Team Telomere
@teamtelomere.bsky.social
Nonprofit organization
International advocacy for those treating, researching, and affected by Telomere Biology Disorder. #TeamTelomere #DyskeratosisCongenita
International advocacy for those treating, researching, and affected by Telomere Biology Disorder. #TeamTelomere #DyskeratosisCongenita
Today and every day, we honor veterans in our community who’ve served with strength and dedication. This #VeteransDay, we celebrate Damian, Lisa, Nicole & Mike for their service to our country and the TBD community. 💙
#HonoringAllWhoServed #TeamTelomere
#HonoringAllWhoServed #TeamTelomere
November 11, 2025 at 8:57 PM
Today and every day, we honor veterans in our community who’ve served with strength and dedication. This #VeteransDay, we celebrate Damian, Lisa, Nicole & Mike for their service to our country and the TBD community. 💙
#HonoringAllWhoServed #TeamTelomere
#HonoringAllWhoServed #TeamTelomere
Throughout #Telomere Biology Disorder #Awareness Month, we are dedicating Fridays to spreading education and awareness. Each “Fact Friday,” we’ll highlight important science and how ongoing #research connects to care and advocacy. Today we are talking about what #telomeres are - check out our video!
November 8, 2025 at 1:58 AM
Throughout #Telomere Biology Disorder #Awareness Month, we are dedicating Fridays to spreading education and awareness. Each “Fact Friday,” we’ll highlight important science and how ongoing #research connects to care and advocacy. Today we are talking about what #telomeres are - check out our video!
Last week our Executive Director, Katie Stevens, was invited to attend the inaugural Galien Patient Summit in New York City. Katie was invited for our work on building international Centers of Excellence and our relationship with the Chan Zuckerberg Initiative.
November 6, 2025 at 11:32 PM
Last week our Executive Director, Katie Stevens, was invited to attend the inaugural Galien Patient Summit in New York City. Katie was invited for our work on building international Centers of Excellence and our relationship with the Chan Zuckerberg Initiative.
Over 120 attendees from 11 countries came together for our Micro Meeting and Cocktails & Chromosomes event - diving deep into diagnosis, management, and driving actionable progress for the TBD community. 🧬
October 30, 2025 at 7:02 PM
Over 120 attendees from 11 countries came together for our Micro Meeting and Cocktails & Chromosomes event - diving deep into diagnosis, management, and driving actionable progress for the TBD community. 🧬