@wheelieoutthere.bsky.social
MS support. Writer/reporter on disability issues. All things go, all things go.
Caring for Others = Caring for Self
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
November 30, 2025 at 9:42 PM
Caring for Others = Caring for Self
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Practicing gratitude can be a healing, empowering form of self-care, says psych prof Robert Emmons, UC–Davis.
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
November 29, 2025 at 9:35 PM
Practicing gratitude can be a healing, empowering form of self-care, says psych prof Robert Emmons, UC–Davis.
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
Yesterday I choked on a piece of water!
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
November 22, 2025 at 3:29 PM
Yesterday I choked on a piece of water!
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
The only issue...unanimously supported when I’m knocking on doors is that our healthcare system is broken. Yet there is a complete disconnect w individuals not realizing how going to the ballotbox & voting is directly related to their healthcare options. - IA Rep. Josh Turek, running for U.S. Senate
November 22, 2025 at 2:31 PM
The only issue...unanimously supported when I’m knocking on doors is that our healthcare system is broken. Yet there is a complete disconnect w individuals not realizing how going to the ballotbox & voting is directly related to their healthcare options. - IA Rep. Josh Turek, running for U.S. Senate
Tonight 7 PM ET, Virtual Caregiver Support Group
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, jsfisch@rcn.com
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, jsfisch@rcn.com
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
November 20, 2025 at 10:23 PM
Tonight 7 PM ET, Virtual Caregiver Support Group
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, jsfisch@rcn.com
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, jsfisch@rcn.com
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
November 19, 2025 at 12:30 AM
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
Hispanic/Latinx MS Experience Summit, Wed. 11/19, 1-3 PM EST
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
November 17, 2025 at 6:17 PM
Hispanic/Latinx MS Experience Summit, Wed. 11/19, 1-3 PM EST
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
How many family caregivers do you know? It's National Family Caregivers Month
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
November 14, 2025 at 8:15 PM
How many family caregivers do you know? It's National Family Caregivers Month
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
#selfadvocacy win = My doctors are getting a new bone density scanner accessible to me & ALL patients.
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
November 12, 2025 at 8:19 PM
#selfadvocacy win = My doctors are getting a new bone density scanner accessible to me & ALL patients.
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
#Veterans & Active-Duty #MultipleSclerosis Support Group, Nov. 20, 5 PM CT
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, veteran.ms.group@gmail.com Ashley Lee, ashley.lee4518@gmail.com
Do you have any vets in your life to thank today? #disability #caregiving
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, veteran.ms.group@gmail.com Ashley Lee, ashley.lee4518@gmail.com
Do you have any vets in your life to thank today? #disability #caregiving
November 11, 2025 at 3:16 AM
#Veterans & Active-Duty #MultipleSclerosis Support Group, Nov. 20, 5 PM CT
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, veteran.ms.group@gmail.com Ashley Lee, ashley.lee4518@gmail.com
Do you have any vets in your life to thank today? #disability #caregiving
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, veteran.ms.group@gmail.com Ashley Lee, ashley.lee4518@gmail.com
Do you have any vets in your life to thank today? #disability #caregiving
#Veterans with #MultipleSclerosis - Afghanistan, Iraq, family caregiving, MS... Tracey has faced challenges.
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
November 6, 2025 at 5:44 PM
#Veterans with #MultipleSclerosis - Afghanistan, Iraq, family caregiving, MS... Tracey has faced challenges.
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
"Halloween is for everybody.”
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
October 29, 2025 at 4:54 PM
"Halloween is for everybody.”
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
Rant: I just browsed an article about a so-called four stages of MS.
I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Someone newly diagnosed could read this article and think, 'What's the point in trying?' #MultipleSclerosis #disability
I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Someone newly diagnosed could read this article and think, 'What's the point in trying?' #MultipleSclerosis #disability
October 17, 2025 at 5:59 PM
Rant: I just browsed an article about a so-called four stages of MS.
I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Someone newly diagnosed could read this article and think, 'What's the point in trying?' #MultipleSclerosis #disability
I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Someone newly diagnosed could read this article and think, 'What's the point in trying?' #MultipleSclerosis #disability
“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress Selma Blair, who has been living with #MultipleSclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.
