@solvingms.bsky.social
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solvingms.bsky.social
@solvingms.bsky.social
@solvingms.bsky.social
To fund scientific and/or medical research and to advocate for people with Multiple Sclerosis (MS). #SolvingMS

https://www.solvingms.org

Research Database

https://solvingms.org/research-database
Reposted by @solvingms.bsky.social
Yesterday’s micro-live @themsgym.bsky.social

It’s not JUST our hip flexors that are weak, #feedforMSfolk. It starts with our intrinsic kinetic chain. MS doesn’t just hit at one foot, or hand and foot - it’s lesion and down!

#neuroplasticity #neurorehab #themsgym

www.youtube.com/watch?v=lAHP...
LIVE TRAINING - Hip Flexor Strengthening With Coach T
YouTube video by The MS Gym
www.youtube.com
November 21, 2024 at 3:43 PM
Reposted by @solvingms.bsky.social
Thank you for hearing us, Dr. Giovanonni. #MS peeps, please encourage Dr. G. To join Bluesky. This will be an interesting follow: #covid #longcovid #antivirals #TAF #vemliidy #valacyclovir #bcelldepletion

“Long Covid and it’s relationship to MS”

gavingiovannoni.substack.com/p/long-covid...
Long COVID and its relationship to MS
If intermittent EBV reactivation drives long COVID and MS, it should respond to EBV antiviral strategies. I am aware that many pwMS have started taking antivirals off-label to manage their MS ....
gavingiovannoni.substack.com
November 22, 2024 at 12:13 PM
Reposted by @solvingms.bsky.social
“Autologous Epstein–Barr virus-specific adoptive T-cell therapy in a patient with lupus nephritis” November 19, 2024

onlinelibrary.wiley.com/doi/full/10....
November 22, 2024 at 4:43 PM
Reposted by @solvingms.bsky.social
There is some data that the acyclovir prodrug #valacyclovir (which I take to halt ebv reactivations) is more effective than #guanasineanalogue antivirals.

Better results may come in a trial of late onset #MS or secondary MSers. Viral control ability depleted. 1/2

pubmed.ncbi.nlm.nih.gov/38131621/
A phase 2a open-label clinical trial to determine the effect of famciclovir on EBV activity as measured by EBV shedding in the saliva of patients with multiple sclerosis - PubMed
No significant effect of famciclovir on EBV shedding was seen in this small pilot study. Given the low numbers, a small effect of famciclovir cannot be excluded. Salivary EBV shedding in this natalizu...
pubmed.ncbi.nlm.nih.gov
November 16, 2024 at 5:09 PM
The BEHIND-MS project introduces the project’s objectives and groundbreaking research efforts. This five-year European research initiative is focused on understanding the role of the EBV in the onset and progression of MS. #EBVcausesMS

youtu.be/LvbXvLLsVLw
BEHIND-MS: Exploring the Link Between Epstein-Barr Virus and Multiple Sclerosis
YouTube video by EMSP Brussels
youtu.be
November 17, 2024 at 3:32 AM