The Sumaira Foundation (TSF)
@thesumairafdn.bsky.social
TSF is a global nonprofit organization dedicated to raising awareness of rare neuroimmune conditions, building community, supporting research, advocating on behalf of patients. www.sumairafoundation.org
🦄🇨🇦🌺 Beautiful artwork created by the amazing kids at TSF’s Toronto Patient Day on November 8th!
November 11, 2025 at 3:52 PM
🦄🇨🇦🌺 Beautiful artwork created by the amazing kids at TSF’s Toronto Patient Day on November 8th!
🌐 Our latest research infographic spotlights a comprehensive review of about 4,700 #MOGAD patients globally.
Read the summary: www.sumairafoundation.org/summaries/mo...
Read the summary: www.sumairafoundation.org/summaries/mo...
November 11, 2025 at 1:05 PM
🌐 Our latest research infographic spotlights a comprehensive review of about 4,700 #MOGAD patients globally.
Read the summary: www.sumairafoundation.org/summaries/mo...
Read the summary: www.sumairafoundation.org/summaries/mo...
🇩🇪 In der neuen Folge des Alexion-Patienten-Podcasts spricht Hans-Jörg über seine seltene Diagnose mit fast 60 – und wie sie sein Leben veränderte. Als TSF-Botschafter teilt er offen seine Erfahrungen, Herausforderungen & Mutmacher-Momente. Jetzt reinhören www.youtube.com/watch?v=c6C7...
www.youtube.com
November 10, 2025 at 5:53 PM
🇩🇪 In der neuen Folge des Alexion-Patienten-Podcasts spricht Hans-Jörg über seine seltene Diagnose mit fast 60 – und wie sie sein Leben veränderte. Als TSF-Botschafter teilt er offen seine Erfahrungen, Herausforderungen & Mutmacher-Momente. Jetzt reinhören www.youtube.com/watch?v=c6C7...
Congratulations Nakeshia Nickerson, TSF Ambassador of Ohio & #MOGAD warrior, who has been elected Mayor of the Village of Woodmere, Ohio!
Nakeshia continues to inspire us all, proving that MOGAD will never limit, define or consume her. 🩷🧡💛
Nakeshia continues to inspire us all, proving that MOGAD will never limit, define or consume her. 🩷🧡💛
November 5, 2025 at 12:33 PM
Congratulations Nakeshia Nickerson, TSF Ambassador of Ohio & #MOGAD warrior, who has been elected Mayor of the Village of Woodmere, Ohio!
Nakeshia continues to inspire us all, proving that MOGAD will never limit, define or consume her. 🩷🧡💛
Nakeshia continues to inspire us all, proving that MOGAD will never limit, define or consume her. 🩷🧡💛
🇨🇦 T-5 days until Toronto Patient Day for Rare Neuroinflammatory Disorders! Meet our featured patient panelists.
If you’re impacted by #AE, #MG, #MOGAD or #NMOSD and are from Canada, join us for a day of education, connection and impact!
To register, visit tinyurl.com/TSFToronto
If you’re impacted by #AE, #MG, #MOGAD or #NMOSD and are from Canada, join us for a day of education, connection and impact!
To register, visit tinyurl.com/TSFToronto
November 3, 2025 at 5:31 PM
🇨🇦 T-5 days until Toronto Patient Day for Rare Neuroinflammatory Disorders! Meet our featured patient panelists.
If you’re impacted by #AE, #MG, #MOGAD or #NMOSD and are from Canada, join us for a day of education, connection and impact!
To register, visit tinyurl.com/TSFToronto
If you’re impacted by #AE, #MG, #MOGAD or #NMOSD and are from Canada, join us for a day of education, connection and impact!
To register, visit tinyurl.com/TSFToronto
🇮🇹 Parliamo di salute femminile e di vita con #NMOSD e #MOGAD!
Silvia e Nour raccontano le loro esperienze con MOGAD e gravidanza, mentre la Dott.ssa Sara Carta @CartaSra approfondisce salute, allattamento e sessualità.
