Two Faces of MS 💋
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twofacesofms.bsky.social
Two Faces of MS 💋
@twofacesofms.bsky.social
A little about MS & a lot about the adventure of life's journey along the way. #MultipleSclerosis Proud, liberal, humanitarian, nearly 30 years working in healthcare, open to patient speaking engagements

https://twofacesofms.com/
Pinned
And as of today this "free" healthcare has cost me $12,534 (so far) with 2.5 months left in the year. This is the very definition of insane; banging our heads against the wall and expecting a different outcome. I blame both sides of the aisle for this gross display of capitalism. 1/2
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
If you can. Whether on you own or with family / friends, postcards are an easy way to make your voice heard.

mazon.org/postcards/
Send a Postcard to Fight Back Against Cuts to Basic Needs
mazon.org
November 24, 2025 at 12:58 AM
November 23, 2025 at 5:26 AM
Reposted by Two Faces of MS 💋
We at Defend Public Health published this report on what is known about the risk factors for autism spectrum disorder back in September.

It includes a section on the fact that there is no credible evidence that vaccines cause autism.

Period.
Risk Factors for Autism Spectrum Disorder: What We Already Know From Scientific Evidence | Defend Public Health
With Health and Human Services Secretary Robert F. Kennedy Jr. promising to announce what he believes are the causes of autism this month, Defend Public Health is preemptively warning the public not t...
www.defendpublichealth.org
November 20, 2025 at 4:37 AM
This is REALLY bad.

Please contact your electeds & tell them they must renew the ACA credits.

www.nbcnews.com/politics/con...
Obamacare tax credits look likely to expire as Trump rules out an extension
Trump told Republicans not to "waste" their time on extending the enhanced ACA subsidies set to expire, saying he'd only support "sending the money directly back to the people."
www.nbcnews.com
November 20, 2025 at 4:49 AM
RFK Jr. says he’s supported by doctors & scientists. The record thousands of physicians, dozens of institutions & multiple medical societies say no they oppose his leadership and even call for his resignation.
@defendpublichealth.bsky.social

#ScienceFirst #HealthLeadership #Accountability
Whopper of the Week: RFK, Jr. says he gets fan mail from scientists and doctors, the letters sent to Congress actually ask for his resignation | Defend Public Health
Physicians and scientists across the country warned Congress that Robert F. Kennedy Jr. was unfit to serve as Secretary of Health and Human Services. Kennedy, who has no medical or scientific training...
www.defendpublichealth.org
November 12, 2025 at 10:26 PM
Reposted by Two Faces of MS 💋
🔥MEDICARE ADVANTAGE PLANS🔥

CHECK YOUR PLAN!

1) MA Providers are LEAVING marketplaces.
2) No auto-enrollment if YOUR plan is dropped you have until 12/31 to SWITCH OR else in 2026 have 80% Medicare Coverage & NO RX PLAN!
3) 1M+ = estimated 3% on MA who'll LOSE their plans.

🔥PLEASE REPOST & SHARE!🔥
November 11, 2025 at 10:21 PM
RFK Jr. says he’s supported by doctors & scientists. The record thousands of physicians, dozens of institutions & multiple medical societies say no they oppose his leadership and even call for his resignation.
@defendpublichealth.bsky.social

#ScienceFirst #HealthLeadership #Accountability
Whopper of the Week: RFK, Jr. says he gets fan mail from scientists and doctors, the letters sent to Congress actually ask for his resignation | Defend Public Health
Physicians and scientists across the country warned Congress that Robert F. Kennedy Jr. was unfit to serve as Secretary of Health and Human Services. Kennedy, who has no medical or scientific training...
www.defendpublichealth.org
November 12, 2025 at 8:38 PM
House Democrats “Grow a Spine” Challenge

Take action NOW to call on House Democrats to stay strong on health care protections in upcoming CR vote

