Rory Cellan-Jones
@rorycj.bsky.social
Technology, Parkinson’s, #sophiefromromania
Pinned
Rory Cellan-Jones
@rorycj.bsky.social
· Jul 28
Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July
Sometimes when the football and cricket go disastrously wrong and the news is hide behind the sofa horrible the only answer is to bake a Cholla…
November 22, 2025 at 6:28 PM
Sometimes when the football and cricket go disastrously wrong and the news is hide behind the sofa horrible the only answer is to bake a Cholla…
open.substack.com/pub/heatherc... “Not only does this agreement sell out Ukraine and Europe for the benefit of Russia—which attacked Ukraine—it explicitly separates the U.S. from NATO, a long-time goal of Russia’s president Vladimir Putin.” This is a complete capitulation to Russia - it’s treachery
November 21, 2025
Ukraine’s president Volodymyr Zelensky addressed the Ukrainian people today.
open.substack.com
November 22, 2025 at 8:03 AM
open.substack.com/pub/heatherc... “Not only does this agreement sell out Ukraine and Europe for the benefit of Russia—which attacked Ukraine—it explicitly separates the U.S. from NATO, a long-time goal of Russia’s president Vladimir Putin.” This is a complete capitulation to Russia - it’s treachery
Big test for Starmer and other European leaders - are they going to stand by Ukraine or appease the Putin/Trump axis?
November 21, 2025 at 4:33 PM
Big test for Starmer and other European leaders - are they going to stand by Ukraine or appease the Putin/Trump axis?
open.substack.com/pub/rorycell... An NHS Trust made a decision to close an innovative service for people with Parkinson’s in July but waited until November to tell patients. “A complete failure of communications coupled with discourtesy” says one patient
Patients left in the dark after Home Based Care closure
Innovative Parkinson's scheme closed - patients told months later
open.substack.com
November 21, 2025 at 8:20 AM
open.substack.com/pub/rorycell... An NHS Trust made a decision to close an innovative service for people with Parkinson’s in July but waited until November to tell patients. “A complete failure of communications coupled with discourtesy” says one patient
Got a good story coming at 8 about one of the worst examples of poor communication between NHS and patients I’ve encountered. Subscribe here to get it in your inbox open.substack.com/pub/rorycell...
Rory’s Always On Newsletter | Rory Cellan-Jones | Substack
A tech notebook with a focus on health - and occasional glimpses of a dog called #sophiefromromania. Click to read Rory’s Always On Newsletter, by Rory Cellan-Jones, a Substack publication with tens o...
open.substack.com
November 21, 2025 at 7:36 AM
Got a good story coming at 8 about one of the worst examples of poor communication between NHS and patients I’ve encountered. Subscribe here to get it in your inbox open.substack.com/pub/rorycell...
#sophiefromromania says she sees absolutely no reason to stir from her bed today
November 20, 2025 at 12:08 PM
#sophiefromromania says she sees absolutely no reason to stir from her bed today
Reposted by Rory Cellan-Jones
To call something corrupt assumes a background of norms of proper behaviour. What’s so giddying about Trump’s blatant self-enrichment is that he doesn’t even seem to acknowledge that background norms exist.
November 19, 2025 at 5:12 PM
To call something corrupt assumes a background of norms of proper behaviour. What’s so giddying about Trump’s blatant self-enrichment is that he doesn’t even seem to acknowledge that background norms exist.
Those UK journalists backing Trump - a man who endorses the murder of a journalist because he’s ‘controversial’ - against the BBC need to see if they can find their moral compass
You know about Trump and Zelesnkyy’s call, but have you heard about the call between Trump and the Saudi Crown Prince?
Watch my statement below. Mr. President, release the transcript.
Watch my statement below. Mr. President, release the transcript.
November 19, 2025 at 2:06 PM
Those UK journalists backing Trump - a man who endorses the murder of a journalist because he’s ‘controversial’ - against the BBC need to see if they can find their moral compass
Just met adorable Arlo, the new puppy on our street. I think we may need to be cautious about introducing him to #sophiefromromania who can be a little boisterous with small dogs
November 19, 2025 at 1:51 PM
Just met adorable Arlo, the new puppy on our street. I think we may need to be cautious about introducing him to #sophiefromromania who can be a little boisterous with small dogs
Sorry, I’m a bit late with the daily #SophieFromRomania picture – on a cold and miserable morning we still managed a walk
November 19, 2025 at 12:15 PM
Sorry, I’m a bit late with the daily #SophieFromRomania picture – on a cold and miserable morning we still managed a walk
OMG standing on the Elizabeth Line platform at Paddington I flick through to the BBC sports app and witness a moment of Scottish football history
November 18, 2025 at 9:54 PM
OMG standing on the Elizabeth Line platform at Paddington I flick through to the BBC sports app and witness a moment of Scottish football history
Here’s #sophiefromromania asking what the shepherds should think about this morning’s sky
November 18, 2025 at 2:08 PM
Here’s #sophiefromromania asking what the shepherds should think about this morning’s sky
Never got round to posting this nice video of #sophiefromromania and her big friend Juno hanging out in the woods yesterday
November 18, 2025 at 2:06 PM
Never got round to posting this nice video of #sophiefromromania and her big friend Juno hanging out in the woods yesterday
So proud - the debate about the Parky Charter, the manifesto for better Parkinson’s care created by the Movers and Shakers podcast, got on Yesterday in Parliament. About 19 minutes in. www.bbc.co.uk/sounds/play/...
