RADeep Network
@radeep.bsky.social
RADeep (Rare Anaemia Disorders European Epidemiological Platform) is a GDPR-compliant patient registry launched in 2017.
📣We are pleased to announce that #RADeep will participate in the 67th #ASH25 Annual Meeting and Exposition!
✅This year, we will present four key contributions focused on real-world data, outcome research in hemoglobinopathies, and Europe-wide data standardization efforts.
✅This year, we will present four key contributions focused on real-world data, outcome research in hemoglobinopathies, and Europe-wide data standardization efforts.
November 26, 2025 at 11:37 AM
Reposted by RADeep Network
SYNTHEMA builds on strong ethical and collaborative foundations:
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
October 28, 2025 at 10:25 AM
SYNTHEMA builds on strong ethical and collaborative foundations:
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
Reposted by RADeep Network
Through collaborations with @radeep.bsky.social and ENROL, SYNTHEMA aligns rare disease datasets with European standards. This ensures interoperability across registries and hospitals, strengthening the foundation for synthetic data and AI solutions in real-world healthcare.
October 2, 2025 at 7:40 AM
Through collaborations with @radeep.bsky.social and ENROL, SYNTHEMA aligns rare disease datasets with European standards. This ensures interoperability across registries and hospitals, strengthening the foundation for synthetic data and AI solutions in real-world healthcare.
Reposted by RADeep Network
✅ Day 1 | ERN-EuroBloodNet & @radeep.bsky.social – #SCD Patients Session at #ASCAT2025 !
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
October 3, 2025 at 8:28 AM
✅ Day 1 | ERN-EuroBloodNet & @radeep.bsky.social – #SCD Patients Session at #ASCAT2025 !
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
📣#Hiring alert at @vhir.bsky.social !
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...
September 26, 2025 at 9:42 AM
📣#Hiring alert at @vhir.bsky.social !
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...
✅A successful and inspiring RADeep DAC Annual Meeting!
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron.com for the annual #RADeep Data Access Committee (DAC) meeting.
www.radeepnetwork.eu @ec.europa.eu
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron.com for the annual #RADeep Data Access Committee (DAC) meeting.
www.radeepnetwork.eu @ec.europa.eu
September 25, 2025 at 12:04 PM
✅A successful and inspiring RADeep DAC Annual Meeting!
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron.com for the annual #RADeep Data Access Committee (DAC) meeting.
www.radeepnetwork.eu @ec.europa.eu
🌍Last week, representatives from Italy, France, Spain, the Netherlands, Greece, Cyprus, Belgium, and Portugal gathered at @vallhebron.com for the annual #RADeep Data Access Committee (DAC) meeting.
www.radeepnetwork.eu @ec.europa.eu
📢Exciting news! The RADeep Data Access Committee (DAC) is meeting next Thursday, the 18th, at @vhir.bsky.social
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐https://www.radeepnetwork.eu/
#RADeepNetwork #RADeep #RareDiseases
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐https://www.radeepnetwork.eu/
#RADeepNetwork #RADeep #RareDiseases
September 10, 2025 at 9:18 AM
📢Exciting news! The RADeep Data Access Committee (DAC) is meeting next Thursday, the 18th, at @vhir.bsky.social
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐https://www.radeepnetwork.eu/
#RADeepNetwork #RADeep #RareDiseases
We'll come together to collaborate, share updates, and define the next steps for the future of RADeep🤝
🌐https://www.radeepnetwork.eu/
#RADeepNetwork #RADeep #RareDiseases
🗓On April 11, #RADeep hosted an in-person Hands-On Session on Data Entry at @VHIR_ , Barcelona.
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more www.radeepnetwork.eu
#RareDiseases #hematology
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more www.radeepnetwork.eu
#RareDiseases #hematology
August 20, 2025 at 8:05 AM
🗓On April 11, #RADeep hosted an in-person Hands-On Session on Data Entry at @VHIR_ , Barcelona.
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more www.radeepnetwork.eu
#RareDiseases #hematology
🌍Participants joined from Belgium, Portugal, Denmark, Norway, the Netherlands, Spain, Italy, and Greece.
▶️Find out more www.radeepnetwork.eu
#RareDiseases #hematology
🚀The new RADeep REDCap Platform is live!
A major step forward for rare anemia data collection and management across Europe.
This updated version offers significant improvements in:
✅Data visualization
✅Quality control
✅Overall efficiency in managing information
#RADeep #hematology
A major step forward for rare anemia data collection and management across Europe.
This updated version offers significant improvements in:
✅Data visualization
✅Quality control
✅Overall efficiency in managing information
#RADeep #hematology
August 13, 2025 at 10:17 AM
🚀The new RADeep REDCap Platform is live!
A major step forward for rare anemia data collection and management across Europe.
This updated version offers significant improvements in:
✅Data visualization
✅Quality control
✅Overall efficiency in managing information
#RADeep #hematology
A major step forward for rare anemia data collection and management across Europe.
This updated version offers significant improvements in:
✅Data visualization
✅Quality control
✅Overall efficiency in managing information
#RADeep #hematology
🩸🎥On #WorldSickleCellDay RADeep and the
@erneurobloodnet.bsky.social are proud to launch a 2-minute animated video co-created with adolescents and young adults living with #SCD across Europe.
🔗Available in 8 languages: youtube.com/playlist?lis...
