Tilly Rose
@thattillyrose.bsky.social
🩺 Snippets from my chapters of 20 years of life as the #patient #chronicillness #eds
📲 Full chapters on Instagram @thattillyrose
🌼Founder @thatpatientcollective
📖 Pre-order ‘Be Patient’ : https://linktr.ee/bepatientbook
📲 Full chapters on Instagram @thattillyrose
🌼Founder @thatpatientcollective
📖 Pre-order ‘Be Patient’ : https://linktr.ee/bepatientbook
Reposted by Tilly Rose
@thattillyrose.bsky.social
I received your book in the mail last week, and am so inspired by you as a person. It’s one thing to be a patient, but another to do it at Jesus College and writing a novel. I have a chronic illness and have written a novel but scared to publish.. you give me hope ♥️♥️♥️♥️
I received your book in the mail last week, and am so inspired by you as a person. It’s one thing to be a patient, but another to do it at Jesus College and writing a novel. I have a chronic illness and have written a novel but scared to publish.. you give me hope ♥️♥️♥️♥️
May 15, 2025 at 12:22 AM
@thattillyrose.bsky.social
I received your book in the mail last week, and am so inspired by you as a person. It’s one thing to be a patient, but another to do it at Jesus College and writing a novel. I have a chronic illness and have written a novel but scared to publish.. you give me hope ♥️♥️♥️♥️
I received your book in the mail last week, and am so inspired by you as a person. It’s one thing to be a patient, but another to do it at Jesus College and writing a novel. I have a chronic illness and have written a novel but scared to publish.. you give me hope ♥️♥️♥️♥️
Amazing to have my story and BE PATIENT featured in @goodhousekeeping.bsky.social
Thank you for shining a light on patient care! 💡🩺
Read the full article here: www.goodhousekeeping.com/uk/lifestyle...
Thank you for shining a light on patient care! 💡🩺
Read the full article here: www.goodhousekeeping.com/uk/lifestyle...
“I spent 20 years in hospital - here are the horrifying things I saw”: A medical mystery patient on what life's really like on NHS wards
Tilly Rose was a ‘medical mystery’ patient and spent two decades in and out of medical care. Here, she tells Bethan Rose Jenkins what she experienced and how she’s now advocating for others
www.goodhousekeeping.com
May 2, 2025 at 7:07 PM
Amazing to have my story and BE PATIENT featured in @goodhousekeeping.bsky.social
Thank you for shining a light on patient care! 💡🩺
Read the full article here: www.goodhousekeeping.com/uk/lifestyle...
Thank you for shining a light on patient care! 💡🩺
Read the full article here: www.goodhousekeeping.com/uk/lifestyle...
Reposted by Tilly Rose
Happy publication day to CBC alumna @thattillyrose.bsky.social 🌼✨
Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus!
Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229
Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus!
Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229
April 17, 2025 at 11:40 AM
Happy publication day to CBC alumna @thattillyrose.bsky.social 🌼✨
Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus!
Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229
Tilly's memoir #BePatient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity, and it's out now from Octopus!
Get your hands on a copy: uk.bookshop.org/a/11853/9781780726229
So delighted that @cbcreative.bsky.social have shared my author interview today! So grateful for the opportunity I had to hone my writing on their courses 📖✨
Tilly Rose: 'I have realised this story is so much bigger than just me' 🌈
We caught up with CBC alumna @thattillyrose.bsky.social to discuss her memoir, #BePatient – out next week from Octopus!
We caught up with CBC alumna @thattillyrose.bsky.social to discuss her memoir, #BePatient – out next week from Octopus!
Tilly Rose: 'I have realised this story is so much bigger than just me'
Tilly Rose studied on our Writing Your Novel - Three Months course in 2020 and our Five-Day Memoir Writing Intensive in 2020. Her memoir debut, Be Patient: Life, loss and laughter from behind the…
www.curtisbrowncreative.co.uk
April 8, 2025 at 11:30 AM
So delighted that @cbcreative.bsky.social have shared my author interview today! So grateful for the opportunity I had to hone my writing on their courses 📖✨
On #WorldBookDay2025 I am so excited to share these incredible endorsements for my upcoming book ‘Be Patient - life, loss and laughter from behind the hospital curtain’
Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...
Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...
March 6, 2025 at 8:21 PM
On #WorldBookDay2025 I am so excited to share these incredible endorsements for my upcoming book ‘Be Patient - life, loss and laughter from behind the hospital curtain’
Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...
Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...
Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025!
Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪
Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪
💬 "It’s the sleepover from hell that no one prepared you for. The doctors have gone to medical school, the nurses have gone to uni, but what about the patients?"
@thattillyrose.bsky.social who has adrenal insufficiency shares her experiences👉 www.addisonsdisease.org.uk/Blog/be-pati... #WorldBookDay
@thattillyrose.bsky.social who has adrenal insufficiency shares her experiences👉 www.addisonsdisease.org.uk/Blog/be-pati... #WorldBookDay
March 6, 2025 at 4:35 PM
Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025!
Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪
Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪
I learnt so much on my @cbcreative.bsky.social memoir course and seeing how many successful authors had gone onto receive publishing deals after these courses, made me keep believing I could do it!
