Sarah
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sarahlizzylou.bsky.social
Sarah
@sarahlizzylou.bsky.social
She/her, Physio student on hold since Oct 2021 LongCovid/ME 🇬🇧
Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME

My Twitter handle was @SarahLizzyLou
Reposted by Sarah
BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza

In an unprecedented move, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide
www.thecanary.co/global/world...
BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza
Comprising 34 countries, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide
www.thecanary.co
September 28, 2025 at 4:56 PM
Reposted by Sarah
Disability equity should be Iron Clad 💪: Treating everyone appropriately, fairly and giving them the same rights and opportunities for 🏥 healthy outcomes.
#NoToDogma #NoToStigma

#pwME
I’m exited about 💙🙏:
#Justice4ME
Donate to legal campaign: Justice4ME.uk
Please promote #Justice4ME on S4ME forum (justice4me.uk) for self explanatory info.
Pls advise S4ME members this is Public Law - NOT civil litigation (as inferred by @abrokenbattery.bsky.social elsewhere).
We are looking at disability discrimination generally, not compensation claims - as yet
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
justice4me.uk
September 16, 2025 at 12:03 AM
Yesterday was my first day back at uni after 4yrs off sick.

I felt good after, but still took the evening off to rest up.

Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.

Partner sent me to bed early and made dinner. No PEM so far 🙌

#LongCovidDiaries #FBLC
September 16, 2025 at 9:31 AM
This is far worse than I ever imagined. Crimes against humanity 😢
korean reporting is nightmarish on the conditions Korean workers were contained in
September 14, 2025 at 8:50 PM
Reposted by Sarah
Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK

Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes, the @icjp.bsky.social said
www.thecanary.co/uk/news/2025...
Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK
Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes
www.thecanary.co
September 9, 2025 at 9:16 AM
Super excited. After almost four years of Long Covid, I’m returning to university in three days time to finish my degree.

On a part-time basis as I’m still very ill, but it’s a huge milestone.

Wish me luck
September 9, 2025 at 10:14 AM
Reposted by Sarah
Israel is robbing disabled people in Gaza of their most basic rights

The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel
www.thecanary.co/global/world...
Israel is robbing disabled people in Gaza of their most basic rights
The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel
www.thecanary.co
September 3, 2025 at 9:47 AM
Glad the DeCode ME study found some useful stuff
August 6, 2025 at 8:31 PM
Reposted by Sarah
The Channel 4 News TV article:

youtu.be/DWCF1_-0yP0

#pwME
ME linked to your genetics - early study indicates
YouTube video by Channel 4 News
youtu.be
August 6, 2025 at 8:28 PM
Reposted by Sarah
Such good news!
#MEAction Minnesota rallied last month to save its Long COVID program - the first in the country - after the MN House proposed cutting all of its funding.
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!
June 11, 2025 at 11:47 PM
Rant
Just had my check-in with my uni disability adviser.
Almost every disability service staff member will no longer be working in 2 weeks. The uni is undergoing a massive restructure and cutting staff because changes to (UK) immigration policy has greatly reduced the number 1/4
June 11, 2025 at 12:44 PM
Reposted by Sarah
“We as a society need to stand together on this and demand that the government stop taking the Pip.”

#TakingthePip

www.theguardian.com/commentisfre...
Labour is taking the Pip – and disabled people have had enough | Cherylee Houston
I am in tears reading the stories of what might happen if these further cuts go ahead, which is why I’ve joined forces with others to demand action, says actor Cherylee Houston
www.theguardian.com
May 27, 2025 at 6:51 AM
Reposted by Sarah
April 12, 2025 at 5:20 PM
Anyone in the UK noticing their pension pots are going down because of the orange man across the pond?
April 8, 2025 at 9:43 AM
Reposted by Sarah
@longcovidphysio.bsky.social is pleased to support this essential campaign by @longcovidkids.bsky.social

Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.

#LCandME #FundOurFuture #FundThePlan
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social

#LCandME #FundOurFuture #FundThePlan

www.longcovidkids.org/post/open-le...
March 26, 2025 at 10:59 AM
Reposted by Sarah
5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay
March 15, 2025 at 8:12 AM
Reposted by Sarah
#HandsOffDisabilityBenefits

If you’re invited to speak at a meeting about cuts to disability benefits these useful slides with current information & statistics would be a good tool to use

Link here:

dpac.uk.net/2025/03/hand...
Hands Off Disability Benefit Cut Slides - DPAC
Below are the slides used for the talk Ellen Clifford gave to the Hands Off Disability Benefits! meeting on 9 March 2025.
dpac.uk.net
March 13, 2025 at 8:56 AM
The CDC banned terms news is absolutely terrifying. Can he really get away with this?
February 3, 2025 at 2:42 PM
Merry Christmas all 🎄❤️
December 25, 2024 at 5:29 PM
Reposted by Sarah
The devastation on its way is unimaginable - like nothing humanity has ever witnessed before - and everyone will wish they had been climate activists and ‘hysterics’ when they had the chance. We are in a moment of unprecedented stupidity
December 22, 2024 at 1:41 PM
Sorry I’ve been quiet lately. I’m struggling to maintain a stable baseline. Hopefully will be more active in the new year but for now my🦋 activity is going to be sporadic at best.
#LongCovidDiaries
November 27, 2024 at 7:21 AM
Reposted by Sarah
Reposting the 1st Long Covid starter pack with some additions. Further suggestions welcome 🙏
go.bsky.app/JvVAoFt
November 16, 2024 at 11:40 PM
Reposted by Sarah
What's happening in dysautonomia land? Twice in a week I'm hearing that people with severe ME are advised by different eminent dysautonomia experts to gradually sit up more. People with severe ME aren't living horizontally just for shits and giggles?!!
November 16, 2024 at 1:07 PM
Great response to Tim Dowling’s article in the Guardian where he minimised the dangers of Covid.

www.theguardian.com/world/2024/n...
Covid is no laughing matter when it continues to hurt so many | Letters
Letters: Dr Elke Hausmann and Sue Hewison respond to Tim Dowling’s column about his sons testing positive
www.theguardian.com
November 15, 2024 at 8:47 PM