#TeamTelomere #TBDawareness #TelomereBiologyDisorders #CommunityStories #RareTogether #GivingTuesday #TBDCommunity #TBDawareness #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #CommunityStrong #DyskeratosisCongenita

We cannot wait to fill The Good News Hour with your stories and celebrate the good happening all around us. Good news travels fast - thanks to YOU!

Want to add to The Good News Hour? Create your own Giving Tuesday fundraising page. Your page becomes a moment of good to share with your networks and with the community on Giving Tuesday: teamtelomere.networkforgood.com/projects/262...

Whether it’s something big or something beautifully ordinary, your experience matters.

We invite you to be part of this special day! Submit your story, highlight, or moment of good. Fundraising pages created by 11/16 will be included in our Giving Tuesday news hours. Top fundraiser will be given a round trip ticket to our upcoming Summit 2026!

Throughout the day on Giving Tuesday, our “news anchors” will be sharing stories of hope and impact from across our community. These moments will remind us how far we have come and power what comes next.

Introducing our Giving Tuesday theme: The Good News Hour! A full-day campaign where each hour shines a light on the hope, progress, and community that define the Telomere Biology Disorder community. Good is happening constantly in our community, and it deserves to be seen.

We will always be so thankful for the mission strengthening grant we received from CZI, which truly shows that an investment in Team Telomere is an investment in science. Read the impact report here: chanzuckerberg.com/blog/2025-ra...

The day ended with an evening at the Museum of Natural History, honoring Michael J. Fox for his tireless and honorable work in Parkinson's Disease. We were honored to share the same space and to stand shoulder to shoulder with all patient advocates working for better tomorrows.

The agenda was beautifully organized to keep the patient voice at the front, spanning accessibility, treatment, the use of AI in research and patient care, and longevity as a key topic of interest. The grounding theme throughout was, ‘no decision for me, without me’.

#TeamTelomere #CitizenHealth #AIAdvocate #TBDawareness #RareTogether #TelomereBiologyDisorders #TelomereBiologyDisorders #TBDCommunity #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita

Those who try AI Advocate by November 30 will also be entered into the $5,000 Caregiver Recharge Giveaway. Not yet signed up? No problem! It takes less than 5 minutes all from the comfort of home!

Learn more and sign up today at www.citizenhealth/unlock

AI Advocate uses your real health records to give you fast and tailored insights, so you can feel more informed and confident in your care decisions.

With AI Advocate, you can ask questions like:
• What does this medical term mean?
• How do I monitor progress over time?
• What side effects has my child experienced from past medications?

Team Telomere staff will be on hand to provide tech support and help facilitate connections. We look forward to seeing you there. Register today! teamtelomere.org/resources/co...

This open discussion invites you to ask questions about any aspect of Telomere Biology Disorders, from diagnosis and management to the latest research efforts. It’s a unique chance to hear from multiple TBD experts in one session and gain insight into the evolving landscape of TBDs.