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addisonsdisease.bsky.social
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
270 followers 110 following 260 posts
The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA
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addisonsdisease.bsky.social
⚠️ Following reports of Accord 10mg hydrocortisone tablets crumbling when split, Accord-UK Ltd have now issued a statement.

Read the full article and download our one-page document to share with your healthcare team ➡️ www.addisonsdisease.org.uk/News/tablet-prices-smaller-doses
Purple update graphic from the Addison's Disease Self-Help Group (ADSHG). The bold heading reads “UPDATE” and the main text underneath says: “Statement from Accord-UK Ltd on quality issues with 10mg hydrocortisone tablets.” Below this, the text reads: “Visit our website for full article & download our one-page document for your GP.” Two images appear at the bottom, which are of 10mg hydrocortisone tablet boxes. The website address www.addisonsdisease.org.uk/news is underneath the images and the circular logo for the Addison's Disease Self-Help Group is at the top.
January 29, 2026 at 10:30 AM
addisonsdisease.bsky.social
Early Bird Tickets for our first 2026 Member Get-Together are available 🎉

If you're affected by Addison's or adrenal insufficiency, or support someone who is, come along!

📆 Sat 21 Mar 2026, 1-6pm
📍 Reading
🎟️ RSVP 🔗‍️ www.addisonsdisease.org.uk/Event/reading-member-get-together-21-march-2026
Reading Member Get-Together: 21 March 2026 - 21/03/2026 13:00:00
Join the first of our Member Get-Togethers in 2026, to be held just outside Reading on Saturday 21 March. We very much look forward to seeing you there!
www.addisonsdisease.org.uk
January 26, 2026 at 8:35 AM
addisonsdisease.bsky.social
You've got mail! Our Winter Magazine is here! 📬 Perfect weekend reading, it’s packed with news, personal stories & expert, trusted articles.

Paper copies are in the post! To read online, ADSHG members, please check your emails or visit our website ⤵️
https://loom.ly/GLuEPvY
Magazine - Winter 2026
Welcome to our latest members' magazine - available for download now! Packed with news, views and advice from the Addison's and adrenal insufficiency community.
www.addisonsdisease.org.uk
January 23, 2026 at 12:31 PM
addisonsdisease.bsky.social
Addison’s disease and adrenal insufficiency are rare life-threatening endocrine conditions. The adrenal glands cease to function, no longer producing sufficient steroid hormones which are essential for the functioning of the body.

Learn more ⬇️
www.addisonsdisease.org.uk/what-is-addisons-disease
Illustrated diagram of the human body showing internal organs, with a highlighted close-up of the kidneys and adrenal glands. Text at the bottom reads, “What are Addison’s disease & adrenal insufficiency?” with the Addison’s Disease Self-Help Group (ADSHG) white logo. The background is teal. Teal-background educational infographic titled “What are Addison’s disease & adrenal insufficiency?” There is a large illustrated diagram of a human torso with labelled organs including the lungs, heart, liver, stomach, kidneys, intestines and bladder. The adrenal glands are highlighted above the kidneys with a note stating that each one is about the size of an acorn. Includes the Addison’s Disease Self-Help Group (ADSHG) white logo and the following website address: www.addisonsdisease.org.uk. There is a small image of an informational leaflet from the ADSHG with the title: “What are Addison’s disease & adrenal insufficiency?”
January 21, 2026 at 10:01 AM
addisonsdisease.bsky.social
Meet members in Perth this Saturday 💜

Join our wonderful volunteer host, Louise, for a warm and welcoming ADSHG Members' Social Meeting in Scotland.

📅 Saturday 24 January, 11am - 1pm
📍 Perth, Scotland
👥 ADSHG Members Only

👉 RSVP here 🔗 https://www.addisonsdisease.org.uk/perth-24-jan
Social Meeting: Perth (24 January) - 24/01/2026 11:00:00
Join Louise at her ADSHG Members Social Meeting in Perth on Saturday 24 January.
www.addisonsdisease.org.uk
January 20, 2026 at 9:30 AM
addisonsdisease.bsky.social
Last chance to sign up for our next free online Paramedic Training session ⏰

Learn more about Addison's, adrenal insufficiency, and the emergency management of adrenal crisis.

