Sumaira 🤍
@sumairaflower.bsky.social
🌺 Founder of The Sumaira Foundation (TSF)👸🏽 Miss Bangladesh-USA 2015 🇧🇩 views are my own
We don’t let our diagnoses stop us from doing what we love - DANCING! 💃🏽🕺🏼 Happy #NMOSD & #MOGAD awareness months
When #raredisease besties link up: San Francisco Edition 🌁
Thank you to everyone who attended, supported and participated in TSF’s SF Patient Day for #NMOSD & #MOGAD - it was a perfect day 🤩
Thank you to everyone who attended, supported and participated in TSF’s SF Patient Day for #NMOSD & #MOGAD - it was a perfect day 🤩
March 30, 2025 at 7:22 PM
Reposted by Sumaira 🤍
#MedSky Vaccines play a crucial role in protecting immunocompromised patients & help prevent the spread of diseases.
Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social
To register, visit us02web.zoom.us/webinar/regi...
Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social
To register, visit us02web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: Immunizations for the Immunocompromised. After registering, you will receive a confirmation email about joining the webinar.
Vaccines play a crucial role in protecting immunocompromised patients, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious dis...
us02web.zoom.us
March 12, 2025 at 1:16 PM
#MedSky Vaccines play a crucial role in protecting immunocompromised patients & help prevent the spread of diseases.
Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social
To register, visit us02web.zoom.us/webinar/regi...
Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social
To register, visit us02web.zoom.us/webinar/regi...
Reunited with my Saudi brothers & collaborators, @drsaljarallah.bsky.social and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25
February 16, 2025 at 8:25 AM
Reunited with my Saudi brothers & collaborators, @drsaljarallah.bsky.social and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25
Reposted by Sumaira 🤍
阖家平安，巳巳如意。蛇🐍年兴旺，幸福绵长！🧧 🇨🇳❣️#lunarnewyear #springfestival
January 29, 2025 at 4:10 PM
阖家平安，巳巳如意。蛇🐍年兴旺，幸福绵长！🧧 🇨🇳❣️#lunarnewyear #springfestival
#NeuroSky / #MedSky - follow @neurotutto.bsky.social from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including #NMOSD, #MOGAD, #myastheniagravis and more. Welcome Raffaele! 🦋
January 29, 2025 at 3:47 PM
#NeuroSky / #MedSky - follow @neurotutto.bsky.social from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including #NMOSD, #MOGAD, #myastheniagravis and more. Welcome Raffaele! 🦋
Reposted by Sumaira 🤍
“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with #NMOSD and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira
#TSF_moveforNMOG
#TSF_moveforNMOG
January 22, 2025 at 5:33 PM
“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with #NMOSD and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira
#TSF_moveforNMOG
#TSF_moveforNMOG
Reposted by Sumaira 🤍
🌎 How common is #MOGAD worldwide?
This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄
For more research summaries, visit www.sumairafoundation.org/research-summaries
This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄
For more research summaries, visit www.sumairafoundation.org/research-summaries
January 8, 2025 at 2:35 PM
🌎 How common is #MOGAD worldwide?
This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄
For more research summaries, visit www.sumairafoundation.org/research-summaries
This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄
For more research summaries, visit www.sumairafoundation.org/research-summaries
Reposted by Sumaira 🤍
TSF is pleased to welcome Dr. Eoin Flanagan from Mayo Clinic to join TSF’s international Medical Advisory Board.
He has expertise in #AE, myelitis, #MS, #NMOSD, #MOGAD & paraneoplastic neurologic disorders.
To learn more about Dr. Flanagan: www.sumairafoundation.org/welcome-dr-e...
#NeuroSky
He has expertise in #AE, myelitis, #MS, #NMOSD, #MOGAD & paraneoplastic neurologic disorders.
To learn more about Dr. Flanagan: www.sumairafoundation.org/welcome-dr-e...
#NeuroSky
December 11, 2024 at 12:57 PM
#NeuroSky / #MedSky - please join me in welcoming 🇧🇪 @drbwillekens.bsky.social, neurologist and researcher passionate about #MS and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋
December 8, 2024 at 8:22 PM
#NeuroSky / #MedSky - please join me in welcoming 🇧🇪 @drbwillekens.bsky.social, neurologist and researcher passionate about #MS and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋
Reposted by Sumaira 🤍
What a great day organized today in Verona by @saramariotto.bsky.social ! All about central and peripheral nervous system autoimmunity! Learned so much! eolocongressi.it/wp-content/u...
eolocongressi.it
December 7, 2024 at 2:57 AM
What a great day organized today in Verona by @saramariotto.bsky.social ! All about central and peripheral nervous system autoimmunity! Learned so much! eolocongressi.it/wp-content/u...
