Soheb
@sohebm.bsky.social
Wrangles code and dodges protein for a living (PKU).
It's been a while, but I've finished my Magnus Opus
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
November 1, 2025 at 3:57 PM
It's been a while, but I've finished my Magnus Opus
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
July 27, 2025 at 5:47 PM
Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
So I gave the rice a shot (with spicy kimchi)
Pros: it's rice, alright. Tastes just like the real thing (kinda missing something, but better than PKU imitation rice)
Cons: look at the rice. It's pretty painful to take out of the packet, and is so tightly packed it comes out in lumps.
Pros: it's rice, alright. Tastes just like the real thing (kinda missing something, but better than PKU imitation rice)
Cons: look at the rice. It's pretty painful to take out of the packet, and is so tightly packed it comes out in lumps.
July 26, 2025 at 3:34 PM
So I gave the rice a shot (with spicy kimchi)
Pros: it's rice, alright. Tastes just like the real thing (kinda missing something, but better than PKU imitation rice)
Cons: look at the rice. It's pretty painful to take out of the packet, and is so tightly packed it comes out in lumps.
Pros: it's rice, alright. Tastes just like the real thing (kinda missing something, but better than PKU imitation rice)
Cons: look at the rice. It's pretty painful to take out of the packet, and is so tightly packed it comes out in lumps.
Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
July 26, 2025 at 11:50 AM
Finally - an actual PKU post!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
I got an email from Promin saying they've got this new low protein rice - rice which is pretty much "normal rice" but has gone through some process to make it only half an exchange.
As someone who loves rice, I'm going to give this a try later on!
Just bought the vinyl two days ago, it arrived brand new.
I was still trying to get the plastic wrapping off when I walked into the door.
Creased the edge of the vinyl... 😡🤬
I was still trying to get the plastic wrapping off when I walked into the door.
Creased the edge of the vinyl... 😡🤬
July 18, 2025 at 10:51 AM
Just bought the vinyl two days ago, it arrived brand new.
I was still trying to get the plastic wrapping off when I walked into the door.
Creased the edge of the vinyl... 😡🤬
I was still trying to get the plastic wrapping off when I walked into the door.
Creased the edge of the vinyl... 😡🤬
I recently got a bad result and I shared it with the PKU community. Good thing I did as I was feeling pretty rubbish about it until I read this post.
The PKU community is awesome 😎 - you can find these lot on Mastodon.
Original post: mastodon.online/@caoimhin/11...
#pku #phenylketonuria
The PKU community is awesome 😎 - you can find these lot on Mastodon.
Original post: mastodon.online/@caoimhin/11...
#pku #phenylketonuria
May 9, 2025 at 9:35 AM
I recently got a bad result and I shared it with the PKU community. Good thing I did as I was feeling pretty rubbish about it until I read this post.
The PKU community is awesome 😎 - you can find these lot on Mastodon.
Original post: mastodon.online/@caoimhin/11...
#pku #phenylketonuria
The PKU community is awesome 😎 - you can find these lot on Mastodon.
Original post: mastodon.online/@caoimhin/11...
#pku #phenylketonuria
Original post: pkutalk.com/@poconnor/11...
May 8, 2025 at 3:16 PM
Original post: pkutalk.com/@poconnor/11...
Did my blood test but completely forgot to take pictures of the sheet.
Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead.
#blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie
Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead.
#blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie
May 3, 2025 at 6:46 AM
Did my blood test but completely forgot to take pictures of the sheet.
Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead.
#blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie
Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead.
#blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie
Original post: pkutalk.com/@poconnor/11...
May 2, 2025 at 2:26 PM
Original post: pkutalk.com/@poconnor/11...
Original post: pkutalk.com/@poconnor/11...
April 13, 2025 at 12:28 PM
Original post: pkutalk.com/@poconnor/11...
April 5, 2025 at 8:25 AM
Original post: pkutalk.com/@poconnor/11...
April 4, 2025 at 4:41 PM
Original post: pkutalk.com/@poconnor/11...
Original post: pkutalk.com/@pcublogue/1...
April 3, 2025 at 5:30 PM
Original post: pkutalk.com/@pcublogue/1...
Did a blood test this morning. Added more blood spots as it was starting to get a lil too serious in here 😤🥴😎
#phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood
#phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood
March 1, 2025 at 9:18 AM
Did a blood test this morning. Added more blood spots as it was starting to get a lil too serious in here 😤🥴😎
#phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood
#phenylketonuria #phenylxetonurie #pku #pcu #lowprotein #raredisease #nhs #blood
Mogo chips with normal chips and vegan mayonnaise.