#SickleCellDisease #SickleCell
@erneurobloodnet.bsky.social are proud to launch a 2-minute animated video co-created with adolescents and young adults living with #SCD across Europe.
🔗Available in 8 languages: youtube.com/playlist?lis...
#SickleCellDisease #SickleCell
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story - YouTube
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story (Multilingual Versions). This video is available in this playlist with t...
youtube.com
June 19, 2025 at 11:44 AM
🩸🎥On #WorldSickleCellDay RADeep and the
@erneurobloodnet.bsky.social are proud to launch a 2-minute animated video co-created with adolescents and young adults living with #SCD across Europe.
🔗Available in 8 languages: youtube.com/playlist?lis...
#SickleCellDisease #SickleCell
@erneurobloodnet.bsky.social are proud to launch a 2-minute animated video co-created with adolescents and young adults living with #SCD across Europe.
🔗Available in 8 languages: youtube.com/playlist?lis...
#SickleCellDisease #SickleCell
🌍🩸@mmanupe.bsky.social , #RADeep coordinator, presented innovative sequencing techniques for the diagnosis of rare anemias. She introduced RADeep uRADAR, a new referral framework designed to support patients affected by ultra-rare anemias (uRADs) across the EU.
🔗 radeepnetwork.eu
#EHA2025
🔗 radeepnetwork.eu
#EHA2025
June 16, 2025 at 12:15 PM
🌍🩸@mmanupe.bsky.social , #RADeep coordinator, presented innovative sequencing techniques for the diagnosis of rare anemias. She introduced RADeep uRADAR, a new referral framework designed to support patients affected by ultra-rare anemias (uRADs) across the EU.
🔗 radeepnetwork.eu
#EHA2025
🔗 radeepnetwork.eu
#EHA2025
Reposted by RADeep Network
We’re at #EHA2025! Visit us in Hall 4 and meet the #SYNTHEMA & #GenoMed4All teams.
📢 Don’t miss the Clinical and Data-Driven Research session by @erneurobloodnet.bsky.social tomorrow, 13:00–14:30, with our project experts!
👉 Agenda: lnkd.in/ejt_znV5
📢 Don’t miss the Clinical and Data-Driven Research session by @erneurobloodnet.bsky.social tomorrow, 13:00–14:30, with our project experts!
👉 Agenda: lnkd.in/ejt_znV5
June 12, 2025 at 9:15 AM
We’re at #EHA2025! Visit us in Hall 4 and meet the #SYNTHEMA & #GenoMed4All teams.
📢 Don’t miss the Clinical and Data-Driven Research session by @erneurobloodnet.bsky.social tomorrow, 13:00–14:30, with our project experts!
👉 Agenda: lnkd.in/ejt_znV5
📢 Don’t miss the Clinical and Data-Driven Research session by @erneurobloodnet.bsky.social tomorrow, 13:00–14:30, with our project experts!
👉 Agenda: lnkd.in/ejt_znV5
🩸🌍 RADeep Network is at #EHA2025!
The #RADeep Network team is on site at the European Hematology Association (EHA) Congress 2025, connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the ERN-EuroBloodNet booth!
#hematology #EHA2025
The #RADeep Network team is on site at the European Hematology Association (EHA) Congress 2025, connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the ERN-EuroBloodNet booth!
#hematology #EHA2025
June 14, 2025 at 11:50 AM
🩸🌍 RADeep Network is at #EHA2025!
The #RADeep Network team is on site at the European Hematology Association (EHA) Congress 2025, connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the ERN-EuroBloodNet booth!
#hematology #EHA2025
The #RADeep Network team is on site at the European Hematology Association (EHA) Congress 2025, connecting, sharing and advancing knowledge about rare anaemia disorders across Europe.
📍 Come meet us at the ERN-EuroBloodNet booth!
#hematology #EHA2025
🎙️Discover RADeep’s mission and impact!
🔎 Did you know? #RADeep is endorsed by the European Rare Blood Disorders Platform (#ENROL) and the European Hematology Association (EHA)!
👉 Don’t miss it! lnkd.in/d5YeJn55
#RADeepNetwork #RareDiseases #RareAnaemia #PatientRegistry #HealthcareInnovation
🔎 Did you know? #RADeep is endorsed by the European Rare Blood Disorders Platform (#ENROL) and the European Hematology Association (EHA)!
👉 Don’t miss it! lnkd.in/d5YeJn55
#RADeepNetwork #RareDiseases #RareAnaemia #PatientRegistry #HealthcareInnovation
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June 10, 2025 at 2:16 PM
🎙️Discover RADeep’s mission and impact!
🔎 Did you know? #RADeep is endorsed by the European Rare Blood Disorders Platform (#ENROL) and the European Hematology Association (EHA)!
👉 Don’t miss it! lnkd.in/d5YeJn55
#RADeepNetwork #RareDiseases #RareAnaemia #PatientRegistry #HealthcareInnovation
🔎 Did you know? #RADeep is endorsed by the European Rare Blood Disorders Platform (#ENROL) and the European Hematology Association (EHA)!
👉 Don’t miss it! lnkd.in/d5YeJn55
#RADeepNetwork #RareDiseases #RareAnaemia #PatientRegistry #HealthcareInnovation
🩸🌍The RADeep Network is now live on social media!
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
June 5, 2025 at 9:54 AM
🩸🌍The RADeep Network is now live on social media!
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.