RADeep Presentations at #ASH25:
✅https://meetings-api.hematology.org/api/abstract/vmpreview/296257
✅https://meetings-api.hematology.org/api/abstract/vmpreview/296645
✅https://meetings-api.hematology.org/api/abstract/vmpreview/296662
✅https://meetings-api.hematology.org/api/abstract/vmpreview/293040

SYNTHEMA builds on strong ethical and collaborative foundations:

🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network

📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social

🤝Partnership with Flower - open-source federated learning for privacy-preserving AI

Through collaborations with @radeep.bsky.social and ENROL, SYNTHEMA aligns rare disease datasets with European standards. This ensures interoperability across registries and hospitals, strengthening the foundation for synthetic data and AI solutions in real-world healthcare.

📌 RADeep Epidemiological Data
Public dashboard – available in real time on our website, providing all stakeholders with an overview of all patients registered in RADeep (updated daily)

🔗 Explore the Public Dashboard on our website: www.radeepnetwork.eu/epidemiologi...

🤝​This #WorldSickleCellDay, we reaffirm our commitment to data-driven collaboration and patient-centered care.

*manuscript in preparation authored by the RADeep Team.

#SickleCell #sicklecelldisease #shinethelightonsicklecell
#WSCD25

🎧#EHAUnplugged episode "Revolutionizing Patient Registries to Promote Research and Improve Health Outcomes" where @mmanupe.bsky.social , RADeep Coordinator, takes us through RADeep’s mission to unite European patient registries for rare anemia disorders, aiming to improve research and patient care.

🔗 Follow us to stay updated on insights, progress, and impact from the RADeep community: bit.ly/4dOrbsf
#RareDiseases #RareAnemia #PatientRegistry #RADs #thalassemia #thal #SickleCellDisease #SCD

💡 Our focus
Rare anemias—including thalassemias, sickle cell disease (SCD), and other inherited red blood cell disorders—are at the heart of our mission.

📸The 2024 RADeep Data Access Committee Meeting - where collaboration & commitment to rare anemia research come together.

🔬#EUfunded projects have already adopted RADeep’s standards for developing clinical datasets in rare anaemias.

Genomed4all – Genomics & AI for personalized care
@synthemaeu.bsky.social – Synthetic data for haematological research
@erdera.bsky.social – European Rare Diseases Research Alliance

🎯Our mission

To optimize the public benefits derived from standardized data collection on RADs by:

•Establishing a frame for surveillance of RADs at the European level.
•Facilitating the identification of patient cohorts for clinical research studies and access to treatments.