RAREvolution
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EATRIS
EATRIS
@eatris.bsky.social
Rare Disease Research UK
Rare Disease Research UK
@rdrukhub.bsky.social
RARE Revolution insider®
RARE Revolution insider®
@rarerevinsider.bsky.social
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe
@eurordis.bsky.social
The Sumaira Foundation (TSF)
The Sumaira Foundation (TSF)
@thesumairafdn.bsky.social
ERN eUROGEN
ERN eUROGEN
@erneurogen.bsky.social
The Zebra Alliance Community
The Zebra Alliance Community
@thezebraalliance.bsky.social
CT Rare Advocate
CT Rare Advocate
@rarectadvocate.com
BAG | OFSP | UFSP
BAG | OFSP | UFSP
@bag.admin.ch
Alltrna
Alltrna
@alltrna.bsky.social
Katie Coveney
Katie Coveney
@drkatiecoveney.bsky.social
REMEDi4ALL
REMEDi4ALL
@remedi4all.bsky.social
nicolevasilevsky.bsky.social
nicolevasilevsky.bsky.social
@nicolevasilevsky.bsky.social
Lauren Testa, Ph.D.
Lauren Testa, Ph.D.
@laurenctesta.bsky.social
Mill_lab
Mill_lab
@cilialab.bsky.social
Jillian C. Banfield
Jillian C. Banfield
@jillianengages.bsky.social
Sally Sansom
Sally Sansom
@sallysansom.bsky.social
Shane McKee
Shane McKee
@shaneir.bsky.social
Zebrabande
Zebrabande
@zebrabande.bsky.social
Xilma Ortiz-Gonzalez MD PhD
Xilma Ortiz-Gonzalez MD PhD
@drxilma.bsky.social
bbqcornnuts
bbqcornnuts
@bbqcornnuts.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Vicente Yepez
Vicente Yepez
@vyepez.bsky.social
European Reference Network - MetabERN
European Reference Network - MetabERN
@ernmetabern.bsky.social
raising_rareness (Lyndsey Walsh)
raising_rareness (Lyndsey Walsh)
@raising-rareness.bsky.social
RealiseD
RealiseD
@realised-ihi.bsky.social
Rare Ireland
Rare Ireland
@rareireland.bsky.social
WHO
WHO
@who.int
VASCERN | European Reference Network
VASCERN | European Reference Network
@vascern.bsky.social
Children's Hyperinsulinism Charity UK and Ireland
Children's Hyperinsulinism Charity UK and Ireland
@chcharityuk.bsky.social
ERDERA
ERDERA
@erdera.bsky.social
Jeremy Pomeroy
Jeremy Pomeroy
@movemoresitless.bsky.social
Rare Advocacy Movement
Rare Advocacy Movement
@rareadvocacy.bsky.social
Usher Syndrome Ireland
Usher Syndrome Ireland
@usherireland.org
BBMRI-ERIC
BBMRI-ERIC
@bbmrieric.bsky.social
wsf-uk.bsky.social
wsf-uk.bsky.social
@wsf-uk.bsky.social
Oregon RDAC Coalition
Oregon RDAC Coalition
@rarediseaseoregon.bsky.social
RareDiseasePatient
RareDiseasePatient
@rarediseasepatient.bsky.social
Rare Diseases International (RDI)
Rare Diseases International (RDI)
@rarediseasesint.bsky.social
Rare Disease Mom
Rare Disease Mom
@rarediseasemom.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
Olivier Menzel
Olivier Menzel
@oliviermenzel.bsky.social