KarenG
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tenaciousmumma.bsky.social
KarenG
@tenaciousmumma.bsky.social
330 followers 130 following 8 posts
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
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Reposted by KarenG
thereforme.bsky.social
docs.google.com/document/d/1...
Write to your MP
Write to your MP Substack: https://www.thereforme.uk/ Linktree: https://linktr.ee/ThereForME About #ThereForME #ThereForME is a campaign led by patients and carers, calling for an NHS that’s there...
docs.google.com
November 13, 2025 at 9:48 AM
tenaciousmumma.bsky.social
@libdemcam.bsky.social it would be great if you could attend 🙏
September 3, 2025 at 2:41 PM
tenaciousmumma.bsky.social
Yes please
February 18, 2025 at 11:35 AM
tenaciousmumma.bsky.social
That’s interesting Paula. Have been thinking about buying one too. Which one did you buy and would it power other electrical appliances - like an oil filled radiator for example?
January 23, 2025 at 4:54 PM
Reposted by KarenG
nikosuvisto.com
Those, who so much insist that it’s all about not trying enough, have not tried as much in their entire lives, as a very severe #pwME tries not to deteriorate further and keep themselves alive. That bullshit narrative makes me so angry. Much respect to Karen and Sophia for sharing their story. 3/3
January 7, 2025 at 1:34 PM
tenaciousmumma.bsky.social
Deleted. Sorry Emma x
December 13, 2024 at 1:26 PM
Reposted by KarenG
padpadpadpad.bsky.social
Another difficult visit to Soph's. Tried to describe how it feels to watch her suffering and being unable to hold her. And how we maintain closeness despite her extreme pain.

18/11/2024 When was the last time we kissed?

#pwme #mecfs #severeME

padpadpadpad.netlify.app/posts/caring...
November 19, 2024 at 1:24 PM
tenaciousmumma.bsky.social
Can I be added please?
November 15, 2024 at 6:47 PM