Guarda il webinar 👉 youtu.be/BpwGQr1iAVc
Silvia e Nour raccontano le loro esperienze con MOGAD e gravidanza, mentre la Dott.ssa Sara Carta @CartaSra approfondisce salute, allattamento e sessualità.
Guarda il webinar 👉 youtu.be/BpwGQr1iAVc
Salute femminile e NMOSD/MOGAD: dialogo su gravidanza, allattamento e sessualità
YouTube video by The Sumaira Foundation
youtu.be
October 31, 2025 at 11:51 AM
🇮🇹 Parliamo di salute femminile e di vita con #NMOSD e #MOGAD!
Silvia e Nour raccontano le loro esperienze con MOGAD e gravidanza, mentre la Dott.ssa Sara Carta @CartaSra approfondisce salute, allattamento e sessualità.
Guarda il webinar 👉 youtu.be/BpwGQr1iAVc
Silvia e Nour raccontano le loro esperienze con MOGAD e gravidanza, mentre la Dott.ssa Sara Carta @CartaSra approfondisce salute, allattamento e sessualità.
Guarda il webinar 👉 youtu.be/BpwGQr1iAVc
On Sept 28, we hosted our 1st 5K for Rare Neuroimmune Disorders in Weston, MA, uniting 150+ participants and raising $20K for research. Organized by #NMOSD patient/advocate, Terry & her son Patrick, the event inspired awareness and support.
Read more: www.sumairafoundation.org/event-recap-...
Read more: www.sumairafoundation.org/event-recap-...
October 31, 2025 at 11:43 AM
On Sept 28, we hosted our 1st 5K for Rare Neuroimmune Disorders in Weston, MA, uniting 150+ participants and raising $20K for research. Organized by #NMOSD patient/advocate, Terry & her son Patrick, the event inspired awareness and support.
Read more: www.sumairafoundation.org/event-recap-...
Read more: www.sumairafoundation.org/event-recap-...
You’re invited to join PREVAIL, a live, virtual event featuring Rosemarie Walch, DO and Christina, an #NMOSD patient, on November 5 who will share insights into disease management the importance of advocating for yourself & conducting your own research.
bit.ly/47xmtwf
bit.ly/47xmtwf
October 30, 2025 at 1:58 PM
You’re invited to join PREVAIL, a live, virtual event featuring Rosemarie Walch, DO and Christina, an #NMOSD patient, on November 5 who will share insights into disease management the importance of advocating for yourself & conducting your own research.
bit.ly/47xmtwf
bit.ly/47xmtwf
On September 24th, we welcomed 165 guests from all over the world to TSF’s Research Update & Award Ceremony at Casa Llotja de Mar in Barcelona 🇪🇸
Read the recap, view the photo gallery and relive the magical moments of our event! www.sumairafoundation.org/event-recap-...
Read the recap, view the photo gallery and relive the magical moments of our event! www.sumairafoundation.org/event-recap-...
October 30, 2025 at 1:27 PM
On September 24th, we welcomed 165 guests from all over the world to TSF’s Research Update & Award Ceremony at Casa Llotja de Mar in Barcelona 🇪🇸
Read the recap, view the photo gallery and relive the magical moments of our event! www.sumairafoundation.org/event-recap-...
Read the recap, view the photo gallery and relive the magical moments of our event! www.sumairafoundation.org/event-recap-...
🇵🇱 Czy Ty lub ktoś Ci bliski zmaga się z #MOGAD?
Dołączyli do nas eksperci - Robert Bonek, Maciej Juryńczyk i Paweł Wrona - by omówić objawy, rokowania, leczenie oraz podzielić się inspirującą dyskusją o badaniach klinicznych.
t.co/gM5zKLEpHT
Dołączyli do nas eksperci - Robert Bonek, Maciej Juryńczyk i Paweł Wrona - by omówić objawy, rokowania, leczenie oraz podzielić się inspirującą dyskusją o badaniach klinicznych.
t.co/gM5zKLEpHT
https://youtu.be/FOklN3bPcJE
t.co
October 30, 2025 at 1:27 PM
🇵🇱 Czy Ty lub ktoś Ci bliski zmaga się z #MOGAD?
