That Marfan Girl
thatmarfangirl.bsky.social
That Marfan Girl
@thatmarfangirl.bsky.social
#MarfanSyndrome | #POTS | #ChronicPain | #DuralEctasia | #PectusExcavatum
Alt text: A blonde woman faces the camera, flipping through a large set of paper. Text says:

"POV: you're working on your disability claim and print off last year's Dr appointment notes.
Yes they're double sided
No they don't include physical therapy notes"
February 19, 2025 at 6:44 PM
I'm glad you're doing well! That diagnosis story is similar to my family. My dad was 35 when diagnosed. My brother & I were immediately tested and I was the lucky one.
November 18, 2024 at 4:05 PM
Oh neat! I hope your friend is doing okay!

But yes, great to meet you too!
October 18, 2024 at 11:34 PM
Thanks for the tip! 😊
October 18, 2024 at 8:58 PM
Ooh thanks for sharing this list!
October 18, 2024 at 4:23 PM