@defendpublichealth.bsky.social

actionnetwork.org/letters/hous...
House Democrats "Grow a Spine" Challenge
Late Sunday night enough Senate Democrats agreed to a deal with Senate Republicans to reopen the government. This deal did not address the major concerns Defend Public Health has been advocating about...
actionnetwork.org
November 11, 2025 at 7:27 PM
NY We need your voice! There’s a petition calling on Gov Hochul to act now & protect vaccine access for all NYers. Vaccine gap means some ppl may not get the care they need. Access should not depend on zip code or $. Our community’s health is stronger when everyone is included.
Sign & share w NYers
Tell Governor Hochul: Act Now to Protect Vaccine Access for All New Yorkers
Governor Hochul has taken an important step by extending Executive Order 52 for another 30 days, allowing pharmacists to keep administering COVID-19 vaccines until November 5. But that 30-day extensio...
actionnetwork.org
November 9, 2025 at 4:34 PM
NY We need your voice! There’s a petition calling on Gov Hochul to act now & protect vaccine access for all NYers. Vaccine gap means some ppl may not get the care they need. Access should not depend on zip code or $. Our community’s health is stronger when everyone is included.
Sign & share w NYers
Tell Governor Hochul: Act Now to Protect Vaccine Access for All New Yorkers
Governor Hochul has taken an important step by extending Executive Order 52 for another 30 days, allowing pharmacists to keep administering COVID-19 vaccines until November 5. But that 30-day extensio...
actionnetwork.org
November 2, 2025 at 10:53 PM
New Yorkers: this is our moment to speak up. We are calling on the gov to safeguard vaccine access for everyone in NY.

Sign and share 👇👇👇

#HealthEquity #VaccineJustice #NewYorkStrong #DefendPublicHealth #SignThePetition
You can help @defendpublichealth.bsky.social @governor.ny.gov
Tell Governor Hochul: Act Now to Protect Vaccine Access for All New Yorkers
Governor Hochul has taken an important step by extending Executive Order 52 for another 30 days, allowing pharmacists to keep administering COVID-19 vaccines until November 5. But that 30-day extensio...
actionnetwork.org
October 29, 2025 at 9:14 PM
$250 fucking million on a gold plated ballroom and I’m staring down not having health instance next year.
October 20, 2025 at 7:44 PM
October 19, 2025 at 7:12 PM
And as of today this "free" healthcare has cost me $12,534 (so far) with 2.5 months left in the year. This is the very definition of insane; banging our heads against the wall and expecting a different outcome. I blame both sides of the aisle for this gross display of capitalism. 1/2
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
October 19, 2025 at 6:51 PM
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
October 19, 2025 at 6:50 PM
Did you know?

sirum.org/donate/
Donate Medicine - SIRUM - Saving Medicine : Saving Lives
sirum.org
October 16, 2025 at 5:25 AM
Please join the virtual rally on Thursday @ 3p to take back science

www.standupforscience.net
STAND UP FOR SCIENCE
www.standupforscience.net
October 14, 2025 at 6:36 PM
We need single payer health insurance in the U.S. 1/2

open.substack.com/pub/drjessic...
October 3, 2025 at 8:25 PM
People truly don’t get that even if you have health insurance through your employer, you will be paying more. We could easily have single payer in the U.S.
September 23, 2025 at 5:44 PM
The U.S. healthcare system

To get the medicine for my MS the following has to happen.

Doctor prescribes

Insurance determines if it's covered (crazy right? If doctor prescribes insurance should have no say)

If insurance covers, then PBM (known as mail order) has to get the script to fill. 1/3
September 12, 2025 at 6:36 AM
Reposted by Two Faces of MS 💋
Can you take b-cell depleters like ocrevus, kesimpta, and rituximab less often? According to this meta analysis of 19 studies on the topic, YES! "Extended interval dosing does not increase the risk of relapse, MRI activity, disability progression." www.msard-journal.com/article/S221...
Efficacy of alternative vs. standard dosing strategies of anti-CD20 monoclonal antibodies in multiple sclerosis: A systematic review and meta-analysis
Multiple sclerosis (MS) is a chronic, inflammatory, demyelinating disease of the central nervous system (CNS), affecting approximately 2.8 million individuals worldwide (Walton et al., 2020). Among th...
www.msard-journal.com
August 21, 2025 at 3:28 AM