Dołączyli do nas eksperci - Robert Bonek, Maciej Juryńczyk i Paweł Wrona - by omówić objawy, rokowania, leczenie oraz podzielić się inspirującą dyskusją o badaniach klinicznych.
t.co/gM5zKLEpHT
Dołączyli do nas eksperci - Robert Bonek, Maciej Juryńczyk i Paweł Wrona - by omówić objawy, rokowania, leczenie oraz podzielić się inspirującą dyskusją o badaniach klinicznych.
t.co/gM5zKLEpHT
🇫🇷 Rencontrez les Experts à Lyon !
Rejoignez TSF France pour un week-end dédié à l'éducation, à la connexion et à l'impact et apprenez-en plus sur #NMOSD et #MOGAD auprès des experts !
tinyurl.com/TSFLyon
Rejoignez TSF France pour un week-end dédié à l'éducation, à la connexion et à l'impact et apprenez-en plus sur #NMOSD et #MOGAD auprès des experts !
tinyurl.com/TSFLyon
October 29, 2025 at 11:30 AM
🇫🇷 Rencontrez les Experts à Lyon !
Rejoignez TSF France pour un week-end dédié à l'éducation, à la connexion et à l'impact et apprenez-en plus sur #NMOSD et #MOGAD auprès des experts !
tinyurl.com/TSFLyon
Rejoignez TSF France pour un week-end dédié à l'éducation, à la connexion et à l'impact et apprenez-en plus sur #NMOSD et #MOGAD auprès des experts !
tinyurl.com/TSFLyon
🇮🇳🪷 In 2022, Mouli’s fever turned into paralysis, leaving her immobile. After many hospital rejections, she reached NIMHANS, where treatment helped her stand again. Despite a 2023 relapse, she now faces chronic pain with hope and resilience. www.sumairafoundation.org/moulis-mogad...
October 29, 2025 at 11:30 AM
🇮🇳🪷 In 2022, Mouli’s fever turned into paralysis, leaving her immobile. After many hospital rejections, she reached NIMHANS, where treatment helped her stand again. Despite a 2023 relapse, she now faces chronic pain with hope and resilience. www.sumairafoundation.org/moulis-mogad...
🇦🇺 Pregnant Sydney mum left paralysed after diagnosed with rare illness (#NMOSD) by doctors
www.couriermail.com.au/lifestyle/he...
www.couriermail.com.au/lifestyle/he...
www.couriermail.com.au
October 28, 2025 at 6:53 PM
🇦🇺 Pregnant Sydney mum left paralysed after diagnosed with rare illness (#NMOSD) by doctors
www.couriermail.com.au/lifestyle/he...
www.couriermail.com.au/lifestyle/he...
🇨🇦 Meet the experts at Toronto Patient Day for Rare Neuroinflammatory Disorders on November 8th!
If you or your loved one are impacted by #AE, #MG, #MOGAD or #NMOSD, join us for a day of education, impact and connection.
To register, visit www.tinyurl.com/TSFToronto
If you or your loved one are impacted by #AE, #MG, #MOGAD or #NMOSD, join us for a day of education, impact and connection.
To register, visit www.tinyurl.com/TSFToronto
October 28, 2025 at 4:44 PM
🇨🇦 Meet the experts at Toronto Patient Day for Rare Neuroinflammatory Disorders on November 8th!
If you or your loved one are impacted by #AE, #MG, #MOGAD or #NMOSD, join us for a day of education, impact and connection.
To register, visit www.tinyurl.com/TSFToronto
If you or your loved one are impacted by #AE, #MG, #MOGAD or #NMOSD, join us for a day of education, impact and connection.
