Touretteshero
@touretteshero.bsky.social
It’s Children In Need tomorrow so I’m resharing a piece from a few years ago. I don’t believe that pity is the only way of raising money & I’d like to see CiN working with disabled people to imagine new ways of framing & contextualising our stories: www.touretteshero.com/2021/11/20/w...
What Do Children Need?
Yesterday was BBC Children in Need day. Schools and workplaces held collections in the lead up to an evening extravaganza of celebrity-led TV fundraising. The money raised will fund life-changing work...
www.touretteshero.com
November 13, 2025 at 9:34 AM
It’s Children In Need tomorrow so I’m resharing a piece from a few years ago. I don’t believe that pity is the only way of raising money & I’d like to see CiN working with disabled people to imagine new ways of framing & contextualising our stories: www.touretteshero.com/2021/11/20/w...
What do you get if you cross a 2011 Rihanna song with a cow? Seems the answer for me is a new regular #Tourettes tic! Biscuits have made space for bovines - find out more here: www.touretteshero.com/2025/10/24/i...
In A Hopeless Place
For anyone old enough to remember, in 2011 Rihanna found love in a hopeless place. That place, if the video is anything to go by, turned out to be County Down in Northern Ireland. The song, with its c...
www.touretteshero.com
October 28, 2025 at 8:52 PM
What do you get if you cross a 2011 Rihanna song with a cow? Seems the answer for me is a new regular #Tourettes tic! Biscuits have made space for bovines - find out more here: www.touretteshero.com/2025/10/24/i...
Great guest blog by our Senior Producer Nisha on Epilepsy & organists. One of the complexities of living with brain conditions is that it's also where so much of who we are is located. Navigating the reality of this can be practically & emotionally complex: www.touretteshero.com/2025/09/01/l...
Living with the Organist – Nisha Oza
If living with Tourettes has taught me one thing it’s that brains are incredibly complex and that medical understandings of neurological conditions and the reality of living with them can often feel q...
www.touretteshero.com
October 3, 2025 at 5:18 PM
Great guest blog by our Senior Producer Nisha on Epilepsy & organists. One of the complexities of living with brain conditions is that it's also where so much of who we are is located. Navigating the reality of this can be practically & emotionally complex: www.touretteshero.com/2025/09/01/l...
We're planning to reprint our welcome pack for children with #Tourettes & are adding a letter for siblings. If you're a person with tics, their sibling, or parent/carer please complete a short survey & help us make the letter as useful as possible: www.touretteshero.com/safe/2025/10...
Siblings Letter – Your Help Needed
Last year we launched the Touretteshero Welcome Pack, a set of artist designed letters that we provide free to children who are newly diagnosed with tics or Tourettes, and their families. The welcome ...
www.touretteshero.com
October 2, 2025 at 12:21 PM
We're planning to reprint our welcome pack for children with #Tourettes & are adding a letter for siblings. If you're a person with tics, their sibling, or parent/carer please complete a short survey & help us make the letter as useful as possible: www.touretteshero.com/safe/2025/10...
Our Practical Intervention fund's back! This time with a Mobility focus, we can't provide actual mobility aids but we have 8 great items we can gift to disabled people who aren't able to buy them. Simple application process, more here: www.touretteshero.com/2025/08/12/p... closes 03/09/25
Practical Intervention Fund – Mobility Edition
It’s been four years since we launched our Practical Intervention Fund (PIF). The fund enables disabled, deaf and neurodivergent people to experiment with different items which can support their wellb...
www.touretteshero.com
August 15, 2025 at 12:04 PM
Our Practical Intervention fund's back! This time with a Mobility focus, we can't provide actual mobility aids but we have 8 great items we can gift to disabled people who aren't able to buy them. Simple application process, more here: www.touretteshero.com/2025/08/12/p... closes 03/09/25
I've not been able to do my job for the last 3 months because of a DWP decision to cut my #AccessToWork support. This week I received a letter reinstating my support, while this is good news for me there are many others still affected by cuts & delays touretteshero.com/safe/2025/07... 1/2
We Are Not Disposable
A couple of weeks ago some colleagues and I gathered round a phone in the Touretteshero office to speak to my newly allocated caseworker from the Department for Work and Pensions about my Access to Wo...
