Is it another cruel irony that my very health relies on, well, my health getting to a point where i can work? How will i afford my meds and doctor otherwise?

And i know im supposed to be quippy on this site, but it was and still is devastating. I am watching my life savings vanish and desperately trying to build enough baseline to work before it does...

Twitter seems to shove the crazies down your throat a lot more than bluesky does

Im in a similar situation today myself

Putting it mildly

Just want to chime in. im normally a lurker here, but i love your content!

It’s wild this isn’t front page news. If NIH had a study where 1 in 22 people who’d had Covid then had a stroke, it’d be a five-alarm fire.

But the average health-related quality of life for ME/CFS is worse than stroke—or literally any other condition it’s ever been compared to.

Everyone taking me at face value so ill just say this: im not listening to my doctor. He is uninformed. I know very well what could happen and am doing my best to listen to my body and not overexert ❤️

Yes sorry i withheld the 🙄 thought my sarcasm would come through. I am not listening to my doctors advice. I dont even think it would be possible for me to walk every day i would crash after the first walk... I use the visible app and a garmin watch to help track myself. Thanks for the help tho :)

It pains me that after so long, we still have no good answer... I feel their desperation in my gut

PEM, fatigue, racing heart for no reason