I have still experienced reduction in baseline after accessing in-person care. Just not with this in particular. It blows my mind that the sickest patients, the ones who need the most help, risk so much harm trying to access that help. Do better, medical community (evergreen sentiment I know).

Unfortunately it was £££ but the only way open to me at the time. I've been recommended further autonomic testing but have refused that. I was also recommended a CPET but that was an 'absolutely the fuck not'. Thankfully I could try meds without these.

The active stand was very tiring (and I couldn't do it now) but had important differences such as I wasn't strapped down, I felt much more in control and could hold my head in a comfortable position etc. Could be dx'd and prescribed meds just as easily.

My MP is not on the list :( I'm still waiting for a reply to the letter I sent him about it, expecting something bland and beige, he's a fence sitter and I've never seen him raise his head above the parapet on any issue.

Sorry Liz

Cool, I just finally sent off my PIP form describing in brutal detail how I need help to wash and can't cook at all and need an electric wheelchair etc, can't wait to see what job they come up with for me 🙃

Thank you. It's dominated my days for so long I can't believe I actually sent it. I think it'll take me a while to recover.

Fantasising about making Kendall complete PIP form after PIP form, Severance Break Room style. "I'm afraid you still don't qualify."

Hey! 👋 I'm glad I caught your random FB post mentioning your handle here, I hardly ever go on there anymore.

Ahh that's a shame, always gutting when you lose a mix and it can't be replaced. I've got all the tapes and all the vinyl still!

I did digitise them a while back but have yet to upload them anywhere! It's on my to-do list but you know how is. Nice, there was nothing where I grew up but at uni (Edinburgh) there was a dnb night called Manga that was pretty popular.

Yeah! I was obsessed with GL and had access to their press person thru the student newspaper, so I pestered them til they let me intern (unpaid, or paid in vinyl haha). Those parties sound fun. Another level like you say. Still have my old mixes on tape!

📌 For later. I did two summers' work experience at Good Looking in 99 and 00 so I knew this lot! Loved the tunes and spent most of my uni years DJing them. I didn't know MC Conrad very well but was really sad to hear that he'd died.

📌

Listen to disabled people - you might be surprised by some of the punitive policies that keep us in legislated poverty.

Most people think if things get really tough I will “get a second job, moonlight, sell some stuff etc”

Those options are OFF the table if disabled. There’s no contingency./3

📌

💙