Michael Smith
@skibu.bsky.social
Long Covid has annihilated me. Disabled musician. Created tech behind transit data companies Swiftly and NextBus. Person behind robotaxi.news & helpBluesky.me . Co-founder of Walk SF. The War on Cars will be won by @safeStreetRebel !
Kuon is an integrative care doctor. Means drugs are a smaller part, and mostly other things like SGB, diet changes (worked really well!), sleep. But still doing LDN and colchecine for my heart.
August 26, 2025 at 4:58 AM
Kuon is an integrative care doctor. Means drugs are a smaller part, and mostly other things like SGB, diet changes (worked really well!), sleep. But still doing LDN and colchecine for my heart.
That’s indeed complicated! Dr Liu actually recommends that patients go to Anchorage, his home base, for two weeks and get like 7-10 of them. Sounds exhausting and too much for me currently. So I get one every few months. Effect not as strong now, but I’ll get more.
August 26, 2025 at 4:54 AM
That’s indeed complicated! Dr Liu actually recommends that patients go to Anchorage, his home base, for two weeks and get like 7-10 of them. Sounds exhausting and too much for me currently. So I get one every few months. Effect not as strong now, but I’ll get more.
By the way, Dr Kuon wrote a good book called the Ling Covid Solution.
August 26, 2025 at 4:50 AM
By the way, Dr Kuon wrote a good book called the Ling Covid Solution.
At this point I think I’ll just stick with Dr Kuon. But I might need more help in the future. What is your Kaiser Dr’s name though?
August 26, 2025 at 4:48 AM
At this point I think I’ll just stick with Dr Kuon. But I might need more help in the future. What is your Kaiser Dr’s name though?
I’ve had 4 dual sided SGBs with Dr Luke Liu. He does a weekend clinic in San Jose area about once a month. I highly recommend him, much better results, but $1k per side. And he was highly recommended by my UCSF long covid expert Dr Carla Kuon.
August 26, 2025 at 4:45 AM
I’ve had 4 dual sided SGBs with Dr Luke Liu. He does a weekend clinic in San Jose area about once a month. I highly recommend him, much better results, but $1k per side. And he was highly recommended by my UCSF long covid expert Dr Carla Kuon.
I heard about the clinic and tried into get in but they told me no new patients. And then I heard about an unofficial one started by some doctors but they too weren’t taking on new people.
When did you start with your Santa Clara doctor?
When did you start with your Santa Clara doctor?
August 26, 2025 at 4:37 AM
I heard about the clinic and tried into get in but they told me no new patients. And then I heard about an unofficial one started by some doctors but they too weren’t taking on new people.
When did you start with your Santa Clara doctor?
When did you start with your Santa Clara doctor?
That’s exactly the kind of long covid Dr you want, someone both knowledgeable and willing to try lots of things.
August 26, 2025 at 4:35 AM
That’s exactly the kind of long covid Dr you want, someone both knowledgeable and willing to try lots of things.
They did a SGB for me for long covid but only because I figured out how to ask for one. Turns out it has to be prescribed by one of their neurologists. So you have to find one who is willing to order one for you.
And I was disappointed with the results. Key is that the doctor was newish to SGB
And I was disappointed with the results. Key is that the doctor was newish to SGB
August 26, 2025 at 4:30 AM
They did a SGB for me for long covid but only because I figured out how to ask for one. Turns out it has to be prescribed by one of their neurologists. So you have to find one who is willing to order one for you.
And I was disappointed with the results. Key is that the doctor was newish to SGB
And I was disappointed with the results. Key is that the doctor was newish to SGB
Kaiser doesn’t have a long covid clinic. And when you need to deal with symptoms they might send you to a cardiologist or neurologist, but those docs don’t know long covid. So I’m still with Kaiser but see a long covid specialist outside of Kaiser.
August 26, 2025 at 4:26 AM
Kaiser doesn’t have a long covid clinic. And when you need to deal with symptoms they might send you to a cardiologist or neurologist, but those docs don’t know long covid. So I’m still with Kaiser but see a long covid specialist outside of Kaiser.
The many birds are especially pissed off about this blatant misrepresentation of how animals commute!
June 16, 2025 at 6:59 PM
The many birds are especially pissed off about this blatant misrepresentation of how animals commute!
But their website is so awesome. Check out these renderings. Truly sunrise in America!
And one of their goals is “Elon-level ambition is the bar”
And one of their goals is “Elon-level ambition is the bar”
June 16, 2025 at 3:07 AM
But their website is so awesome. Check out these renderings. Truly sunrise in America!
And one of their goals is “Elon-level ambition is the bar”
And one of their goals is “Elon-level ambition is the bar”
Though I’m just joking. The runways actually ane important for the awesome flea market is. Plus transit agencies use it for bus driver training.
June 16, 2025 at 2:56 AM
Though I’m just joking. The runways actually ane important for the awesome flea market is. Plus transit agencies use it for bus driver training.