To register, visit www.tinyurl.com/TSFToronto
🇮🇹 Incontra gli esperti a Roma sabato 22 novembre!
TSF Italia invita pazienti con #EA, #MG, #MOGAD, #NMOSD, caregiver e medici a una giornata di formazione, incontro e divertimento.
www.eventbrite.com/e/biglietti-...
TSF Italia invita pazienti con #EA, #MG, #MOGAD, #NMOSD, caregiver e medici a una giornata di formazione, incontro e divertimento.
www.eventbrite.com/e/biglietti-...
October 22, 2025 at 12:52 PM
🇮🇹 Incontra gli esperti a Roma sabato 22 novembre!
TSF Italia invita pazienti con #EA, #MG, #MOGAD, #NMOSD, caregiver e medici a una giornata di formazione, incontro e divertimento.
www.eventbrite.com/e/biglietti-...
TSF Italia invita pazienti con #EA, #MG, #MOGAD, #NMOSD, caregiver e medici a una giornata di formazione, incontro e divertimento.
www.eventbrite.com/e/biglietti-...
YOU are worth fighting for🌺
We designed this collection, to remind YOU (and the world) that you're worth fighting for, no matter the circumstances. Shop now & wear the message loud!
🤍www.bonfire.com/you-are-worth-fighting-for-white
🖤www.bonfire.com/you-are-worth-fighting-for-black
We designed this collection, to remind YOU (and the world) that you're worth fighting for, no matter the circumstances. Shop now & wear the message loud!
🤍www.bonfire.com/you-are-worth-fighting-for-white
🖤www.bonfire.com/you-are-worth-fighting-for-black
October 21, 2025 at 12:23 PM
YOU are worth fighting for🌺
We designed this collection, to remind YOU (and the world) that you're worth fighting for, no matter the circumstances. Shop now & wear the message loud!
🤍www.bonfire.com/you-are-worth-fighting-for-white
🖤www.bonfire.com/you-are-worth-fighting-for-black
We designed this collection, to remind YOU (and the world) that you're worth fighting for, no matter the circumstances. Shop now & wear the message loud!
🤍www.bonfire.com/you-are-worth-fighting-for-white
🖤www.bonfire.com/you-are-worth-fighting-for-black
🗞️After a cold in 2015, Brian was misdiagnosed with #NMOSD & told he had ~7 years to live. Later, he learned he actually had #MOGAD, a rare but non-fatal autoimmune disease. Now, he’s an advocate fighting for faster diagnoses, better care & awareness.
www.inquirer.com/health/brian...
www.inquirer.com/health/brian...
A cold triggered an autoimmune disease in a Pa. man. Now he’s channeling his challenges into advocacy for people with rare diseases.
Brian Dawson's life changed when he received a misdiagnosis of neuromyelitis optica (NMO). As a patient advocate, he's now helping tackle barriers faced by rare disease patients in Pennsylvania.
www.inquirer.com
October 20, 2025 at 8:05 PM
🗞️After a cold in 2015, Brian was misdiagnosed with #NMOSD & told he had ~7 years to live. Later, he learned he actually had #MOGAD, a rare but non-fatal autoimmune disease. Now, he’s an advocate fighting for faster diagnoses, better care & awareness.
www.inquirer.com/health/brian...
www.inquirer.com/health/brian...
🇦🇩🇵🇹🇪🇸 Roberto Pons es el nuevo embajador de TSF en Iberia. Tras vivir de cerca el diagnóstico de su hermana con #NMOSD, encontró esperanza en las historias de TSF.
Hoy, quiere devolver esa fuerza y dar voz a quienes más lo necesitan. ¡Bienvenido!
Hoy, quiere devolver esa fuerza y dar voz a quienes más lo necesitan. ¡Bienvenido!
October 20, 2025 at 3:54 PM
🇦🇩🇵🇹🇪🇸 Roberto Pons es el nuevo embajador de TSF en Iberia. Tras vivir de cerca el diagnóstico de su hermana con #NMOSD, encontró esperanza en las historias de TSF.