📅 Mon 26 Jan 2026, 1-2.15pm
⬇️ Register now
www.addisonsdisease.org.uk/Event/paramedic-training-26-january-2026

#ParaCPD
Paramedic Training: 26 January 2026 - 26/01/2026 13:00:00
A Zoom session focusing on adrenal crisis and the emergency management of steroid dependency for patients with Addison's disease and adrenal insufficiency.
www.addisonsdisease.org.uk
January 19, 2026 at 8:01 AM
addisonsdisease.bsky.social
There’s still time to join our Steps for Addison’s Awareness fundraising challenge this February 👣

✅ Sign up now 🔗 www.justgiving.com/campaign/stepsforaddisons26

Together, we can make a difference - one step at a time.
January 17, 2026 at 10:00 AM
addisonsdisease.bsky.social
We want to say thank you to Thrive Fulfilment for their professionalism and support with our online shop 🛒

In 2025, they processed 3,010 orders on our behalf - with items varying from leaflets and keyrings, to injection kits and welcome packs!

🛍️ Visit our shop 👉 www.addisonsdisease.org.uk/shop
A bold white headline on a purple box at the top reads, “THANK YOU THRIVE!” and underneath it says, “For your continued support with our online shop.” In the centre, there is a cardboard box filled with various medical alert and emergency items for Addison’s disease and adrenal insufficiency. The items include a small emergency injection kit, medical alert cards, a thank-you note, a mug with the ADSHG logo, information leaflets, an ADSHG notebook, an ADSHG pen, a medical alert keyring, a pillbox keyring, and wristbands labelled “Risk of Adrenal Crisis.” The background is a faded and enlarged version of the Addison's Disease Self-Help Group logo. The website address “www.addisonsdisease.org.uk/shop” is displayed at the bottom, next to an icon of a shopping trolley. Inside the trolley is the ADSHG logo.
January 14, 2026 at 9:30 AM
Reposted by Addison's Disease Self Help Group (ADSHG)
aace.org.uk
. @aace.org.uk is supporting further excellent, free #adrenalinsufficiency information and training sessions hosted by @addisonsdisease.bsky.social UK - available for all #paramedics and clinical #ambulance personnel.

Register for the next one (Jan 26) at addisonsdisease.org.uk/Event/parame...
January 12, 2026 at 5:13 PM
addisonsdisease.bsky.social
Get social in Shoreham-by-Sea 🤗

Join our wonderful volunteer host, Wendy, for a warm & welcoming ADSHG Members' Social Meeting by the sea.

📅 Saturday 17 January, 10.30am - 12.30pm
📍 Shoreham-by-Sea
👥 ADSHG Members Only

💫 RSVP 🔗 https://www.addisonsdisease.org.uk/Event/shoreham-by-sea-jan26
Social Meeting: Shoreham-by-Sea (17 January) - 17/01/2026 10:30:00
Join Wendy at her ADSHG Members Social Meeting in Shoreham-by-Sea on Saturday 17 January.
www.addisonsdisease.org.uk
January 13, 2026 at 9:01 AM
addisonsdisease.bsky.social
Our membership is open to all affected by Addison’s or adrenal insufficiency and includes key benefits to support you 🤝

📬 Welcome pack
💬 Online forum
📖 Magazine & newsletters
📨 Members-only emails
🔬 Take part in research
⏰ Early access to events

