@ronnyvb12.bsky.social
T1D, SJIA/ILD/Rare Disease mom/advocate, marketing professional - Boston, MA
www.sjiasupersquad.com
https://events.arthritis.org/participant/Ronny-Bachrach-2025
www.sjiasupersquad.com
https://events.arthritis.org/participant/Ronny-Bachrach-2025
Reposted
AXIOS: “.. Massachusetts is the first state to mandate insurance coverage of vaccines even if the federal government stops requiring it.”
@axios.com
www.axios.com/2025/09/04/m...
@axios.com
www.axios.com/2025/09/04/m...
September 4, 2025 at 6:25 PM
AXIOS: “.. Massachusetts is the first state to mandate insurance coverage of vaccines even if the federal government stops requiring it.”
@axios.com
www.axios.com/2025/09/04/m...
@axios.com
www.axios.com/2025/09/04/m...
Reposted
Your ability to get access to a COVID vaccine this fall is in jeopardy, whether or not you fit the new, restricted eligibility criteria. Please send a letter to your members of Congress today and help spread the word. actionnetwork.org/letters/writ...
Write members of Congress - Will COVID-19 vaccines be available this fall?
It is clear that HHS Secretary RFK Jr. is on a dangerous and fast-moving path to make COVID-19 vaccines totally unavailable here in the U.S. With COVID-19 cases on the rise in many parts of the US an...
actionnetwork.org
August 30, 2025 at 12:55 PM
Your ability to get access to a COVID vaccine this fall is in jeopardy, whether or not you fit the new, restricted eligibility criteria. Please send a letter to your members of Congress today and help spread the word. actionnetwork.org/letters/writ...
Happy to have been included in the INTO-HLH registry newsletter representing a #raredisease & #SJIA #rheum #rheumsky
August 13, 2025 at 9:44 PM
Happy to have been included in the INTO-HLH registry newsletter representing a #raredisease & #SJIA #rheum #rheumsky
It’s walk day! Donate for the Walk to Cure Arthritis today! events.arthritis.org/participant/...
June 8, 2025 at 12:41 PM
It’s walk day! Donate for the Walk to Cure Arthritis today! events.arthritis.org/participant/...
I’m gearing up for the Boston Arthritis Foundation walk. I walk for my daughter Sammy. She has a rare type of systemic arthritis (SJIA). We are raising awareness & funds to help support people with all forms of arthritis. Please consider donating or join us! events.arthritis.org/participant/...
April 28, 2025 at 12:46 PM
I’m gearing up for the Boston Arthritis Foundation walk. I walk for my daughter Sammy. She has a rare type of systemic arthritis (SJIA). We are raising awareness & funds to help support people with all forms of arthritis. Please consider donating or join us! events.arthritis.org/participant/...
Reposted
If you're excited about RFK2 banning a handful of artificial dyes but silent on RFK2 killing food safety inspections and gutting research on cancer, infectious diseases and Alzheimer's, you might not actually be all that interested in public health.
April 24, 2025 at 4:45 PM
If you're excited about RFK2 banning a handful of artificial dyes but silent on RFK2 killing food safety inspections and gutting research on cancer, infectious diseases and Alzheimer's, you might not actually be all that interested in public health.
Reposted
99.4% of new drugs approved by the FDA are the product of NIH funded research.
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence
March 23, 2025 at 10:36 PM
99.4% of new drugs approved by the FDA are the product of NIH funded research.
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence
Reposted
Shining a light on rare disease day and SJIA.
February 28, 2025 at 2:26 PM
Shining a light on rare disease day and SJIA.
We’ll be walking this year to support the #arthritisfoundation to raise funds and awareness for #sjia and #rarediseases Link in bio to join/support us for the Boston walk.
January 31, 2025 at 2:14 PM
We’ll be walking this year to support the #arthritisfoundation to raise funds and awareness for #sjia and #rarediseases Link in bio to join/support us for the Boston walk.