Rachel
@rachelme.bsky.social
Trying to be a good human. Living with Myalgic Encephalomyelitis.
Lots of people signing up over the last few hours - 600+ now. AGM is Monday afternoon - would be great if we had close to a 1000 by then. #pwME #ME #MEcfs
In PEM from advocacy last few weeks but just coming on to share this follow up letter and petition to ME Association calling for accountability and action.
www.change.org/p/me-associa...
www.change.org/p/me-associa...
December 5, 2024 at 10:06 PM
Currently nearly 300 signatories - my personal belief is that NR has to step down if the MEA want a future representing pwME. I currently have no faith in the org. #myalgicencephalomyelitis
In PEM from advocacy last few weeks but just coming on to share this follow up letter and petition to ME Association calling for accountability and action.
www.change.org/p/me-associa...
www.change.org/p/me-associa...
Sign the Petition
ME Association Chair Neil Riley must step down
www.change.org
December 5, 2024 at 12:56 PM
Currently nearly 300 signatories - my personal belief is that NR has to step down if the MEA want a future representing pwME. I currently have no faith in the org. #myalgicencephalomyelitis
Reposted by Rachel
Totally professional and rigorously researched this 27 minute film combines the facts with the relevant film clips to back up the evidence that #ME patients have been disbelieved and mistreated for the last 30 years. This video shows one of the main reasons why this is so.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 1:53 PM
Totally professional and rigorously researched this 27 minute film combines the facts with the relevant film clips to back up the evidence that #ME patients have been disbelieved and mistreated for the last 30 years. This video shows one of the main reasons why this is so.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
Ok….let’s do this. Still reading over there but would love to find a nice friendly home for chats on TV, books and, most importantly, how to navigate life with #myalgicencephalomyelitis.
November 16, 2024 at 9:59 AM
Ok….let’s do this. Still reading over there but would love to find a nice friendly home for chats on TV, books and, most importantly, how to navigate life with #myalgicencephalomyelitis.