 😖

The famous Pee-Chocolate Cycle
October 17, 2025 at 3:50 PM
I really try to express the reality of life with chronic illness in my photographs and writing. I think it's vitaly important. If you have a serious chroinic iillness, you certainly have felt like this. And you should know you are not alone. 💙 But also that there will be days of light again.
October 14, 2025 at 7:53 PM
😭😭😭 I’m sorry 💙💙🙏
October 4, 2025 at 1:39 AM
😊💙💙💙
October 4, 2025 at 1:39 AM
No worries I was just curious. 💙💙💙
October 2, 2025 at 7:16 PM
I’m so sorry Donia. My thoughts are with you 💙💙💙😭
October 2, 2025 at 12:34 AM
Wait what other thread where there’s an antagonist involving me?
October 2, 2025 at 12:32 AM
I got the email. Sorry having a severe immune reaction to a med. Not doing well. Love and thanks for the heads up from the community 💙🙏
October 2, 2025 at 12:31 AM
My feelers are hurt 😞 jk 💙💙💙
October 2, 2025 at 12:30 AM
💙💙💙
August 27, 2025 at 3:38 PM