Umm, maybe should just let the idiots try it. I don’t think they know that it’s crappy landfill that floods during king tides. I don’t think data centers work that well when all soggy.
June 16, 2025 at 2:56 AM
Umm, maybe should just let the idiots try it. I don’t think they know that it’s crappy landfill that floods during king tides. I don’t think data centers work that well when all soggy.
Asapast exec of Cubic I can say with confidence that 1) this is Cubics fault; 2) facilitated by the MTC; 3) due to Cubic having been bought by private equity and screwed; 4) and there is no technical limitation. It all
Could have been done right. But it clearly wasn’t.
Could have been done right. But it clearly wasn’t.
June 10, 2025 at 5:01 PM
Asapast exec of Cubic I can say with confidence that 1) this is Cubics fault; 2) facilitated by the MTC; 3) due to Cubic having been bought by private equity and screwed; 4) and there is no technical limitation. It all
Could have been done right. But it clearly wasn’t.
Could have been done right. But it clearly wasn’t.
Great that it has helped with your thinking. That’s the biggest improvement I’ve noticed, too.
And yes, thoracic block is more for issues below the neck. Was hoping would help my heart issues. But it hasn’t. Fatigue still killing me.
And yes, thoracic block is more for issues below the neck. Was hoping would help my heart issues. But it hasn’t. Fatigue still killing me.
May 11, 2025 at 7:17 PM
Great that it has helped with your thinking. That’s the biggest improvement I’ve noticed, too.
And yes, thoracic block is more for issues below the neck. Was hoping would help my heart issues. But it hasn’t. Fatigue still killing me.
And yes, thoracic block is more for issues below the neck. Was hoping would help my heart issues. But it hasn’t. Fatigue still killing me.
That's great that it has made a difference with your pots!
Everyone is of course different. I have definitely had cognitive improvement. But my last treatment where I got a SGB and a Thoracic Block mostly has just wiped me out. Next time I'm just doing the SGB.
Everyone is of course different. I have definitely had cognitive improvement. But my last treatment where I got a SGB and a Thoracic Block mostly has just wiped me out. Next time I'm just doing the SGB.
May 9, 2025 at 10:04 PM
That's great that it has made a difference with your pots!
Everyone is of course different. I have definitely had cognitive improvement. But my last treatment where I got a SGB and a Thoracic Block mostly has just wiped me out. Next time I'm just doing the SGB.
Everyone is of course different. I have definitely had cognitive improvement. But my last treatment where I got a SGB and a Thoracic Block mostly has just wiped me out. Next time I'm just doing the SGB.
The 2nd one was done through my HMO. Great pain doctor, but I had absolutely no benefit and the procedure itself was quite painful. So 3rd time went back to Dr Liu and benefits last pretty much the whole month. And this time I also went back to Dr Liu.
April 19, 2025 at 11:32 PM
The 2nd one was done through my HMO. Great pain doctor, but I had absolutely no benefit and the procedure itself was quite painful. So 3rd time went back to Dr Liu and benefits last pretty much the whole month. And this time I also went back to Dr Liu.
Bit complicated. Overall, biggest improvement of all things I’ve tried, particularly for my cognitive issues. Before today I’d say I’m twice as capable as I was was before. But each shot had different effects. First one, by Dr Liu who has done 16k of them, lasted just 5 days, but really good days.
April 19, 2025 at 11:32 PM
Bit complicated. Overall, biggest improvement of all things I’ve tried, particularly for my cognitive issues. Before today I’d say I’m twice as capable as I was was before. But each shot had different effects. First one, by Dr Liu who has done 16k of them, lasted just 5 days, but really good days.
The Thoracic Block is more rare because
More difficult to do. But it is supposed to help my heart, lungs, and hands.
Will be interesting to see how I’m doing tomorrow. Could be quite exhausted after getting his full
reset of my Sympathetic Nervous System.
More difficult to do. But it is supposed to help my heart, lungs, and hands.
Will be interesting to see how I’m doing tomorrow. Could be quite exhausted after getting his full
reset of my Sympathetic Nervous System.
April 19, 2025 at 10:36 PM
The Thoracic Block is more rare because
More difficult to do. But it is supposed to help my heart, lungs, and hands.
Will be interesting to see how I’m doing tomorrow. Could be quite exhausted after getting his full
reset of my Sympathetic Nervous System.
More difficult to do. But it is supposed to help my heart, lungs, and hands.
Will be interesting to see how I’m doing tomorrow. Could be quite exhausted after getting his full
reset of my Sympathetic Nervous System.
Yea, I definitely have PEM. I think the SGB has helped, but notas dramatically as with my cognitive issues.
April 19, 2025 at 10:24 PM
Yea, I definitely have PEM. I think the SGB has helped, but notas dramatically as with my cognitive issues.