Join us 🔗 www.addisonsdisease.org.uk/join-us
Teal background graphic with the Addison's Disease Self-Help Group logo at the top. Large white text reads: “Why should you become a member of our charity?” Below, smaller handwritten-style text says “Swipe across” with a right-pointing arrow. Teal background graphic featuring a Polaroid-style photo of four people seen from behind. They're standing side by side and pointing towards their backs to highlight the white Addison's Disease Self-Help Group t-shirts they're wearing. Below the photo, white text reads: “Be part of a supportive community that comes together to improve the quality of life for those with adrenal insufficiency, including Addison’s.” Teal background graphic with a white line illustration of a megaphone. Below the illustration, white text reads: “A stronger voice for our charity, enabling us to fund research, produce free publications, and work to promote better medical understanding.” Teal background graphic featuring a Polaroid-style photo of a range of products from the Addison's Disease Self-Help Group shop. The products in the image include: the Addison's magazine (summer 2025 issue), an ADSHG steroid emergency card, an NHS steroid emergency card, an ADSHG medical alert keyring, an ADSHG pen, a 'Managing your Addison's disease or adrenal insufficiency' leaflet, the ADSHG adrenal crisis guidelines and the ADSHG member welcome pack. Above the photo, white text reads: “Get trusted & expert information through our Welcome Pack, magazines, newsletters, online forum & events.”
January 12, 2026 at 12:01 PM
addisonsdisease.bsky.social
Happy New Year! Start 2026 with a meaningful goal by joining our Steps for Addison’s Awareness fundraising challenge this February 👣

✅ Sign up today and make a difference, one step at a time 🔗 https://www.justgiving.com/campaign/stepsforaddisons26
Steps for Addison's Awareness
To celebrate Rare Disease Day 2026, we’re inviting you to take part in a special fundraising challenge to raise awareness for Addison’s disease and adrenal insufficiency: the ‘Steps for Addison’s Awareness’ Challenge!
www.justgiving.com
January 9, 2026 at 9:01 AM
addisonsdisease.bsky.social
No one likes being unwell, but if you live with Addison’s or adrenal insufficiency & are unwell, you need more than just a duvet day! It's important to follow the Sick Day Rules.

Refresh your memory & share, so if you become unwell, you know what to do ⤵️
https://loom.ly/0Xz-ICY
Boxes and blister packs of Hydrocortisone tablets (2.5 mg, 5 mg, and 10 mg) are arranged under a duvet in a bed. At the top right, bold text reads "Sick Day Rules" with "Sick Day" in teal and "Rules" in purple.
January 8, 2026 at 12:01 PM
addisonsdisease.bsky.social
🧵1 of 3 | We can hardly believe we’re at the end of the year!

Before we move into 2026, we want to celebrate our amazing community. Thank you for engaging with our content - you make everything we do worthwhile💜

Enjoy this special edition of the ADSHG Wrapped ✨ www.addisonsdisease.org.uk/join-us
Purple background with the Addison's Disease Self-Help Group logo at the top, followed by "Addison's Disease Self-Help Group Wrapped". Bold white text across the page reads "2025" The website www.addisonsdisease.org.uk is written at the bottom with a black arrow suggesting the reader should swipe to the next image. Four people stand with their backs to the camera, wearing white charity t-shirts with the Addison's Disease Self-Help Group logo on the back. They are raising their arms to point at the logo on their backs On a teal background, the text at the bottom reads "18K Website Visits Per Month" with a globe icon and the ADSHG logo. A smiling couple sits in an audience, with one person raising a hand. At the bottom on a purple background is the text: “2489 ADSHG Members Supported,” with the ADSHG logo. A person in an NHS hospital bed holds a red ADSHG Hospital Folder labelled "Life-threatening condition, Risk of Adrenal Crisis." A teal banner below states "937 paramedics EMTS and students trained in adrenal crisis management", with the ADSHG logo.
December 30, 2025 at 7:00 AM
addisonsdisease.bsky.social
Here's our Christmas card to you. Spreading joy, wellbeing, & awareness this festive season❄️ From the Addison's Disease Self-Help Group (ADSHG) 💜

Help us raise awareness of #AdrenalInsufficiency, a rare, life-threatening condition. Learn more & share➡️ www.addisonsdisease.org.uk/festive-wishes
December 24, 2025 at 8:01 AM
addisonsdisease.bsky.social
The ADSHG Connection, our newsletter for healthcare professionals, is out!

