STRONG-AYA
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strong-aya.bsky.social
STRONG-AYA
@strong-aya.bsky.social
An EU Horizon/Innovate UK funded project creating value-based research ecosystems to develop data-driven, interactive policy & novel insights into AYA healthcare
📖 New STRONG AYA Resource:
The Blueprint for building national and pan-European STRONG AYA ecosystems to improve AYA cancer care is now available on our website.

👉 Read the full blueprint with information on data ecosystem structures, governance, standards & challenges: strongaya.eu/wp-content/u...
September 17, 2025 at 8:57 AM
🌻 July is #sarcoma awareness month - time to shine light on #rarecancers that often go undetected until progressed.
With #STRONG-AYA, we contribute to a better understanding of sarcoma.
💛 Help us spread #awareness - because early detection can save lives.
July 22, 2025 at 9:46 AM
🚀 STRONG-AYA infrastructure is growing! Two new datasets successfully connected:
1️⃣ CLB dataset: rich clinical data from 3,000+ AYA cancer patients
2️⃣ Sex-Health study data: includes patient-reported outcome measures (PROMs) from 200+ AYAs.
Congrats to all involved!
👉 strongaya.eu/news/two-new...
July 18, 2025 at 10:03 AM