touretteshero.com
August 1, 2025 at 9:24 AM
I've not been able to do my job for the last 3 months because of a DWP decision to cut my #AccessToWork support. This week I received a letter reinstating my support, while this is good news for me there are many others still affected by cuts & delays touretteshero.com/safe/2025/07... 1/2
An important article by Andrew Miller in @ArtsPro please read and share: www.artsprofessional.co.uk/magazine/fea... #ProtectAtW #TakingThePip
Benefit reforms risk pushing disabled creatives back to the margins - Arts Professional
Without equitable access to life enhancing benefits, disabled people's participation in culture is severely limited, writes the UK's arts access champion Andrew Miller.
www.artsprofessional.co.uk
July 11, 2025 at 9:00 AM
An important article by Andrew Miller in @ArtsPro please read and share: www.artsprofessional.co.uk/magazine/fea... #ProtectAtW #TakingThePip
Reposted by Touretteshero
I’m so shocked this is happening, in 21st century Britain, under a Labour govt. - the words say “get people working “ the policies are causing the complete opposite!
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?
Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...
www.touretteshero.com
June 30, 2025 at 8:53 PM
I’m so shocked this is happening, in 21st century Britain, under a Labour govt. - the words say “get people working “ the policies are causing the complete opposite!
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?
Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...
www.touretteshero.com
June 30, 2025 at 7:33 PM
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...
Reposted by Touretteshero
Channel 4 news interviewing Jess Thom who cannot continue working due to cuts in Access to Work funding.
It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London.
The cuts in support for #disabled people must stop.
It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London.
The cuts in support for #disabled people must stop.
June 30, 2025 at 6:55 PM
Channel 4 news interviewing Jess Thom who cannot continue working due to cuts in Access to Work funding.
It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London.
The cuts in support for #disabled people must stop.
It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London.
The cuts in support for #disabled people must stop.
A Tale of Two Pods, offering us two versions of the future, which would you choose? www.touretteshero.com/2025/06/25/a...
A Tale of Two Pods
Content Notice: References to genocide and Euthanasia
In 2016 much to my surprise and delight I became a Wellcome Trust Engagement Fellow. This Fellowship from an internationally recognised health re...
www.touretteshero.com
June 28, 2025 at 6:30 PM
A Tale of Two Pods, offering us two versions of the future, which would you choose? www.touretteshero.com/2025/06/25/a...
Reposted by Touretteshero
Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister
www.disabilitynewsservice.com/making-all-s...
www.disabilitynewsservice.com/making-all-s...
Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister
A transport minister has told peers that it would be “counter-productive” – and take too long – to draw up rules that would ensure all pilot schemes of self-driving taxis are accessible to disabled…
www.disabilitynewsservice.com
June 26, 2025 at 5:26 PM
Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister
www.disabilitynewsservice.com/making-all-s...
www.disabilitynewsservice.com/making-all-s...
Sharing this in solidarity with all those who, like me, are deeply worried and concerned about the outcome of the #AssistedDying vote today: www.touretteshero.com/2025/06/20/l... #TakingThePip #ProtectAtW
Labour’s Pincer Movement
Is it just me or is it feeling a lot like the 1930s all of a sudden? I’m giving myself permission to ask big questions like this in part because I’m not working at the moment. The reason why I’m not d...
www.touretteshero.com
June 20, 2025 at 4:59 PM
Sharing this in solidarity with all those who, like me, are deeply worried and concerned about the outcome of the #AssistedDying vote today: www.touretteshero.com/2025/06/20/l... #TakingThePip #ProtectAtW
I’ve been vocal about the impact the cuts to my Access To Work support have had on my job. I haven’t explained publicly my biggest fear - I’ve lost 45hrs of support a week and if this isn’t reinstated I’ll have to go back to #SocialCare & #NHS to cover these lost hours 1/3
June 20, 2025 at 9:09 AM
I’ve been vocal about the impact the cuts to my Access To Work support have had on my job. I haven’t explained publicly my biggest fear - I’ve lost 45hrs of support a week and if this isn’t reinstated I’ll have to go back to #SocialCare & #NHS to cover these lost hours 1/3
Reposted by Touretteshero
The only thing preventing Jess from working is Keir Starmer.
My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social
June 18, 2025 at 9:29 AM
The only thing preventing Jess from working is Keir Starmer.
