Swimming Alone
swimming-alone.bsky.social
Swimming Alone
@swimming-alone.bsky.social
Disabled with myasthenia gravis❄️. Formerly an open water swimmer, currently housebound. Enthusiastic dog mom. Love Chicago but had to leave due to disability.
I think meditation apps are #ablist and exclude other groups like #poverty #violence and #addiction. What do you think? I think they are superficial and don't promote the radical acceptance of mindfulness.
March 24, 2025 at 2:04 PM
A big part of living with #myastheniagravis is acceptance.
March 23, 2025 at 3:15 PM
I wake up with anxiety like a gaping hole in my chest. As I become conscious, my body regrets walking up, being alive. #myastheniagravis #anxiety #depression
March 23, 2025 at 12:26 PM
Reposted by Swimming Alone
🩵 Charlie Stands with Myasthenia Gravis (MG) Patients

Today, we raise awareness and stand in solidarity with those living with Myasthenia Gravis (MG)—a rare neuromuscular disorder that affects strength and mobility.
#MGAwareness #PeopleCareAI #StandWithMG #MyastheniaGravis #ChronicIllnessAwareness
February 28, 2025 at 4:30 PM
Yesterday I took my longest continuous walk to date, since becoming disabled. I got down to the lake with my dog, it was frozen and beautiful and I felt so great getting out of the house and off the property. Today I'm in so much pain, so much inflammation, my nose is stuffed up. #myastheniagravis
February 3, 2025 at 2:39 PM
Nobody talks about how scary and emotional #healing is. #myastheniagravis #vyvgart
January 31, 2025 at 9:00 PM
I'm wearing real shoes for the first time in 2+years for my first PT appointment. I've only been wearing moccasins and slippers. #myastheniagravis #disability #vyvgart
January 31, 2025 at 6:53 PM
I'm sick of being smarter than my doctors. I should not have to tell a back doctor that a scoliosis X-ray needs to be performed standing up. #chronicillness #scoliosis
January 24, 2025 at 3:59 AM