Sarah
@sarahlizzylou.bsky.social
She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME
My Twitter handle was @SarahLizzyLou
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME
My Twitter handle was @SarahLizzyLou
Yesterday was my first day back at uni after 4yrs off sick.
I felt good after, but still took the evening off to rest up.
Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.
Partner sent me to bed early and made dinner. No PEM so far 🙌
#LongCovidDiaries #FBLC
I felt good after, but still took the evening off to rest up.
Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.
Partner sent me to bed early and made dinner. No PEM so far 🙌
#LongCovidDiaries #FBLC
September 16, 2025 at 9:31 AM
Yesterday was my first day back at uni after 4yrs off sick.
I felt good after, but still took the evening off to rest up.
Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.
Partner sent me to bed early and made dinner. No PEM so far 🙌
#LongCovidDiaries #FBLC
I felt good after, but still took the evening off to rest up.
Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.
Partner sent me to bed early and made dinner. No PEM so far 🙌
#LongCovidDiaries #FBLC
3 episodes in and I don’t think I’m gonna make it 😂
June 12, 2025 at 5:26 PM
3 episodes in and I don’t think I’m gonna make it 😂
From yesterday heading to the #SaveCarlasLife protest.
Feeling it today but so glad I was able to join with everyone else who showed up but in-person and online.
Feeling it today but so glad I was able to join with everyone else who showed up but in-person and online.
April 19, 2024 at 10:42 AM
From yesterday heading to the #SaveCarlasLife protest.
Feeling it today but so glad I was able to join with everyone else who showed up but in-person and online.
Feeling it today but so glad I was able to join with everyone else who showed up but in-person and online.
RIP Lucy. I’m so sorry for your suffering. Rest now 😔💙🕯️
April 5, 2024 at 4:29 PM
RIP Lucy. I’m so sorry for your suffering. Rest now 😔💙🕯️
Cross post from X:
Had a great run of good weeks from mid Aug - Oct 2nd: the day I went for my Long Covid clinic assessment. It was 3 hrs long with no rest between meetings/tests.
It’s really not ok. I wish I left early.
Grateful to Visible for clearly showing how events like these cause decline
Had a great run of good weeks from mid Aug - Oct 2nd: the day I went for my Long Covid clinic assessment. It was 3 hrs long with no rest between meetings/tests.
It’s really not ok. I wish I left early.
Grateful to Visible for clearly showing how events like these cause decline
October 17, 2023 at 3:21 PM
Cross post from X:
Had a great run of good weeks from mid Aug - Oct 2nd: the day I went for my Long Covid clinic assessment. It was 3 hrs long with no rest between meetings/tests.
It’s really not ok. I wish I left early.
Grateful to Visible for clearly showing how events like these cause decline
Had a great run of good weeks from mid Aug - Oct 2nd: the day I went for my Long Covid clinic assessment. It was 3 hrs long with no rest between meetings/tests.
It’s really not ok. I wish I left early.
Grateful to Visible for clearly showing how events like these cause decline
Spreading the word.
UK Long haulers with interest in the Remdesivir trail run by Dr Mark Faghy, here’s the link to express interest:
forms.office.com/pages/respon...
UK Long haulers with interest in the Remdesivir trail run by Dr Mark Faghy, here’s the link to express interest:
forms.office.com/pages/respon...
October 12, 2023 at 2:08 PM
Spreading the word.
UK Long haulers with interest in the Remdesivir trail run by Dr Mark Faghy, here’s the link to express interest:
forms.office.com/pages/respon...
UK Long haulers with interest in the Remdesivir trail run by Dr Mark Faghy, here’s the link to express interest:
forms.office.com/pages/respon...
If the Remdesivir trial for Long Covid is successful, Dr Mark Faghy says he fully intends to propose a trial for MEcfs patients too.
Screenshot from Twitter:
Screenshot from Twitter:
October 12, 2023 at 1:51 PM
If the Remdesivir trial for Long Covid is successful, Dr Mark Faghy says he fully intends to propose a trial for MEcfs patients too.
Screenshot from Twitter:
Screenshot from Twitter:
I’ve often wondered about blood pooling and what it would look like on my skin tone. Well, today I ate my lunch sitting up with my left foot on the floor and the other tucked under me on the chair. There is a difference. But I don’t think all Drs would notice it if it was both feet.
October 11, 2023 at 1:37 PM
I’ve often wondered about blood pooling and what it would look like on my skin tone. Well, today I ate my lunch sitting up with my left foot on the floor and the other tucked under me on the chair. There is a difference. But I don’t think all Drs would notice it if it was both feet.
Long covid people and allies in London (UK), will any of you be at the Covid enquiry in Paddington this Friday morning?
October 11, 2023 at 9:52 AM
Long covid people and allies in London (UK), will any of you be at the Covid enquiry in Paddington this Friday morning?