Yesterday in Parliament - 18/11/2025 - BBC Sounds
Helen Catt reports as the Home Secretary announces an overhaul of the asylum system.
www.bbc.co.uk
November 18, 2025 at 9:40 AM
So proud - the debate about the Parky Charter, the manifesto for better Parkinson’s care created by the Movers and Shakers podcast, got on Yesterday in Parliament. About 19 minutes in. www.bbc.co.uk/sounds/play/...
Reposted by Rory Cellan-Jones
Westminster Hall debate: e-petition 713714 relating to funding and care for people with Parkinson's
This evening, people can follow or catch up later on www.parliamentlive.tv
This evening, people can follow or catch up later on www.parliamentlive.tv
November 17, 2025 at 8:05 AM
Westminster Hall debate: e-petition 713714 relating to funding and care for people with Parkinson's
This evening, people can follow or catch up later on www.parliamentlive.tv
This evening, people can follow or catch up later on www.parliamentlive.tv
open.substack.com/pub/rorycell... Helen Matthews of Cure Parkinson’s and Claire Bale of Parkinson’s UK discuss how they make small sums (compared to big pharma) go a long way in funding research. And a reminder - the Westminster debate spurred by our Parky Charter is at 6pm!!!
Movers and Shakers: The Funding Machine
Plus - get ready for the big debate
open.substack.com
November 17, 2025 at 8:58 AM
open.substack.com/pub/rorycell... Helen Matthews of Cure Parkinson’s and Claire Bale of Parkinson’s UK discuss how they make small sums (compared to big pharma) go a long way in funding research. And a reminder - the Westminster debate spurred by our Parky Charter is at 6pm!!!
Cheer up #sophiefromromania I know the Prof left for Cambridge before 6 but today’s a big day - it’s Debate Day!
November 17, 2025 at 6:10 AM
Cheer up #sophiefromromania I know the Prof left for Cambridge before 6 but today’s a big day - it’s Debate Day!
So what does Trump’s u-turn on releasing the Epstein files mean? Has the DOJ now finished cleaning them up?
November 17, 2025 at 6:04 AM
So what does Trump’s u-turn on releasing the Epstein files mean? Has the DOJ now finished cleaning them up?
Just leaving Blackpool* after a fabulous weekend ending with lunch at a favourite spot
*Subs please check
*Subs please check
November 16, 2025 at 12:30 PM
Just leaving Blackpool* after a fabulous weekend ending with lunch at a favourite spot
*Subs please check
*Subs please check
www.propublica.org/article/kris... Just one more example of the kind of corruption that has become routine in the Trump administration
Firm Tied to Kristi Noem Secretly Got Money From $220 Million DHS Ad Contracts
The company is run by the husband of Noem’s chief DHS spokesperson and has personal and business ties to Noem and her aides. DHS invoked the “emergency” at the border to skirt competitive bidding rule...
www.propublica.org
November 16, 2025 at 5:40 AM
www.propublica.org/article/kris... Just one more example of the kind of corruption that has become routine in the Trump administration
Reposted by Rory Cellan-Jones
Buckle up - because this now amounts to a direct and deliberate attack on our country and its cultural sovereignty. Which side our politicians take - Trump's or the BBC's - over the coming days and weeks will speak volumes about their patriotism.
Trump says he will sue BBC for at least $1bn over Panorama edit
The US president confirmed he intends to sue the broadcaster for at least $1bn over the Panorama edit of a 2021 speech.
www.bbc.co.uk
November 15, 2025 at 7:10 AM
Buckle up - because this now amounts to a direct and deliberate attack on our country and its cultural sovereignty. Which side our politicians take - Trump's or the BBC's - over the coming days and weeks will speak volumes about their patriotism.
“Emails highlight Jeffrey Epstein and Steve Bannon relationship” - note that in 2018 Bannon was trying to interfere in UK politics, cheered on by Epstein www.bbc.com/news/article...
November 15, 2025 at 8:11 AM
“Emails highlight Jeffrey Epstein and Steve Bannon relationship” - note that in 2018 Bannon was trying to interfere in UK politics, cheered on by Epstein www.bbc.com/news/article...
Reposted by Rory Cellan-Jones
Can we repair the ageing brain? 🧠
The UK DRI's Prof Bart De Strooper and Prof Julie Williams join Prof Sonia Gandhi, @rorycj.bsky.social and host Brian Cox to discuss dementia and the ageing brain on the latest episode of @crick.ac.uk's new podcast 'A Question of Science' 🎙️👉 buff.ly/WymdYJ6
The UK DRI's Prof Bart De Strooper and Prof Julie Williams join Prof Sonia Gandhi, @rorycj.bsky.social and host Brian Cox to discuss dementia and the ageing brain on the latest episode of @crick.ac.uk's new podcast 'A Question of Science' 🎙️👉 buff.ly/WymdYJ6
November 14, 2025 at 5:18 PM
Can we repair the ageing brain? 🧠
The UK DRI's Prof Bart De Strooper and Prof Julie Williams join Prof Sonia Gandhi, @rorycj.bsky.social and host Brian Cox to discuss dementia and the ageing brain on the latest episode of @crick.ac.uk's new podcast 'A Question of Science' 🎙️👉 buff.ly/WymdYJ6
The UK DRI's Prof Bart De Strooper and Prof Julie Williams join Prof Sonia Gandhi, @rorycj.bsky.social and host Brian Cox to discuss dementia and the ageing brain on the latest episode of @crick.ac.uk's new podcast 'A Question of Science' 🎙️👉 buff.ly/WymdYJ6