That Marfan Girl
thatmarfangirl.bsky.social
That Marfan Girl
@thatmarfangirl.bsky.social
#MarfanSyndrome | #POTS | #ChronicPain | #DuralEctasia | #PectusExcavatum
This isn't my first time going through this process, so hopefully I can get reinstated without too much trouble. 😩 So yeah! Cheers to a year's worth of MyChart notes. (Excluding like 30 PT appointments)

#chronicillness #disability #marfan #chronicpain
February 19, 2025 at 6:42 PM
Hello Blue Sky! I'm Courtney, a disabled, chronically ill gal bringing awareness to Marfan Syndrome, POTS, and all the fun comorbidities that go with them.

Looking for more chronically ill folks to connect with!
October 17, 2024 at 10:40 PM