2 PKU exchanges and utterly delicious 😋
#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
2 PKU exchanges and utterly delicious 😋
#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
February 4, 2025 at 5:54 PM
Mogo chips with normal chips and vegan mayonnaise.
2 PKU exchanges and utterly delicious 😋
#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
2 PKU exchanges and utterly delicious 😋
#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood
Did my blood test this morning! Nearly forgot as well 🤦♂️
It was absolutely freezing this morning so I had to use two fingers to do the blood test (oops) - I hope it still counts!
#pku #phenylketonuria #pcu #phenylcetonurie
It was absolutely freezing this morning so I had to use two fingers to do the blood test (oops) - I hope it still counts!
#pku #phenylketonuria #pcu #phenylcetonurie
February 1, 2025 at 10:21 AM
Did my blood test this morning! Nearly forgot as well 🤦♂️
It was absolutely freezing this morning so I had to use two fingers to do the blood test (oops) - I hope it still counts!
#pku #phenylketonuria #pcu #phenylcetonurie
It was absolutely freezing this morning so I had to use two fingers to do the blood test (oops) - I hope it still counts!
#pku #phenylketonuria #pcu #phenylcetonurie
January 4, 2025 at 9:35 AM
Stir fry rice with mushrooms and onions... 🤤
Used Mevalia rice as it's the closest I can get to tasting normal rice, and frozen garlic and ginger, mushrooms and onions for quicker prep.
#pku #phenylketonuria
Used Mevalia rice as it's the closest I can get to tasting normal rice, and frozen garlic and ginger, mushrooms and onions for quicker prep.
#pku #phenylketonuria
December 21, 2024 at 5:47 PM
Stir fry rice with mushrooms and onions... 🤤
Used Mevalia rice as it's the closest I can get to tasting normal rice, and frozen garlic and ginger, mushrooms and onions for quicker prep.
#pku #phenylketonuria
Used Mevalia rice as it's the closest I can get to tasting normal rice, and frozen garlic and ginger, mushrooms and onions for quicker prep.
#pku #phenylketonuria
Saw the review and it was super interesting! Definitely giving the audiobook a listen!
December 18, 2024 at 11:27 AM
Saw the review and it was super interesting! Definitely giving the audiobook a listen!
Got my #nspku news and views magazine!
I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria
I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria
December 14, 2024 at 10:45 AM
Got my #nspku news and views magazine!
I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria
I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria
Playing Silent Hill 2 on PS5, and good lord it makes Resident Evil 7 seem childish by comparison.
I think I'm going to need a shower after completing this game, I swear...
I think I'm going to need a shower after completing this game, I swear...
December 9, 2024 at 8:25 PM
Playing Silent Hill 2 on PS5, and good lord it makes Resident Evil 7 seem childish by comparison.
I think I'm going to need a shower after completing this game, I swear...
I think I'm going to need a shower after completing this game, I swear...
Blood spot for this month for #PKU #phenylketonuria
I think the strong winds and rain enforced some discipline, because I can't for the life of me explain how these circles are so neat.
I think the strong winds and rain enforced some discipline, because I can't for the life of me explain how these circles are so neat.
December 7, 2024 at 11:19 AM
Blood spot for this month for #PKU #phenylketonuria
I think the strong winds and rain enforced some discipline, because I can't for the life of me explain how these circles are so neat.
I think the strong winds and rain enforced some discipline, because I can't for the life of me explain how these circles are so neat.
Just discovered the area in Bluesky where I can filter out more keywords...
December 3, 2024 at 11:09 AM
Just discovered the area in Bluesky where I can filter out more keywords...
Ordered some Tescos shopping the other day, had it booked between 7-8pm.
Sitting at home wondering why nobody has come and delivered it yet.
Getting fed up, I check the order and find out its a Click and Collect.
I drive to Tescos, panicking. Turns out I just missed it and C&C is closed.
Sitting at home wondering why nobody has come and delivered it yet.
Getting fed up, I check the order and find out its a Click and Collect.
I drive to Tescos, panicking. Turns out I just missed it and C&C is closed.
November 30, 2024 at 10:29 PM
Ordered some Tescos shopping the other day, had it booked between 7-8pm.
Sitting at home wondering why nobody has come and delivered it yet.
Getting fed up, I check the order and find out its a Click and Collect.
I drive to Tescos, panicking. Turns out I just missed it and C&C is closed.
Sitting at home wondering why nobody has come and delivered it yet.
Getting fed up, I check the order and find out its a Click and Collect.
I drive to Tescos, panicking. Turns out I just missed it and C&C is closed.