Whitney Dafoe
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whitneydafoe.bsky.social
Whitney Dafoe
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Chocolate Covered Espresso Beans 😍 
My new weapon against the dark lord.  For some reason these little buggers help a lot with brain function (but with limits, they don't cure bad days). No chest rush or jitters like coffee, just a brain boost. Somebody stop me! 😊

#mecfs #pwME #selfportrait
December 2, 2025 at 4:41 PM
The moon outside my window.  During certain times of the year it moves down through the trees and I can see it for a fleeting moment between branches before it disappears down over the bushes.  It’s the only time I’ve seen the moon since 2013;  Through the bars of my window.
1/2
November 4, 2025 at 3:48 PM
I feel like my brain is dispersed in this 2 meter nebulous area outside my head and I can’t access any of my thoughts because they’re too far away.
#MECFS #LongCovid
November 3, 2025 at 4:03 PM
TODAY:  Everything is too much to bear.  Everything that is good is gone.  All that is left is keeping on. (which I will)

#mecfs #chronicillness #pwME #LongCovid
October 14, 2025 at 5:26 PM
The *official* ME/CFS Food Pyramid!  Your path to better health and a brighter tomorrow, running over green hilltops with the wind in your hair, flying kites with loved ones, everyone laughing, bullshit, bullshit, bullshit 😘😉

💙 Whitney

#mecfs #LongCovid #ChronicIllness
October 3, 2025 at 5:19 PM
God grant me the serenity to accept the loss of my entire life,
The strength to not have strength,
And the wisdom to know when to lay down and hold the fuck still.

The ME/CFS Prayer. 💙 Whitney

#MECFS #LongCovid
September 22, 2025 at 7:58 PM
July 16, 2025 at 10:45 PM
I've had such a bad week I can't hardly recognize things I wrote a week ago. How can an illness make you so much sicker that you can't recognize yourself and no one even knows why or has any answers? I feel like a ghost of myself. A crappy clone. A shadow.

#MECFS #LongCovid
July 14, 2025 at 6:11 PM
Ever since I saw the trailer for this recent Star Wars movie this scene has come to mind as a symbol of what ME/CFS feels like.

#MECFS #LongCovid
June 27, 2025 at 4:05 PM
Sometimes I feel like a broken machine that I wake up to everyday and just keep desperately trying to make work.  I'm tired of trying to make myself work and I'm tired of feeling broken.  I want to live in some other dimension where I shine like a being of light.
#MECFS #LongCovid
April 7, 2025 at 3:49 PM
I want to announce my new Print Store!

www.whitneydafoe.com/store

I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life
March 10, 2025 at 3:20 PM
An anthem for ME/CFS and Long Covid patients. YOU ARE NOT ALONE.  

songwhip.com/allison-russ...

This song is a beautiful testament to our connectedness no matter our physical isolation. 

1/2

#mecfsawarenessday
May 9, 2024 at 3:50 PM
All it takes is a healthy-looking person with a stupid smile on their face holding literally *anything* and I’m ready to buy it now like a dog after a chew toy hoping it will make an impact on my health. And Instagram knows it! 😂

#mecfs #SevereMECFS #pwME #LongCovid #ChronicIllness #Disability
April 29, 2024 at 3:47 PM
All the politics around ME/CFS are so fucked up and horrible. We are treated like stray dogs. Medical & Scientific community, can you treat us like humans for a while and find a cure and then the nightmare will be over and you can all go back to being dickheads? #mecfs
February 23, 2024 at 4:18 PM