🚑 @rcem.ac.uk & Time Critical Meds
📊ADSHG impact
🎯Our 2026 focus & how to help
🔗Easy patient signposting

Read online ➡️ https://loom.ly/-93fPww | Please share to help spread the word!
Teal promotional graphic for The ADSHG Connection, a quarterly e-newsletter supporting Addison’s disease and adrenal insufficiency patients. White text reads “The ADSHG Connection – The quarterly e-newsletter helping you to support your Addison’s and adrenal insufficiency patients.” A large purple “Read now” button with a hand cursor appears in the centre. Text below lists “In this December 2025 issue:” followed by bullet points: RCEM & time critical medications; ADSHG impact in 2025; Get involved: injection training; Easy signposting to the ADSHG; Find our most popular resources. A circular illustration in the bottom right shows a winter scene with the ADSHG mascot in the middle and the words “Spreading joy, wellbeing and adrenal insufficiency awareness from the ADSHG.”
December 22, 2025 at 11:01 AM
addisonsdisease.bsky.social
🎄 Before we sign off until the new year, we want to leave you with all the information you need on our festive closures, as well as where to find support if you need it.

We also want to say thank you for being part of the ADSHG, and we wish you and your loved ones a peaceful festive season 💜
Festive announcement titled “Festive Hours & Closures”, decorated with a string of colourful Christmas lights across the top. The sentence under the headline explains that the Addison’s Disease Self-Help Group (ADSHG) staff and volunteers will be taking a short break over the festive season. The first section in the main body of text states that the ADSHG team, including enquiries and membership services, closes on Friday 19 December 2025 and reopens on Monday 5 January 2026. The section below this titled “Online Charity Shop” states that orders received by 5pm on 23 December 2025 will be packaged and dispatched but will arrive after Christmas, and that no orders will be processed on UK Bank Holidays during the festive period. The last section, “Online Support Forum & Information”, notes that the online forum, website information and publications are available 24/7. It encourages visitors to connect with others over the festive break and directs those that are unsure where to start to the “SOS – Sanctuary of Support” page. To the right of the main section of text is the circular ADSHG logo with the word “Supporting” wrapped around it twice. Below this is a shopping trolley with the ADSHG logo inside, wearing a Santa hat. At the bottom is a festive message from all at the ADSHG wishing everyone and their loved ones a peaceful festive season. Underneath this is the website address for the Addison's Disease Self-Help Group: www.addisonsdisease.org.uk.
December 19, 2025 at 9:01 AM
addisonsdisease.bsky.social
On our blog, we share the findings of vital research, which explores the experiences of people with adrenal insufficiency in managing adrenal crisis.

Read more and find out what this means ⬇️ www.addisonsdisease.org.uk/blog/behind-the-research-factors-influencing-self-management-of-adrenal-crisis
Behind the Research: factors influencing self-management of adrenal crisis
Aldons Chua, Endocrine Clinical Nurse Specialist, updates us on his published research looking at the factors influencing the self-management of adrenal crisis in patients with adrenal insufficiency.
www.addisonsdisease.org.uk
December 18, 2025 at 9:30 AM
addisonsdisease.bsky.social
Our online forum is here to support you 🤝

Find your people in our community and connect with those who think and feel the same as you when it comes to adrenal insufficiency! Share experiences, make new friends and get help and advice.

Join the forum here ➡️ www.addisonsdisease.org.uk/online-forum
Informational graphic from the Addison’s Disease Self-Help Group (ADSHG) reminding users about their online forum. The background is teal with the headline “Our Online Forum is here to support you.” A graphic of a smartphone shows the ADSHG online forum webpage. Above the smartphone are two icons, each featuring a white heart in a red speech bubble. The icon on the left is slightly bigger in size than the one on the right. To the right of the smartphone, there is some text which highlights three key benefits of the online forum: “Vibrant community of ADSHG members,” “Share experiences and ask questions,” and “Get advice from those who understand.” Each bullet point is in bold black text on a white rounded text box. The circular colour logo for the ADSHG appears in the top right corner. At the bottom, in the format of a search bar with a small magnifying glass icon, is the following website address: www.addisonsdisease.org.uk/online-forum.
December 17, 2025 at 9:30 AM
addisonsdisease.bsky.social
🧵1/3: Members have reported that Accord 10mg hydrocortisone tablets can crumble when split, raising concerns that they are not receiving the right dose.

