@ronnyvb12.bsky.social
T1D, SJIA/ILD/Rare Disease mom/advocate, marketing professional - Boston, MA
www.sjiasupersquad.com
https://events.arthritis.org/participant/Ronny-Bachrach-2025
www.sjiasupersquad.com
https://events.arthritis.org/participant/Ronny-Bachrach-2025
I’m hoping this means we get something available soon
August 29, 2025 at 11:06 PM
I’m hoping this means we get something available soon
Happy to have been included in the INTO-HLH registry newsletter representing a #raredisease & #SJIA #rheum #rheumsky
August 13, 2025 at 9:44 PM
Happy to have been included in the INTO-HLH registry newsletter representing a #raredisease & #SJIA #rheum #rheumsky
It’s walk day! Donate for the Walk to Cure Arthritis today! events.arthritis.org/participant/...
June 8, 2025 at 12:41 PM
It’s walk day! Donate for the Walk to Cure Arthritis today! events.arthritis.org/participant/...
I’m gearing up for the Boston Arthritis Foundation walk. I walk for my daughter Sammy. She has a rare type of systemic arthritis (SJIA). We are raising awareness & funds to help support people with all forms of arthritis. Please consider donating or join us! events.arthritis.org/participant/...
April 28, 2025 at 12:46 PM
I’m gearing up for the Boston Arthritis Foundation walk. I walk for my daughter Sammy. She has a rare type of systemic arthritis (SJIA). We are raising awareness & funds to help support people with all forms of arthritis. Please consider donating or join us! events.arthritis.org/participant/...
Shining a light on rare disease day and SJIA.
February 28, 2025 at 2:26 PM
Shining a light on rare disease day and SJIA.
We’ll be walking this year to support the #arthritisfoundation to raise funds and awareness for #sjia and #rarediseases Link in bio to join/support us for the Boston walk.
January 31, 2025 at 2:14 PM
We’ll be walking this year to support the #arthritisfoundation to raise funds and awareness for #sjia and #rarediseases Link in bio to join/support us for the Boston walk.