Hoy, quiere devolver esa fuerza y dar voz a quienes más lo necesitan. ¡Bienvenido!
Hoy, quiere devolver esa fuerza y dar voz a quienes más lo necesitan. ¡Bienvenido!
TSF’s 2025 Global Rare Trailblazer Award recognized Prof. Vanda Lennon in Barcelona during ECTRIMS for her groundbreaking neuroimmunology research.
Her discovery of key autoantibodies has advanced diagnosis & care for autoimmune neurological disorders. www.sumairafoundation.org/global-rare-...
Her discovery of key autoantibodies has advanced diagnosis & care for autoimmune neurological disorders. www.sumairafoundation.org/global-rare-...
October 17, 2025 at 6:50 PM
TSF’s 2025 Global Rare Trailblazer Award recognized Prof. Vanda Lennon in Barcelona during ECTRIMS for her groundbreaking neuroimmunology research.
Her discovery of key autoantibodies has advanced diagnosis & care for autoimmune neurological disorders. www.sumairafoundation.org/global-rare-...
Her discovery of key autoantibodies has advanced diagnosis & care for autoimmune neurological disorders. www.sumairafoundation.org/global-rare-...
🇮🇹 TSF is proud to endorse the upcoming "Evolving Spectrum of Neuroimmunological Disorders" meeting featuring experts from all over the world in Verona on November 10th organized by @saramariotto.bsky.social
To register, visit eolocongressi.it/eventi/the-e...
To register, visit eolocongressi.it/eventi/the-e...
October 16, 2025 at 2:35 PM
🇮🇹 TSF is proud to endorse the upcoming "Evolving Spectrum of Neuroimmunological Disorders" meeting featuring experts from all over the world in Verona on November 10th organized by @saramariotto.bsky.social
To register, visit eolocongressi.it/eventi/the-e...
To register, visit eolocongressi.it/eventi/the-e...
🇨🇦 Join us on 11/5 for a patient education program about how to navigate life with #NMOSD in Canada featuring Dr. Dalia Rotstein.
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
October 15, 2025 at 1:44 PM
🇨🇦 Join us on 11/5 for a patient education program about how to navigate life with #NMOSD in Canada featuring Dr. Dalia Rotstein.
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
🇺🇸 Diagnosed with #NMOSD? Join a 60-min paid interview for market research🧠
Get $100 if you qualify (Must be 18+, in the U.S., and diagnosed with NMOSD (AQP4+/-)).
Apply: www.research.net/r/9LTNCY2 📞 Include your phone & time zone.
Get $100 if you qualify (Must be 18+, in the U.S., and diagnosed with NMOSD (AQP4+/-)).
Apply: www.research.net/r/9LTNCY2 📞 Include your phone & time zone.
October 15, 2025 at 12:32 PM
🇺🇸 Diagnosed with #NMOSD? Join a 60-min paid interview for market research🧠
Get $100 if you qualify (Must be 18+, in the U.S., and diagnosed with NMOSD (AQP4+/-)).
Apply: www.research.net/r/9LTNCY2 📞 Include your phone & time zone.
Get $100 if you qualify (Must be 18+, in the U.S., and diagnosed with NMOSD (AQP4+/-)).
Apply: www.research.net/r/9LTNCY2 📞 Include your phone & time zone.
🇵🇪 ¡Bienvenida Mily, nueva Embajadora TSF del Perú! Diagnosticada con #NMOSD en 2023, superó la parálisis y hoy camina de nuevo. Ahora quiere apoyar a otros pacientes en Perú para que nunca se sientan solos ni pierdan la fe.
October 14, 2025 at 11:40 AM
🇵🇪 ¡Bienvenida Mily, nueva Embajadora TSF del Perú! Diagnosticada con #NMOSD en 2023, superó la parálisis y hoy camina de nuevo. Ahora quiere apoyar a otros pacientes en Perú para que nunca se sientan solos ni pierdan la fe.