I am grateful of the NHS. But I do wonder how resources get used. Our try for nhs mounjaro was: a gp phone appt, a gp appt, a blood test, another gp appt, a pku clinic, a weight management clinic (WMC), more blood tests & then a final WMC and then told NO. NHS time could be used more wisely

Denied #sapropterin though halved levels that were usually over a 1000. Now denied Mounjaro though falls into the prescribing criteria; used up a few NHS hours to be told by a consultant that weight management is simply eat less move more. Now bought a private prescription for my boy.

Enjoying it so far 📚📚

I’m just about to begin “sorrow and bliss”

And now a starter pack: go.bsky.app/J3KBu9E

I’m the same Soheb. I probably posted in a disjointed hotchpotch kind of way and I’ll probably be the same here.

This was definitely the case for both of us as parents at the initial clinic meeting after diagnosis. Months later I described this as feeling like the future, at least 20 years forward, had just set into stone.

Happy birthday Soheb 🎉🎉hope you are celebrating with a big slice of #pku friendly cake 🎂🍰

A nod to my Mancunian roots 🐝🐝🐝