@patientadvocacy.bsky.social
Here we go

//2 I'm going to explode

Hey, I'd greatly appreciate it! 🩵

WE CAN DO THIS⬇️

I'm planning on putting videos together to send to the press on this subject. If you want to contribute, let me know!!

Everyone in our community is invited to share, then I'll edit it all together into one video (several here)

You can remain anonymous if you wish and send me a letter to read

//3 There are so many more of us than the they realize! I wish I could convince our government to stop buying aircraft carriers, and instead focus some of those dollars on research! We could be curing Cancer over here, but nope..

//2 "The problem with EDS is there just isn't enough money to be made. No one is willing to invest in the amount of time it would take to go through the thousands of genetic markers. We unfortunately won't likely see that happen within our lifetime."

Quote by someone who has a daughter w/ #EDS 💔

KEEP IT GOING. ITS WORKING!
*HOLD THE LINE*
#EconomicBlackOut