What's your morning routine?
#disability
What's your morning routine?
#disability
October 8, 2025 at 7:13 PM
“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress Selma Blair, who has been living with #MultipleSclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.
What's your morning routine?
#disability
What's your morning routine?
#disability
“Don’t be afraid and never give up. Never underestimate the difference you can make.” - Christopher Reeve
Keep being mighty — for yourself and for others. This weekend would have been Reeve's 73rd birthday.
Spinal Cord Injurt Awareness Month #SCI
#MultipleSclerosis #disability
Keep being mighty — for yourself and for others. This weekend would have been Reeve's 73rd birthday.
Spinal Cord Injurt Awareness Month #SCI
#MultipleSclerosis #disability
September 28, 2025 at 12:57 AM
“Don’t be afraid and never give up. Never underestimate the difference you can make.” - Christopher Reeve
Keep being mighty — for yourself and for others. This weekend would have been Reeve's 73rd birthday.
Spinal Cord Injurt Awareness Month #SCI
#MultipleSclerosis #disability
Keep being mighty — for yourself and for others. This weekend would have been Reeve's 73rd birthday.
Spinal Cord Injurt Awareness Month #SCI
#MultipleSclerosis #disability
Exciting: The inaugural event at new Disability Cultural Center at Univ of TX–Austin! It's a first-in-TX hub for #disability community, education & advocacy—fostering sense of belonging for those who study, teach &work @ UT. dcc.disability.utexas.edu/ With an assist by mighty nonprofit Art Spark TX!
September 17, 2025 at 12:32 PM
Exciting: The inaugural event at new Disability Cultural Center at Univ of TX–Austin! It's a first-in-TX hub for #disability community, education & advocacy—fostering sense of belonging for those who study, teach &work @ UT. dcc.disability.utexas.edu/ With an assist by mighty nonprofit Art Spark TX!
"Change is inevitable. Even when I’m having a really bad flare or feeling weighed down by depression, I remind myself that it isn’t permanent & it will eventually pass....
"Be kind to yourself & give yourself grace to handle the challenges you face." — Nicole Pedra, 37, dxed #MultipleSclerosis at 10
"Be kind to yourself & give yourself grace to handle the challenges you face." — Nicole Pedra, 37, dxed #MultipleSclerosis at 10
September 16, 2025 at 3:51 PM
"Change is inevitable. Even when I’m having a really bad flare or feeling weighed down by depression, I remind myself that it isn’t permanent & it will eventually pass....
"Be kind to yourself & give yourself grace to handle the challenges you face." — Nicole Pedra, 37, dxed #MultipleSclerosis at 10
"Be kind to yourself & give yourself grace to handle the challenges you face." — Nicole Pedra, 37, dxed #MultipleSclerosis at 10
It's the tiredness that makes you fall asleep early,
& sleep in late,
& when you wake up, you're still tired.
You're not just tired — you're #MultipleSclerosis tired.
How many nappers do we have here?
How many coffee drinkers?
What tips can you share w the community to help w fatigue? #disability
& sleep in late,
& when you wake up, you're still tired.
You're not just tired — you're #MultipleSclerosis tired.
How many nappers do we have here?
How many coffee drinkers?
What tips can you share w the community to help w fatigue? #disability
September 11, 2025 at 1:22 AM
It's the tiredness that makes you fall asleep early,
& sleep in late,
& when you wake up, you're still tired.
You're not just tired — you're #MultipleSclerosis tired.
How many nappers do we have here?
How many coffee drinkers?
What tips can you share w the community to help w fatigue? #disability
& sleep in late,
& when you wake up, you're still tired.
You're not just tired — you're #MultipleSclerosis tired.
How many nappers do we have here?
How many coffee drinkers?
What tips can you share w the community to help w fatigue? #disability
Where are you feeling MS pain? What do you do about it? #MultipleSclerosis
September 8, 2025 at 2:22 PM
Where are you feeling MS pain? What do you do about it? #MultipleSclerosis
Fall virtual classes for unwinding, destressing — free, from Georgetown Lombardi Arts & Humanities Prog.