Not everyone uses this brand, so it may not affect you. If you are having issues raise a Yellow Card report via 🔗 https://loom.ly/AkLdeC0
A collage of hydrocortisone tablet boxes from different manufacturers, showing various strengths including 10 mg, 5 mg and 2.5 mg. The packaging is in multiple colours (grey, purple and white), each labelled “Hydrocortisone Tablets,” with braille on the boxes and tablet counts of 30 displayed.
December 16, 2025 at 1:30 PM
addisonsdisease.bsky.social
Does your Christmas tree promote steroid-dependent patient safety?!

We love this tree by the Endocrine Specialist Nurses at @sth.nhs.uk, with homemade NHS Steroid Emergency Card decorations🎄

Learn more ➡️ www.addisonsdisease.org.uk/steroid-emergency-cards
A decorated Christmas tree standing in a hospital. The tree is lit with warm white lights and decorated with red and gold baubles, tinsel, and several NHS Steroid Emergency Cards hanging as ornaments. A gold star sits on top of the tree. In the bottom left corner, on top of the Christmas tree photo, is an image of the NHS Steroid Emergency Card. A close-up view of an NHS Steroid Emergency Card hanging from a Christmas tree branch with a gold ribbon. The tree is also decorated with lights and red and gold baubles. The website www.addisonsdisease.org.uk/steroid-emergency-cards is shown at the bottom of the image
December 12, 2025 at 9:01 AM
addisonsdisease.bsky.social
Cases of flu in hospitals are still rising, so get your free NHS flu jab to reduce your risk of going to hospital whilst it's so busy.

Dr Prete explains the importance for people with steroid dependency to reduce the risk of adrenal crisis 👉https://www.addisonsdisease.org.uk/news/flu-vaccine-2025
December 11, 2025 at 7:02 PM
addisonsdisease.bsky.social
Our ‘Buy a bauble’ campaign is in full swing 🎄

Thanks to everyone who has already donated. If you haven’t had a chance yet, there’s still time! Every donation adds a virtual bauble to our tree & brings us closer to our goal.

💫 Buy a bauble today: https://www.justgiving.com/campaign/buyabauble25
Buy a bauble 2025
This Christmas, you can make a difference by adding a bauble to our virtual charity tree! For each donation, we’ll hang a beautiful virtual bauble on the tree, directly supporting our charity.
www.justgiving.com
December 11, 2025 at 10:30 AM
addisonsdisease.bsky.social
On #NobelPrizeDay we’re celebrating the amazing things that happen when we work together.

🧬 The work of Reichstein, Kendall & Hench continues to inspire our commitment to fund endocrinology research. Learn more about our grants & how to apply 👉 www.addisonsdisease.org.uk/research
A graphic titled “Today in History” featuring three black-and-white portrait photographs from the Nobel Foundation archive. The photograph on the left is of Edward Calvin Kendall, in the middle is Tadeus Reichstein, and on the right is Philip Showalter Hench. Below the photos, on a grey background, the headline reads: “The Nobel Prize in Physiology or Medicine 1950”. Underneath the headline is the quote: “Discoveries relating to the hormones of the adrenal cortex, their structure and biological effects.” At the bottom is the Addison’s Disease Self-Help Group (ADSHG) white circular logo and the website URL: www.addisonsdisease.org.uk/research. At the bottom right is a circular, illustrated icon showing the adrenal glands and kidneys.
December 10, 2025 at 10:01 AM
addisonsdisease.bsky.social
The festive season can feel overwhelming, especially when you’re also dealing with adrenal insufficiency.

For support, watch our Wellbeing Webinar, in collaboration with @raremindsuk.bsky.social ⬇️
www.addisonsdisease.org.uk/news/wellbeing-webinar-with-rareminds
Watch back! Wellbeing Webinar with Rareminds
Watch back our webinar in collaboration with Rareminds, exploring the emotional challenges of living with adrenal insufficiency & learn practical ways to support your wellbeing.
www.addisonsdisease.org.uk
December 9, 2025 at 9:01 AM