Rachel
@rachelme.bsky.social
Trying to be a good human. Living with Myalgic Encephalomyelitis.
Very good, succinct summary.
December 5, 2024 at 10:07 PM
Very good, succinct summary.
It’s an absolutely brilliant summary. A must watch for anyone new to ME.
November 21, 2024 at 5:33 PM
It’s an absolutely brilliant summary. A must watch for anyone new to ME.
Feels like a half baked sorry not sorry. Nothing from the charity itself. Just “sorry you felt that way” nonsense.
November 19, 2024 at 9:14 PM
Feels like a half baked sorry not sorry. Nothing from the charity itself. Just “sorry you felt that way” nonsense.
Feel fully defined by my illness! And that’s ok. It’s full on and impacts everything I do / don’t do.
November 17, 2024 at 9:38 AM
Feel fully defined by my illness! And that’s ok. It’s full on and impacts everything I do / don’t do.
Hello Rachel - lovely to see another Rachel spelling their name correctly!
November 16, 2024 at 7:17 PM
Hello Rachel - lovely to see another Rachel spelling their name correctly!
This was exactly my experience for the first 5 years of ME. I thought I was recovering between crashes but o wasn’t. I was actually only ever getting back to 80% of the level before. Doesn’t take long for your life to start looking VERY different
November 16, 2024 at 6:26 PM
This was exactly my experience for the first 5 years of ME. I thought I was recovering between crashes but o wasn’t. I was actually only ever getting back to 80% of the level before. Doesn’t take long for your life to start looking VERY different
Agree. I often get the calculated risks right these days but it’s always something new or unforeseen that breaks me….
November 16, 2024 at 6:25 PM
Agree. I often get the calculated risks right these days but it’s always something new or unforeseen that breaks me….
Really happy for you Cam. Not quite able to do as much as you but feel lucky / grateful that there’s been some stability lately - felt like I was constantly declining for the first 5 years.
November 16, 2024 at 3:50 PM
Really happy for you Cam. Not quite able to do as much as you but feel lucky / grateful that there’s been some stability lately - felt like I was constantly declining for the first 5 years.
It’s been a great help for me too. Agree that it has its limitations (ie not always applicable to severe ME etc) but it’s helped keep away major baseline deteriorating crashes for me for the last 18 mth. Consequently, I’m now able to do a little bit more than before.
November 16, 2024 at 3:42 PM
It’s been a great help for me too. Agree that it has its limitations (ie not always applicable to severe ME etc) but it’s helped keep away major baseline deteriorating crashes for me for the last 18 mth. Consequently, I’m now able to do a little bit more than before.