Reposted by Touretteshero
Please watch the videos in this thread. It's unbelievable that a Labour government is forcing disabled people out of work #LabourIsn'tWorking
My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social
June 17, 2025 at 5:20 PM
Please watch the videos in this thread. It's unbelievable that a Labour government is forcing disabled people out of work #LabourIsn'tWorking
Keir Starmer says Labour is the party of work, equality and fairness, but less than a year after the election, changes at the Department for Work and Pensions have forced me to stop doing the job I love. The full video can be found here: www.youtube.com/watch?v=fxpq... #AccessToWork
June 17, 2025 at 4:24 PM
Keir Starmer says Labour is the party of work, equality and fairness, but less than a year after the election, changes at the Department for Work and Pensions have forced me to stop doing the job I love. The full video can be found here: www.youtube.com/watch?v=fxpq... #AccessToWork
My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social
June 17, 2025 at 4:13 PM
My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social
The start of my 3rd week not being able to work because of a decision by the DWP under Keir Starmer to cut my #AccessToWork support by 61%. With support I can work, without it I can't. The shock & sadness is still overwhelming: www.touretteshero.com/safe/2025/05... @miattafahnbulleh.bsky.social
A Career-Ending Decision?
Fifteen years ago, I co-founded Touretteshero as a creative response to the increasing impact that my tics were having on my life. I also started writing this blog. Over the years I’ve tackled some tr...
www.touretteshero.com
June 9, 2025 at 10:50 AM
The start of my 3rd week not being able to work because of a decision by the DWP under Keir Starmer to cut my #AccessToWork support by 61%. With support I can work, without it I can't. The shock & sadness is still overwhelming: www.touretteshero.com/safe/2025/05... @miattafahnbulleh.bsky.social
With the cut to my #AccessToWork support meaning I can’t do my job & impacting creative projects, it’s been a while since I felt excited & moved by theatre but experiencing the #RelaxedPerformance of #MatildaMusical with my niece this afternoon was the reminder I needed.
June 8, 2025 at 5:00 PM
With the cut to my #AccessToWork support meaning I can’t do my job & impacting creative projects, it’s been a while since I felt excited & moved by theatre but experiencing the #RelaxedPerformance of #MatildaMusical with my niece this afternoon was the reminder I needed.
Reposted by Touretteshero
The fact this is a decision by #AccessToWork is shocking #Touretteshero artistic work gave many opportunities to other disabled artists, my son included. I am saddened and angered to read this.
I’m profoundly sad to say that as of today, I’ll no longer be able to do my job as co-artistic director of #Touretteshero because of a recent decision by #AccessToWork to cut my support by 61%. Read & share this post, the hardest I've had to write: www.touretteshero.com/2025/05/23/a... 1/4
June 5, 2025 at 6:13 PM
The fact this is a decision by #AccessToWork is shocking #Touretteshero artistic work gave many opportunities to other disabled artists, my son included. I am saddened and angered to read this.
Reposted by Touretteshero
I am deeply saddened to read this. I know how much the work means to you but also the impact it has had on other disabled artists. So sorry & what a sad world we live in
June 5, 2025 at 5:59 PM
I am deeply saddened to read this. I know how much the work means to you but also the impact it has had on other disabled artists. So sorry & what a sad world we live in
Calling all artists, creatives and cultural sector workers, there is an open letter about the changes to Access to Work which will be released on Monday, it’s been signed by almost 2000 people, please add your name if you can: airtable.com/appSbdVCnzZy...
May 30, 2025 at 5:07 PM
Calling all artists, creatives and cultural sector workers, there is an open letter about the changes to Access to Work which will be released on Monday, it’s been signed by almost 2000 people, please add your name if you can: airtable.com/appSbdVCnzZy...
Reposted by Touretteshero
Still can't get over how cruel and terrible this is. With decisions like this the Labour government is making the country spiritually, culturally and financially poorer.
I’m profoundly sad to say that as of today, I’ll no longer be able to do my job as co-artistic director of #Touretteshero because of a recent decision by #AccessToWork to cut my support by 61%. Read & share this post, the hardest I've had to write: www.touretteshero.com/2025/05/23/a... 1/4
May 29, 2025 at 10:40 AM
Still can't get over how cruel and terrible this is. With decisions like this the Labour government is making the country spiritually, culturally and financially poorer.