Movement for #MultipleSclerosis, yoga, writing, painting.
myemail.constantcontact.com/Free-AHP-Online-Classes-Are-Now-Open-for-Registration--.html?soid=1139386398450&aid=VmalduOOGPs#
#disability
Movement for #MultipleSclerosis, yoga, writing, painting.
myemail.constantcontact.com/Free-AHP-Online-Classes-Are-Now-Open-for-Registration--.html?soid=1139386398450&aid=VmalduOOGPs#
#disability
September 5, 2025 at 7:41 PM
Fall virtual classes for unwinding, destressing — free, from Georgetown Lombardi Arts & Humanities Prog.
Movement for #MultipleSclerosis, yoga, writing, painting.
myemail.constantcontact.com/Free-AHP-Online-Classes-Are-Now-Open-for-Registration--.html?soid=1139386398450&aid=VmalduOOGPs#
#disability
Movement for #MultipleSclerosis, yoga, writing, painting.
myemail.constantcontact.com/Free-AHP-Online-Classes-Are-Now-Open-for-Registration--.html?soid=1139386398450&aid=VmalduOOGPs#
#disability
Walking backwards = walking better: Researchers at Wayne State Univ. in Detroit find people with MS can walk better & fall less often — just don't chew gum at the same time.
journals.lww.com/jnpt/abstract/9900/structural_and_functional_changes_with_8_weeks_of.110.aspx
#MultipleSclerosis #disability
journals.lww.com/jnpt/abstract/9900/structural_and_functional_changes_with_8_weeks_of.110.aspx
#MultipleSclerosis #disability
August 30, 2025 at 4:05 PM
Walking backwards = walking better: Researchers at Wayne State Univ. in Detroit find people with MS can walk better & fall less often — just don't chew gum at the same time.
journals.lww.com/jnpt/abstract/9900/structural_and_functional_changes_with_8_weeks_of.110.aspx
#MultipleSclerosis #disability
journals.lww.com/jnpt/abstract/9900/structural_and_functional_changes_with_8_weeks_of.110.aspx
#MultipleSclerosis #disability
August 25, 2025 at 2:36 PM
We're turning the tide vs. #MultipleSclerosis.
-- Far fewer people w MS become progressive. It used to be half of cases did w/in 10-20 years. Now about 10% do.
-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, w many more on the way — plus a vaccine is in testing.
-- Far fewer people w MS become progressive. It used to be half of cases did w/in 10-20 years. Now about 10% do.
-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, w many more on the way — plus a vaccine is in testing.
August 25, 2025 at 2:34 PM
We're turning the tide vs. #MultipleSclerosis.
-- Far fewer people w MS become progressive. It used to be half of cases did w/in 10-20 years. Now about 10% do.
-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, w many more on the way — plus a vaccine is in testing.
-- Far fewer people w MS become progressive. It used to be half of cases did w/in 10-20 years. Now about 10% do.
-- If you were dxed in 1990, there were ZERO treatments. Now there are more than 20, w many more on the way — plus a vaccine is in testing.
What is clonus? And do you get it too?
Out of the blue, my heel & knee start bucking rapidly up & down like Morse code: tap-tap-tap X 100.
This is clonus, a rhythmic muscle spasm brought on by out-of-place signals coming from my brain/CNS. Clonus is brought to you by our sponsor, #MultipleSclerosis.
Out of the blue, my heel & knee start bucking rapidly up & down like Morse code: tap-tap-tap X 100.
This is clonus, a rhythmic muscle spasm brought on by out-of-place signals coming from my brain/CNS. Clonus is brought to you by our sponsor, #MultipleSclerosis.
August 12, 2025 at 9:40 PM
What is clonus? And do you get it too?
Out of the blue, my heel & knee start bucking rapidly up & down like Morse code: tap-tap-tap X 100.
This is clonus, a rhythmic muscle spasm brought on by out-of-place signals coming from my brain/CNS. Clonus is brought to you by our sponsor, #MultipleSclerosis.
Out of the blue, my heel & knee start bucking rapidly up & down like Morse code: tap-tap-tap X 100.
This is clonus, a rhythmic muscle spasm brought on by out-of-place signals coming from my brain/CNS. Clonus is brought to you by our sponsor, #MultipleSclerosis.
August 12, 2025 at 11:23 AM