Cvonraesfeld
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undiagnosed2.bsky.social
Cvonraesfeld
@undiagnosed2.bsky.social
Just a girl trying to survive US health care...
I lost access to my previous account, cvonraesfeld. Until that gets resolved, follow me here. 💜
AI can be both ethical and innovative but we must consider those who we are trying to help. Check out the AI Rights Initiative and our thoughts as patients regarding the use of #AI. @lightcollective.bsky.social @downing.bsky.social lightcollective.org/patient-ai-r...
Light Collective - Patient AI Rights Initiative
It is time for patients to lead change to advance the rights, interests, and voices of patients in health AI.  Several prominent national initiatives have emerged focused on developing guidelines f…
lightcollective.org
April 28, 2025 at 7:08 AM
They announced it towards the end. 💜
April 21, 2025 at 8:21 AM
With the way people talk about these rallies, I'm not sure angry is the right word to use. They don't look angry to me. They look like they're doing it peacefully. 💜
April 21, 2025 at 1:48 AM
Good catch! It should say mixed race woman, but I don't think there's a way to edit the alt text on @bsky.app yet. Any tips? 🤔💜
April 21, 2025 at 12:59 AM
April 20, 2025 at 8:21 PM
Contribute your perspective & play a role in shaping healthcare quality measures.
✅ Submit a nomination through #PQM
[https://p4qm.org/get-involved]

🕚 Nominations close at 11:59 PM (ET) on May 15, 2025.

Let's ensure that patient voices continue to make an impact!

#CMS #PatientAdvocacy
April 17, 2025 at 8:54 PM
I thought this a long time ago... when they won the contract for the NHS and then the All of Us Research Program, it confirmed my suspicions...😢
April 17, 2025 at 1:47 AM
I second this for the US!
April 16, 2025 at 9:33 AM
currently in the process of taking ownership of my own raw T2T data. Would love to get your insights... 🧬
April 16, 2025 at 9:21 AM
Just registered for May! 🧬
April 16, 2025 at 9:05 AM