Pete Spencer
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sciencepete.bsky.social
Pete Spencer
@sciencepete.bsky.social
Retired educator. Early in an acoustic guitar journey. ALS advocate. Learning to love bluegrass and Americana music. Believes in the scientific process.
I am surprised that just over 5% of the people were taking edavarone and less than 1/3 were taking riluzol. Is it b/c of cost, awareness, lack of promotion from their HCP, infusion issues, other?

Makes me wonder what a reasonable goal is for % of people w/ ALS enrolling in clinical trials.
October 29, 2025 at 12:31 PM
@mrsbettybowers.bsky.social, you lose credibility when you post things like this. Do better.
October 21, 2025 at 2:16 AM
It’s so true. Do these people ever work?
October 15, 2025 at 2:08 PM
Science is for sale.
October 14, 2025 at 12:23 AM
No integrity. No courage. Bald-faced liars, and they all kiss the ass of one of the worst human beings ever at a North Korean level. They will live the rest of their lives in infamy. Just their money to give them comfort.
October 8, 2025 at 1:29 AM
Equity is a good thing. I look forward to when it returns and is funded, and America can once again be a country that strives to be better.
October 4, 2025 at 3:12 AM
You’re being kind. It strikes me as something else. 🙂
October 3, 2025 at 12:11 AM
Must be a helluva lot of fun to hang out with these guys after work or in the back of the Ryder truck. What assholes!

And if there is a decent one in the organization, imagine what that’s like. Wanting to do better but you’re outnumbered.
September 26, 2025 at 7:21 PM
Disgusting. Embarrassing. Disrespectful.

Can’t wait until he and it are gone. A good and true leader will find an appropriate use for the ballroom being built, as well.
September 20, 2025 at 3:34 PM
Everything they do is childish.
September 18, 2025 at 1:28 PM
Isn’t it pitiful? And I see his box-hiding servant is still with him. Can’t remember his name. Have to check the indictment.
August 29, 2025 at 6:58 PM
Don’t knock it. That’s almost one non-organic avocado. 🥑
August 22, 2025 at 9:59 PM
And to what end? 🙁
August 21, 2025 at 10:34 PM
Are those FBI, DEA, ATF, and ICE ‘agents’ doing the painting? It’s better use of their time.

Alphabet Paint Company - Mask and masking tape experts:
We cover up what you don’t want exposed 🎨🗂️
August 21, 2025 at 1:50 AM
Good job! What kind of orders are these fat fucks getting when they head out? Do they have no shame? Do any of them think this is not what I signed up for? Enjoy it now; “ICE agent” on a resume won’t get you far in a few years.
August 18, 2025 at 10:54 PM
Teams of 10 or 20 armed to the teeth to capture non-criminals. Pathetic. Unfortunately, it’s their bosses or bosses’ bosses ordering these performances. My guess is respect is plummeting for these agencies. Deserved for now. Hopefully reversible.
August 15, 2025 at 8:43 PM
How embarrassing. They have no shame. But their current penance is to have to spend so much time with each other. Can you imagine?!
August 11, 2025 at 9:20 PM