Reposted by Sumaira 🤍
December 7, 2024 at 10:37 AM
Reposted by Sumaira 🤍
T 💚 S 🤍 F ❤️
December 6, 2024 at 10:01 PM
T 💚 S 🤍 F ❤️
What a gift to work with people you love 💗 congratulations @saramariotto.bsky.social on another successful meeting! 🧪 🇮🇹 🧬 🧫
#NeuroSky #NMOSD #MOGAD
#NeuroSky #NMOSD #MOGAD
December 6, 2024 at 1:59 PM
What a gift to work with people you love 💗 congratulations @saramariotto.bsky.social on another successful meeting! 🧪 🇮🇹 🧬 🧫
#NeuroSky #NMOSD #MOGAD
#NeuroSky #NMOSD #MOGAD
#NeuroSky / #MedSky follow @amykunchok.bsky.social; she has entered the chat!
Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗
Welcome to Bluesky, Amy! 🦋
Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗
Welcome to Bluesky, Amy! 🦋
December 6, 2024 at 9:31 AM
#NeuroSky / #MedSky follow @amykunchok.bsky.social; she has entered the chat!
Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗
Welcome to Bluesky, Amy! 🦋
Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗
Welcome to Bluesky, Amy! 🦋
Reposted by Sumaira 🤍
We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by @saramariotto.bsky.social & Dr. Sergio Ferrrari!
As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky
As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky
December 6, 2024 at 9:18 AM
We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by @saramariotto.bsky.social & Dr. Sergio Ferrrari!
As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky
As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky
Reposted by Sumaira 🤍
Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira.
Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky #neuromyelitisoptica
Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky #neuromyelitisoptica
Case #24: Sumaira
Podcast Episode · Symptomatic: A Medical Mystery Podcast · S3 E6 · 44m
podcasts.apple.com
December 4, 2024 at 10:30 PM
Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira.
Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky #neuromyelitisoptica
Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky #neuromyelitisoptica
Reposted by Sumaira 🤍
🏃🏿♀️ This #Thanksgiving, we're spotlighting Marion, #NMOSD patient, TSF Ambassador of Illinois, marathoner & believer.
Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi...
#NeuroSky
Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi...
#NeuroSky
November 28, 2024 at 1:16 PM
🏃🏿♀️ This #Thanksgiving, we're spotlighting Marion, #NMOSD patient, TSF Ambassador of Illinois, marathoner & believer.
Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi...
#NeuroSky
Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi...
#NeuroSky
Leaving Paris feeling proud of @thesumairafdn.bsky.social France 🇫🇷 for organizing another impactful weekend for the #NMOSD / #MOGAD community.
Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾
May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛
Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾
May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛
November 25, 2024 at 11:16 AM
Leaving Paris feeling proud of @thesumairafdn.bsky.social France 🇫🇷 for organizing another impactful weekend for the #NMOSD / #MOGAD community.
Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾
May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛
Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾
May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛
#MedSky / #NeuroSky, follow @drsaljarallah.bsky.social ! 🇸🇦Dr. Aljarallah is a neuroimmunologist (trained at Hopkins) + an Assistant Professor at King Saud University in Riyadh in the Kingdom of Saudi Arabia focused on #NMOSD, #MOGAD, #AE, #MS & other rare neuroimmune conditions. مرحبا سلمان! 🙌🏽
November 25, 2024 at 9:38 AM
#MedSky / #NeuroSky, follow @antojm.bsky.social ! 🇫🇷Antony is the Head of Association Management (Congrex) & #ECTRIMS Executive Manager.
ECTRIMS is the largest global annual meeting dedicated to #MS, #NMOSD, #MOGAD & other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠
ECTRIMS is the largest global annual meeting dedicated to #MS, #NMOSD, #MOGAD & other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠
November 25, 2024 at 8:39 AM
#MedSky / #NeuroSky, follow @saramariotto.bsky.social! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing #NMOSD, #MOGAD, #AE & other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼
November 25, 2024 at 7:56 AM
#MedSky / #NeuroSky, follow @saramariotto.bsky.social! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing #NMOSD, #MOGAD, #AE & other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼
#MedSky / #NeuroSky, follow @marignierro.bsky.social! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in #MOGAD & #NMOSD, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!
November 24, 2024 at 9:32 PM
#MedSky / #NeuroSky, follow @marignierro.bsky.social! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in #MOGAD & #NMOSD, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!
