Thanks @stanfordhai.bsky.social for including @lightcollective.bsky.social in the #HAIPolicyWorkshop. As co-authors of the #AIRightsInitiative Andrea, Isabel & I were glad to bring the #PatientVoice to discussion.

How can we build AI that earns trust, respects autonomy & reflects real lives?

No Aggregation Without Representation isn’t just a motto, it’s a demand for patient voices in AI-driven healthcare. At the recent CA Assemblly hearing on GenAI, I was able to provide testimony for @lightcollective.bsky.social AI must serve people, not just institutions. #NothingAboutUsWithoutUs.

Happy #ClinicalTrialsDay! Today, we celebrate the incredible researchers, participants, and advocates who make medical breakthroughs possible. Every discovery starts with those willing to take a step forward!
#Reasons4Research #StandUpForScience #MedicalAdvancement

Mind what you have learned. Save you it can.

Yoda

#MayThe4th #StarWars #Capcut #Canva #Algenerated

At the recent #FestivalOfBiologics, I presented on transforming #RareDisease research. I shared how giving patients access & control over their #HealthData can bridge research to clinical care & how tools like #GenomicMapping can lead to new discoveries and personalized treatments. #FutureOfHealth

Over 3,500 people showed up in #SanJose yesterday. Proud to be a part of an amazing community! #WeWillNotBeSilent #ScienceTrumpsAll @50501movement.bsky.social @standupforscience.bsky.social

I went to Catholic School and was raised in a practicing Catholic family. To see Easter even associated with a post like this is appalling to me and should be for anyone who "claims" to be Catholic. This goes against everything I was taught to believe. 😢

Happy Easter... 💜

As part of the Partnership for Quality Measurement (PQM) committees, we need your help to expand our #Patient community. We're now accepting nominations for individuals to join our Pre-Rulemaking Measure Review (PRMR)/Measure Set Review (MSR) and Endorsement & Maintenance (E&M) committees.

Joïn us Thursday, April 17th at 9AM PT on @linkedin.com for a conversation about one of the most frustrating challenges in #ClinicalResearch today: If #tech is really so smart, why doesn't it work -and how do we fix it?

#ClinicalTrials #ConsuliConversations #OneBurningQuestion

Does anyone know if they've re-instated public communication with the #CDC yet? Just got a text message from CVS to get my hepatitis b #vaccine... #Healthcare #patient

Just completed my abstract reviews for AcademyHealth ARM25! In awe of the research being conducted & excited to return as co-lead for the "Individuals living w disability or other complex conditions" track and to share my own experiences as we navigate this new landscape.

➡️ academyhealth.org/ARM

I thought so too, but it's a new account. The old VP account was archived and I'm still following that one.

For anyone following me @cvonraesfeld.bsky.social I was locked out of my account, but didn't want to miss the party so here I am. 🎉