It’s a wrap! Day 2 of the General Assembly brought inspiring discussions with input from our Patient Advisory Board.

Today's highlights:
• Cancer awareness campaigns that stick
• Update on the federated learning infrastructure and integrated data
• Steps for launching our public information portal

📍 We're in Paris for the #STRONGAYA General Assembly meeting, hosted by Institut Gustave Roussy.

Today, we discussed:
• Sustaining project results & reaching stakeholders
• Ethical health data processing for research
• Patient consent models
• Evaluating & refining our Core Outcome Set

🎗 October is #BreastCancerAwareness month.
Breast cancer is the most common cancer in women. Most cases are diagnosed after 50, but younger women are affected too. Broad screening services for young women are limited, so awareness of self-examination and symptoms is essential for early detection.

On #WorldCancerResearchDay, we highlight #FederatedLearning - an approach that learns from data stored in different locations without moving or sharing individual-level (patient) data between these locations. Find out how #STRONGAYA uses it to advance cancer research: strongaya.eu/federated-pa...

📖 New STRONG AYA Resource:
The Blueprint for building national and pan-European STRONG AYA ecosystems to improve AYA cancer care is now available on our website.

👉 Read the full blueprint with information on data ecosystem structures, governance, standards & challenges: strongaya.eu/wp-content/u...

📢 Our first newsletter is out! Read to know more about STRONG AYA's latest achievements, developments in our partner countries, publications by consortium members, upcoming events and more: mailchi.mp/69988176a76b...
✍️ Subscribe to receive the next one directly: mailchi.mp/728bae91b0ba...

💛 This #ChildhoodCancerAwarenessMonth, we highlight the need for age-specific cancer care. Children and young people with cancer have unique care needs - yet access to age-specific cancer care is unequal. #STRONGAYA contributes to addressing this gap to improve cancer care and outcomes. #HorizonEU

We reached an important milestone this week: Nodes in all 7 participating centres in 5 countries - UK, Netherlands, France, Poland, and Italy - are now connected to the #STRONGAYA federated infrastructure 🎉 Read more: strongaya.eu/news/two-pro...

#HorizonEU #AYAOncology #FederatedLearning

Teams at @maastrichtu.bsky.social and @universityofleeds.bsky.social integrated the largest retrospective dataset in the STRONG-AYA infrastructure so far, with data from >9,000 #AYAcancer patients from the YSRCCYP cancer register. 5/7 centres now have retrospective data in their nodes!
#HorizonEU

🌻 July is #sarcoma awareness month - time to shine light on #rarecancers that often go undetected until progressed.
With #STRONG-AYA, we contribute to a better understanding of sarcoma.
💛 Help us spread #awareness - because early detection can save lives.

🚀 STRONG-AYA infrastructure is growing! Two new datasets successfully connected:
1️⃣ CLB dataset: rich clinical data from 3,000+ AYA cancer patients
2️⃣ Sex-Health study data: includes patient-reported outcome measures (PROMs) from 200+ AYAs.
Congrats to all involved!
👉 strongaya.eu/news/two-new...