Curtis Brown are now offering a scholarship for a low income writer ⬇️
Curtis Brown are now offering a scholarship for a low income writer ⬇️
🚨 Apply for our Breakthrough Scholarship for Memoir & Narrative Non-Fiction Writers 🚨
One talented memoir or narrative non-fiction writer will win a free place on our Writing Memoir & Narrative Non-Fiction course, taught by @wylmenmuir.bsky.social!
Applications close this weekend:
One talented memoir or narrative non-fiction writer will win a free place on our Writing Memoir & Narrative Non-Fiction course, taught by @wylmenmuir.bsky.social!
Applications close this weekend:
Breakthrough Scholarship for Memoir Writers with Low Income
This scholarship will award one talented budding memoir or narrative non-fiction writer with limited financial means a place on our online Writing Memoir & Narrative Non-Fiction course.
www.curtisbrowncreative.co.uk
February 27, 2025 at 2:54 PM
I learnt so much on my @cbcreative.bsky.social memoir course and seeing how many successful authors had gone onto receive publishing deals after these courses, made me keep believing I could do it!
Curtis Brown are now offering a scholarship for a low income writer ⬇️
Curtis Brown are now offering a scholarship for a low income writer ⬇️
Reposted by Tilly Rose
📚 Tilly Rose – @thattillyrose.bsky.social has signed a deal with Monoray to publish Be Patient, a deeply moving and funny memoir about life, loss and finding humour behind the hospital curtain. Read more here:
Monoray to publish Be Patient by Tilly Rose
Monoray (part of the Octopus Publishing Group) has acquired the rights to publish Be Patient by “medical mystery” Tilly Rose.
www.thebookseller.com
February 17, 2025 at 11:31 AM
📚 Tilly Rose – @thattillyrose.bsky.social has signed a deal with Monoray to publish Be Patient, a deeply moving and funny memoir about life, loss and finding humour behind the hospital curtain. Read more here:
From Ig chapter 494: Scroll Hole
#scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness
#scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness
February 15, 2025 at 3:25 PM
From Ig chapter 494: Scroll Hole
#scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness
#scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness
When you meet another #patient who actually knows what you are going through 💛.
From Ig Chapter 485: Patient Pals
#chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife
From Ig Chapter 485: Patient Pals
#chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife
February 13, 2025 at 8:18 PM
When you meet another #patient who actually knows what you are going through 💛.
From Ig Chapter 485: Patient Pals
#chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife
From Ig Chapter 485: Patient Pals
#chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife
From Ig chapter 4️⃣6️⃣9️⃣ Bicycle:
#chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes
#chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes
February 10, 2025 at 11:23 PM
From Ig chapter 4️⃣6️⃣9️⃣ Bicycle:
#chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes
#chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes
From Ig chapter 497: Heal
#healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill
#healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill
February 9, 2025 at 7:30 PM
From Ig chapter 497: Heal
#healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill
#healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill
From Ig chapter 4️⃣8️⃣2️⃣: Belief
#chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia
#chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia
February 8, 2025 at 5:06 PM
From Ig chapter 4️⃣8️⃣2️⃣: Belief
#chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia
#chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia
From Ig chapter 4️⃣9️⃣6️⃣ ‘Comfort’:
#chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient
#chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient
February 7, 2025 at 4:35 PM
From Ig chapter 4️⃣9️⃣6️⃣ ‘Comfort’:
#chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient
#chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient
From Ig chapter 4️⃣9️⃣6️⃣:
#chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes
#chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes
February 3, 2025 at 6:07 PM
From Ig chapter 4️⃣9️⃣6️⃣:
#chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes
#chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes
From Ig chapter 4️⃣9️⃣4️⃣ Nurse:
#chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife
#chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife
February 2, 2025 at 2:18 PM
From Ig chapter 4️⃣9️⃣4️⃣ Nurse:
#chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife
#chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife
From Ig chapter 491:
#chronicillness #chronicallyill #chronicillnesswarriors #eds #ehlersdanlos #avcs #raredisease #friendship #kindnessquotes
#chronicillness #chronicallyill #chronicillnesswarriors #eds #ehlersdanlos #avcs #raredisease #friendship #kindnessquotes
January 30, 2025 at 4:34 PM
From Ig Chapter 495 - Cry
#chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife
#chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife
January 29, 2025 at 10:24 AM
From Ig Chapter 495 - Cry
#chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife
#chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife
💙💙💙
Check out a patient story @thattillyrose.bsky.social and Instagram @thattillyrose. She is heart wrenching and hopeful each day.
November 24, 2024 at 6:56 PM
💙💙💙
I share chapters on my 20 years of life as the #patient over on my Instagram www.instagram.com/thattillyros...
Maybe I’ll start sharing them here too 📖✨
Maybe I’ll start sharing them here too 📖✨
Tilly Rose │ Chronic Illness (@thattillyrose) • Instagram photos and videos
92K Followers, 6,410 Following, 523 Posts - See Instagram photos and videos from Tilly Rose │ Chronic Illness (@thattillyrose)
www.instagram.com
November 24, 2024 at 6:55 PM
I share chapters on my 20 years of life as the #patient over on my Instagram www.instagram.com/thattillyros...
Maybe I’ll start sharing them here too 📖✨
Maybe I’ll start sharing them here too 📖✨