Alison
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rarezebramom.bsky.social
Alison
@rarezebramom.bsky.social
🦓HAE Caregiver🦓PI Mom🦓Mom of twins ♥️Lyme warrior💚 #🟦
Reposted by Alison
If your child has a rare disease and attends a public school in the US, they are entitled to district support through a #504 plan or an #IEP. Ensure they receive the education they deserve.

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
April 1, 2025 at 1:30 PM
Reposted by Alison
His High School career started out with 2 days in school, followed by over 100 at home. He finally started back for 1 period a day 2 weeks ago, and still hasn't made it back every day.

You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
April 1, 2025 at 1:30 PM
Thank you :)💗.
April 1, 2025 at 4:28 PM